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After Rheumy appt...now where or nowhere?
She harped about me being at 30 mg Pred and I should "get that
prednisone
down". At this point, I'm wondering if I should increase it to see if it helps with the pain, although it HAS NOT in past. The only thing that was initially helping was Ibuprofen and Tylenol together.
She harped about me being at 30 mg Pred and I should "get that
prednisone
down". At this point, I'm wondering if I should increase it to see if it helps with the pain, although it HAS NOT in past. The only thing that was initially helping was Ibuprofen and Tylenol together.
Missus835
in
PMRGCAuk
1 year ago
How important is the timing when the dose is 0.5mg?
hello and happy new year! I’m successfully down to 0.5mg Prednisolone daily and take it when I wake in the early hours (2-3.30am) How important is this timing at this dose? Is there a more beneficial time?
hello and happy new year! I’m successfully down to 0.5mg Prednisolone daily and take it when I wake in the early hours (2-3.30am) How important is this timing at this dose? Is there a more beneficial time?
PipandDots
in
PMRGCAuk
4 months ago
Steroids and blood-sugar...
I posted recently about the "Prednisolone jitters" and quite a lot of people seem to have responded with similar experiences. I think I might have some insight which might be useful to someone out there... Before being diagnosed with PMR I used to get episodes of low blood sugar. I know this because
I posted recently about the "Prednisolone jitters" and quite a lot of people seem to have responded with similar experiences. I think I might have some insight which might be useful to someone out there... Before being diagnosed with PMR I used to get episodes of low blood sugar. I know this because
Hidden
in
PMRGCAuk
4 months ago
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Heading for transfer no.6 - protocol modifications
So today I had my follow up appt after 5th failed transfer. Was hoping mr Dr would suggest something new and boy has he done that! 😊😊 5th transfer I had HCG wash before transfer but no other additional tests/treatments. This time I’m having clexane injections, prednisolone, oestrogen patches instead
So today I had my follow up appt after 5th failed transfer. Was hoping mr Dr would suggest something new and boy has he done that! 😊😊 5th transfer I had HCG wash before transfer but no other additional tests/treatments. This time I’m having clexane injections, prednisolone, oestrogen patches instead
Doodlebug23
in
Fertility Network UK
4 months ago
What to do after prednisolone rescue ended?
Has anyone any advice how to get back down to my normal dose of inhaled steroid after a short prednisolone course and chest infection please? Story: I’m maintained on 1 or 2 puffs once a day of Alvesco 80, PF max 380 and very occasional use of Ventolin. I caught a cold virus about 12 days ago and despite
Has anyone any advice how to get back down to my normal dose of inhaled steroid after a short prednisolone course and chest infection please? Story: I’m maintained on 1 or 2 puffs once a day of Alvesco 80, PF max 380 and very occasional use of Ventolin. I caught a cold virus about 12 days ago and despite
Merryroundabout
in
Asthma Community Forum
4 months ago
"Prednisolone Jitters"...is it A Thing...?
I am fairly new to Prednisolone, barely one week in. It has helped enormously but it has also had some odd and unexpected effects. I often wake in the middle of the night with my body raring to get up and do some gardening, chop some wood or take the dog for a long hike...at 1am...! My mind, of course
I am fairly new to Prednisolone, barely one week in. It has helped enormously but it has also had some odd and unexpected effects. I often wake in the middle of the night with my body raring to get up and do some gardening, chop some wood or take the dog for a long hike...at 1am...! My mind, of course
Hidden
in
PMRGCAuk
4 months ago
Haemophilus influenza
Waiting on sputum culture results back on 200mg of doxy and
prednisone
, any advice from any lungies out there. Would appreciate many thanks in advance😙
Waiting on sputum culture results back on 200mg of doxy and
prednisone
, any advice from any lungies out there. Would appreciate many thanks in advance😙
Tinker26
in
Bronchiectasis Support
1 year ago
switch to hydrocortisone
I’ve been to see the endocrinologist today on the recommendation of the rheumatologist. I had a borderline synacthan test , on the basis of which today he has suggested I switch to 5mg of hydrocortisone twice daily from 4 mg of prednisolone. In the background to this I have also been prescribed low
I’ve been to see the endocrinologist today on the recommendation of the rheumatologist. I had a borderline synacthan test , on the basis of which today he has suggested I switch to 5mg of hydrocortisone twice daily from 4 mg of prednisolone. In the background to this I have also been prescribed low
AnniesRyder5
in
PMRGCAuk
4 months ago
Prednisolone and breathlessness
Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86 year old mums GCA journey so far has had a few challenges along the way since starting early March and after our last rheumy visit she has reluctantly let us continue following DL slow taper from 13mg to 12mg and my mum
Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86 year old mums GCA journey so far has had a few challenges along the way since starting early March and after our last rheumy visit she has reluctantly let us continue following DL slow taper from 13mg to 12mg and my mum
Buchanan16
in
PMRGCAuk
4 months ago
Prednisolone Week 2 Completed
UPDATE: So, not as clear cut as I was hoping in terms of documenting my Prednisolone journey as after week 1 my dose has been halved from 30mg to 15mg by my NHS Rheumatologist so it's all a bit messy at the minute in terms of 'tapering' Nevertheless, here goes: Week 2 started on 15mg really well, day
UPDATE: So, not as clear cut as I was hoping in terms of documenting my Prednisolone journey as after week 1 my dose has been halved from 30mg to 15mg by my NHS Rheumatologist so it's all a bit messy at the minute in terms of 'tapering' Nevertheless, here goes: Week 2 started on 15mg really well, day
Paulx222
in
PMRGCAuk
4 months ago
Omeprazole query
Recently diagnosed and on prednisolone; also prescribed Alendronic acid (weekly dose) and Omeprazole. I thought my GP said that as I have no history of gastric problems to only take the Omeprazole in the evening before I take the alendronic acid the next day. But she has prescribed enough for once daily
Recently diagnosed and on prednisolone; also prescribed Alendronic acid (weekly dose) and Omeprazole. I thought my GP said that as I have no history of gastric problems to only take the Omeprazole in the evening before I take the alendronic acid the next day. But she has prescribed enough for once daily
Wheelygood99
in
PMRGCAuk
4 months ago
Great PMR forum
Almost 4 years ago I got the diagnoses of PMR. Had never heard of it before although I worked in medical research. Now since more than one year on Prednisolone 1mg/day. You all have been of great help, especially because of the fast replies. My wishes for a happy and healthy 2024 come from Bruges, Belgium
Almost 4 years ago I got the diagnoses of PMR. Had never heard of it before although I worked in medical research. Now since more than one year on Prednisolone 1mg/day. You all have been of great help, especially because of the fast replies. My wishes for a happy and healthy 2024 come from Bruges, Belgium
GrandmaPirate
in
PMRGCAuk
4 months ago
Struggling with flare up
Since last Wednesday my asthma has flared up. I have been taking regular reliever (mart regime fostair 100/6)every 4 hrs. I have had tight chest and peak flow dropped to 350/500. Although I not making my top peak flow as my lungs are still healing from pneumonia. Now I woke up with soreness in my diaphragm
Since last Wednesday my asthma has flared up. I have been taking regular reliever (mart regime fostair 100/6)every 4 hrs. I have had tight chest and peak flow dropped to 350/500. Although I not making my top peak flow as my lungs are still healing from pneumonia. Now I woke up with soreness in my diaphragm
elanaoali
in
Lung Conditions Community Forum
4 months ago
Merry Christmas,Happy New Year with thanks
It will be 4yrs this coming January for me with PMR. Down to 2.5 mg Prednisolone 4 days and 5mg 3 days a week. iI would just like to say many thanks to those that run this forum and to those who contribute such helpful information and advice. You are all wonderful. 👏xxxx
It will be 4yrs this coming January for me with PMR. Down to 2.5 mg Prednisolone 4 days and 5mg 3 days a week. iI would just like to say many thanks to those that run this forum and to those who contribute such helpful information and advice. You are all wonderful. 👏xxxx
Sandyowl
in
PMRGCAuk
4 months ago
Covid
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
hi all, I have been diagnosed with tumid lupus and am currently being investigated for SLE (DR said 99.9% I have it as showing all symptoms etc). I have just tested positive for covid today. Has anyone got any advise? I’ve never had covid, let alone Covid with lupus and I’m terrified this is going
JLAR01
in
LUPUS UK
4 months ago
it’s not all asthma
I have only been officially asthmatic since 2017. I was diagnosed with cough variant asthma During that time I have had many courses of prednisolone and had a PPI added for acid reflux. This medication has been increased and my asthma medication added to and changed. In October I saw a locum GP as
I have only been officially asthmatic since 2017. I was diagnosed with cough variant asthma During that time I have had many courses of prednisolone and had a PPI added for acid reflux. This medication has been increased and my asthma medication added to and changed. In October I saw a locum GP as
Oldandgray
in
Asthma Community Forum
4 months ago
PMR Ups and Downs
So I have been diagnosed with PMR and originally started on Prednisolone 30mg.....this plan was changed by my NHS Rheumatologist to 15mg over a longer period. I switched to this dose on Tuesday of this week and initially I didn't notice any difference.....if anything, by Thursday I almost felt at 100%
So I have been diagnosed with PMR and originally started on Prednisolone 30mg.....this plan was changed by my NHS Rheumatologist to 15mg over a longer period. I switched to this dose on Tuesday of this week and initially I didn't notice any difference.....if anything, by Thursday I almost felt at 100%
Paulx222
in
PMRGCAuk
4 months ago
Interesting visit with Rheumy - fat not edema!
I had a very interesting visit at the Rheumy e few days ago. We discussed MtX that I have started, and I have very good effect now after 4½ month, so he will increase from 20 mg to 25, and start decreasing prednisolone. I am on 12,5 mg now so down to 10 mg, and then very slowly 1,25 mg every 6 weeks.
I had a very interesting visit at the Rheumy e few days ago. We discussed MtX that I have started, and I have very good effect now after 4½ month, so he will increase from 20 mg to 25, and start decreasing prednisolone. I am on 12,5 mg now so down to 10 mg, and then very slowly 1,25 mg every 6 weeks.
krillemy
in
PMRGCAuk
4 months ago
Good news on the bone density front
Hi, this group is helpful and supportive and feels like an extended family. So I just wanted to share a bit of good news. I had a DXA 18 months ago not long after starting Prednisolone and my scores were: -0.1 in the spine which was healthy but not so good in the hip: -1.9 Total Hip T score
Hi, this group is helpful and supportive and feels like an extended family. So I just wanted to share a bit of good news. I had a DXA 18 months ago not long after starting Prednisolone and my scores were: -0.1 in the spine which was healthy but not so good in the hip: -1.9 Total Hip T score
Animalover65
in
PMRGCAuk
5 months ago
Colonoscopy update
PMRPro suggested I start a new post for the update on ‘Colonoscopy and Prednisolone’, so here it is. Firstly I’d like to thank everyone for their support and suggestions, which were very helpful. I survived the pre procedure routine, disgusting though it was and spent A LOT of time perched on the
PMRPro suggested I start a new post for the update on ‘Colonoscopy and Prednisolone’, so here it is. Firstly I’d like to thank everyone for their support and suggestions, which were very helpful. I survived the pre procedure routine, disgusting though it was and spent A LOT of time perched on the
Lclmlbls
in
PMRGCAuk
5 months ago
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