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Experiences with
Prednisone
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To walk or not to walk?
I've recently been diagnosed with PMR and started on 15mg of Prednisolone which has now been reduced to 12mg. The meds are defiitely working but the stiffness has come back over the last few days. Do people 'work through it' and move and exercise or rest? I've tried both, and the pain and stiffness seem
I've recently been diagnosed with PMR and started on 15mg of Prednisolone which has now been reduced to 12mg. The meds are defiitely working but the stiffness has come back over the last few days. Do people 'work through it' and move and exercise or rest? I've tried both, and the pain and stiffness seem
CupOfEarlGrey
in
PMRGCAuk
6 months ago
PET scan
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
NormaB
in
PMRGCAuk
6 months ago
Rate of Prednisone Decrease after Upping for a Flare
I like to separate thyroid med from
prednisone
and since I am a night owl (bad habit) that means I sometimes don’t take my
prednisone
until noon or later. Is this less than optimal timing? Thanks!
I like to separate thyroid med from
prednisone
and since I am a night owl (bad habit) that means I sometimes don’t take my
prednisone
until noon or later. Is this less than optimal timing? Thanks!
Donna5658
in
PMRGCAuk
1 year ago
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May second follow up appointment since new treatment
I had my 2nd follow up yesterday since start of zytiga,
Prednisone
and Lupron. All of my blood labs are within normal range, PSA continues to ⬇️ now at 2.6 (from 16) before treatment restart.
I had my 2nd follow up yesterday since start of zytiga,
Prednisone
and Lupron. All of my blood labs are within normal range, PSA continues to ⬇️ now at 2.6 (from 16) before treatment restart.
Blueribbon63
in
Advanced Prostate Cancer
1 year ago
Normal cortisol levels
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Bargin_ninja
in
PMRGCAuk
6 months ago
reducing prednisone with slow method
I have been reducing for 2 months and have gone from 15mg daily to 12. Things are going pretty good. I have tweaked it a little and wonder what anyone thinks about it. In the past I have flared doing this and thought what can I do differently to help myself. I usually take my pred in the evening. Now
I have been reducing for 2 months and have gone from 15mg daily to 12. Things are going pretty good. I have tweaked it a little and wonder what anyone thinks about it. In the past I have flared doing this and thought what can I do differently to help myself. I usually take my pred in the evening. Now
Linny3
in
PMRGCAuk
1 year ago
Slow healing.
Have been on Prednisolone for 5years , have currently tried dropping to 7mg. I had a bad leg wound on August 15th .It is taking a long time to heal . My wound clinic girl 's say it is my age and because I am on steriods .I will try to keep dropping steadily Will it be better to have painkillers and
Have been on Prednisolone for 5years , have currently tried dropping to 7mg. I had a bad leg wound on August 15th .It is taking a long time to heal . My wound clinic girl 's say it is my age and because I am on steriods .I will try to keep dropping steadily Will it be better to have painkillers and
Barbaracole
in
PMRGCAuk
6 months ago
Progress
After just over seven months have finally made it to 10mg prednisolone (from 50mg) and feel like celebrating ! I would not be in this position if it were not for this fabulous supportive group - THANK YOU so much. You've given me confidence to question the medical establishment even though it is still
After just over seven months have finally made it to 10mg prednisolone (from 50mg) and feel like celebrating ! I would not be in this position if it were not for this fabulous supportive group - THANK YOU so much. You've given me confidence to question the medical establishment even though it is still
Body_bonkers
in
PMRGCAuk
6 months ago
lowering prednisolone
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
Guilluame
in
PMRGCAuk
6 months ago
NHS App
Currently tapering down on meds. On RTX infusion , Methotrexate and Prednisolone. There is the need to monitor bloods and every three months get a ANCA reading. Thought I would look on the NHS App for results, but none are visible. On call to get the results, queried and was told its political,
Currently tapering down on meds. On RTX infusion , Methotrexate and Prednisolone. There is the need to monitor bloods and every three months get a ANCA reading. Thought I would look on the NHS App for results, but none are visible. On call to get the results, queried and was told its political,
Bailey59
in
Vasculitis UK
6 months ago
Grumpy Old Lady in pain
A follow up to my previous post.. Is it my fault? That I didn’t give them enough relevant information when I phoned? How do I know what is relevant when I’m not a trained medical professional and I can’t see what comes up on their computer screen against my name? Would it hurt for them to ask
A follow up to my previous post.. Is it my fault? That I didn’t give them enough relevant information when I phoned? How do I know what is relevant when I’m not a trained medical professional and I can’t see what comes up on their computer screen against my name? Would it hurt for them to ask
Loco99
in
PMRGCAuk
6 months ago
Hi everyone
My name is Dave and I was diagnosed with MPA Vasculitis around the end of September. I had been having fevers and night sweats that would come and go most days for approx 6 months. Also aching legs and tingly feet. GP had no luck finding the cause for about 3 or 4 months. Then my wife insisted I should
My name is Dave and I was diagnosed with MPA Vasculitis around the end of September. I had been having fevers and night sweats that would come and go most days for approx 6 months. Also aching legs and tingly feet. GP had no luck finding the cause for about 3 or 4 months. Then my wife insisted I should
Reggie999
in
Vasculitis UK
6 months ago
live yoghurt and prednisolone
I debated whether to add this to the current discussion or start with a fresh question. Lots of you say you take prednisolone with live yoghurt, but when I searched for relevant information a while back it said that you should not take prednisolone with live yoghurt (can't remember why). I eat a lot
I debated whether to add this to the current discussion or start with a fresh question. Lots of you say you take prednisolone with live yoghurt, but when I searched for relevant information a while back it said that you should not take prednisolone with live yoghurt (can't remember why). I eat a lot
musicalJ
in
PMRGCAuk
6 months ago
Surgery and PMR?
How important is the fact that you have PMR relevant to hospital treatment and surgery? I am on a low dose of Prednisolone and recently had abdominal surgery. According to my GP’s surgery notes I don’t have PMR at all but it has been recorded on the NHS database and I get extra Covid vaccinations.
How important is the fact that you have PMR relevant to hospital treatment and surgery? I am on a low dose of Prednisolone and recently had abdominal surgery. According to my GP’s surgery notes I don’t have PMR at all but it has been recorded on the NHS database and I get extra Covid vaccinations.
Loco99
in
PMRGCAuk
6 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
6 months ago
Wandering Scot presently living in Mexico and recently diagnosed with PMR
I know the risks of
prednisone
especially as I already have osteoporosis but I’m hoping I can mitigate those. When I started the
prednisone
I started a calcium supplement with vitamin D. I’ll also add vitamin K.
I know the risks of
prednisone
especially as I already have osteoporosis but I’m hoping I can mitigate those. When I started the
prednisone
I started a calcium supplement with vitamin D. I’ll also add vitamin K.
emsscot
in
PMRGCAuk
1 year ago
Facial Hair growth due to Cyclosporine
It's been 3 months post my transplant and I'm on cyclosporine,
prednisone
& MMF. I have been. experience a lot of facial hair growth. My doctors told me it could due to steroid or cyclosporin but more likely due to cyclosporine.
It's been 3 months post my transplant and I'm on cyclosporine,
prednisone
& MMF. I have been. experience a lot of facial hair growth. My doctors told me it could due to steroid or cyclosporin but more likely due to cyclosporine.
TheLostMonk
in
Kidney Transplant
6 months ago
what painkillers to take when on prednisolone.
this is my first post so i hope I have done this correctly. Husband is in a lot of pain and has been taking paracetamol every 4 hours. He is also type 2 diabetic. on daily insulin. can anyone suggest a safe stronger painkiller please. As long as he is on his back
this is my first post so i hope I have done this correctly. Husband is in a lot of pain and has been taking paracetamol every 4 hours. He is also type 2 diabetic. on daily insulin. can anyone suggest a safe stronger painkiller please. As long as he is on his back
Jayjay27
in
PMRGCAuk
6 months ago
Side effects of steroids
I am well aware that Prednisolone can affect you in various ways, acutely while you are using them and also long term.. But could it weaken your blood vessels? I have just found out that I have a couple of small bleeds/leaks from blood vessels at the back of one eye. While the bleeds in themselves
I am well aware that Prednisolone can affect you in various ways, acutely while you are using them and also long term.. But could it weaken your blood vessels? I have just found out that I have a couple of small bleeds/leaks from blood vessels at the back of one eye. While the bleeds in themselves
Wheezycat
in
Asthma Community Forum
6 months ago
Prednisolone came down to fast
Hi everyone, I tried unsuccessfully to taper down from 10mg to 8mg and like Dorsetlady said it was too big a drop. And she was right I tried saying that I will get over the severe aches and pains to no avail I had to go back to 10mg.Thank you for reading my small note. Peter
Hi everyone, I tried unsuccessfully to taper down from 10mg to 8mg and like Dorsetlady said it was too big a drop. And she was right I tried saying that I will get over the severe aches and pains to no avail I had to go back to 10mg.Thank you for reading my small note. Peter
Petertaffy
in
PMRGCAuk
6 months ago
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