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running out of Zytiga….
due to pre Auth issues I am going to run out of Zytiga …..I’m guessing I’ll be without it for at least a few days possibly a week…..haven’t heard back from MO about how to make the best use of what I have left and whether I should continue to take the
prednisone
.
due to pre Auth issues I am going to run out of Zytiga …..I’m guessing I’ll be without it for at least a few days possibly a week…..haven’t heard back from MO about how to make the best use of what I have left and whether I should continue to take the
prednisone
.
Tommyj2
in
Advanced Prostate Cancer
5 months ago
EPIX: Updated Data From Phase 1 Trial Of Masofaniten And Enzalutamide Expected
treated with just abiraterone acetate and
prednisone
treated with just abiraterone acetate and
prednisone
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
PSMA Pet Scan results
My Dad has been on Abiraterone,
Prednisone
and Lupron for 2.5 years. He already had back in 2021 radiation to prostate, lymph nodes and 2 ribs.
My Dad has been on Abiraterone,
Prednisone
and Lupron for 2.5 years. He already had back in 2021 radiation to prostate, lymph nodes and 2 ribs.
Simonapo
in
Advanced Prostate Cancer
4 months ago
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Korsuva
He has tried every creme,
prednisone
in high doses, oatmeal baths, etc...Nothing helps except ice packs for a short time.I read that the FDA approved the drug Korsuva for treatment of CKD-aP but I can't find with research and phone calls whether medicare will cover it. Dialysis center says no.
He has tried every creme,
prednisone
in high doses, oatmeal baths, etc...Nothing helps except ice packs for a short time.I read that the FDA approved the drug Korsuva for treatment of CKD-aP but I can't find with research and phone calls whether medicare will cover it. Dialysis center says no.
Trower
in
Kidney Disease
6 months ago
Taper question
I was on a 2 week dose of 50mg
prednisone
, reducing to 40mg for 2 weeks. The 50mg was good and symptom free, I have been on 40mg for a week now and have just started to experience some slight stiffness in the back of my neck and upper arms.
I was on a 2 week dose of 50mg
prednisone
, reducing to 40mg for 2 weeks. The 50mg was good and symptom free, I have been on 40mg for a week now and have just started to experience some slight stiffness in the back of my neck and upper arms.
Specialised
in
PMRGCAuk
5 months ago
Irritable bowel and painful colon spasms
long time now, at 76 , been diagnosed yr or so ago with spastic colon, so every morning for 2-3,hrs am in pain because of spasms, until able to go to bathroom 3-4 times, it s realy getting me down, recently muscle tears in gluteus and hamstring just from stretching to make my bed, I m sure being on
prednisone
long time now, at 76 , been diagnosed yr or so ago with spastic colon, so every morning for 2-3,hrs am in pain because of spasms, until able to go to bathroom 3-4 times, it s realy getting me down, recently muscle tears in gluteus and hamstring just from stretching to make my bed, I m sure being on
prednisone
arvine
in
NRAS
6 months ago
Perineum Irritation / Pain
I’m doing Lupron shots every 3months + Abiraterone with
Prednisone
daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling very good with virtually no side effects.
I’m doing Lupron shots every 3months + Abiraterone with
Prednisone
daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling very good with virtually no side effects.
Willie51
in
Prostate Cancer And Gay Men
3 months ago
advise please
Kidney transplant 16 yrs prior on low dose
prednisone
, immunosuppresents. Please advise on vitamins, brands that are better absorbed, supplements. greatly appreciate. .....trina
Kidney transplant 16 yrs prior on low dose
prednisone
, immunosuppresents. Please advise on vitamins, brands that are better absorbed, supplements. greatly appreciate. .....trina
05011954
in
Osteoporosis Support
7 months ago
A series of flares
I was first diagnosed with PMR at the end of 2018 after a very stressful journey to Australia, and since then I have managed to reduce to 3.5 mg of
prednisone
. I started to taper slowly to 3mg and then to 2.5mg and I had a flare.
I was first diagnosed with PMR at the end of 2018 after a very stressful journey to Australia, and since then I have managed to reduce to 3.5 mg of
prednisone
. I started to taper slowly to 3mg and then to 2.5mg and I had a flare.
parsifalwiz
in
PMRGCAuk
2 months ago
First Treatment for Richter’s Today
I was given premeds for nausea and 100 mgs of
prednisone
prior which is doing its job. So far no issues. However, I am wide awake and writing this at 1:30 am EST - US. But that’s ok if the only side effect.
I was given premeds for nausea and 100 mgs of
prednisone
prior which is doing its job. So far no issues. However, I am wide awake and writing this at 1:30 am EST - US. But that’s ok if the only side effect.
ReneeSusan
in
CLL Support
1 month ago
2Nd Biopsy in 3+ years of Bone Met
Sine the he’s had 3 successful years of Abiraterone and
prednisone
treatment. But now his psa numbers are starting to climb. (From .04- .15 in the last 3 mos.) His onc. has requested another biopsy from a newly discovered lumbar lesion (via psma scan 2 weeks ago).
Sine the he’s had 3 successful years of Abiraterone and
prednisone
treatment. But now his psa numbers are starting to climb. (From .04- .15 in the last 3 mos.) His onc. has requested another biopsy from a newly discovered lumbar lesion (via psma scan 2 weeks ago).
Lavender22
in
Advanced Prostate Cancer
4 months ago
tapering prednisone to fast
I was treated with high dose
prednisone
as I had queried GCA but negative on biopsy. I have been tapering and every time I get to15 mgs I get symptoms . Last time I developed aching ankles ,fatigue and myCRP went up . Rheumy put me back to 20 mgs and added methotrexate .
I was treated with high dose
prednisone
as I had queried GCA but negative on biopsy. I have been tapering and every time I get to15 mgs I get symptoms . Last time I developed aching ankles ,fatigue and myCRP went up . Rheumy put me back to 20 mgs and added methotrexate .
Elvied
in
PMRGCAuk
8 months ago
Unknown Cause Encephalitis
The LP apparently showed improvement so they discharged me with a higher dose of
prednisone
. I am currently struggling with some side effects from the
prednisone
but will obviously take it as I am assuming it saved my life.
The LP apparently showed improvement so they discharged me with a higher dose of
prednisone
. I am currently struggling with some side effects from the
prednisone
but will obviously take it as I am assuming it saved my life.
bluepizza123
in
Encephalitis International
7 months ago
Was there ever really a chance for a cure?
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/
Prednisone
and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc).
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/
Prednisone
and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc).
duxlubber
in
Advanced Prostate Cancer
4 months ago
After a remission recovery from PMR, do you stop seeing the rheumatologist?
As of today, I am feeling great, have no PMR and am on zero
prednisone
, but I do take some Methotrexate and Hydroxychloroquine. I plan to keep steadily reducing. The doctor said I can keep taking it, or cut steadily back, or even cold turkey those drugs and see what happens.
As of today, I am feeling great, have no PMR and am on zero
prednisone
, but I do take some Methotrexate and Hydroxychloroquine. I plan to keep steadily reducing. The doctor said I can keep taking it, or cut steadily back, or even cold turkey those drugs and see what happens.
sdowney717
in
PMRGCAuk
6 months ago
Prednisone free for 3 weeks
Rough start with
prednisone
/ Prostate cancer / Sepsis / ... Finally established a 10 mg
prednisone
routine around late spring of 20. (more in personal summary) PCP has been very supportive of my
Prednisone
tapering. Have had only 1 bad flare - at 2mg to 1.5 mg.
Rough start with
prednisone
/ Prostate cancer / Sepsis / ... Finally established a 10 mg
prednisone
routine around late spring of 20. (more in personal summary) PCP has been very supportive of my
Prednisone
tapering. Have had only 1 bad flare - at 2mg to 1.5 mg.
Manderson
in
PMRGCAuk
8 months ago
flu shot reaction with PMR
I had a flu shot a month ago and I am on 5mg of
prednisone
for PMR. My arm has been hurting since then. Has anyone else had this problem.
I had a flu shot a month ago and I am on 5mg of
prednisone
for PMR. My arm has been hurting since then. Has anyone else had this problem.
Joanecindy
in
PMRGCAuk
8 months ago
My Dad's symptoms are worse
Is it possible that symptoms of Autoimmune encephalitis can get worse again even though it seems that the
prednisone
is controlling the seizures my Dad was having. My Dad's skin condition has deteriorated which the GP says is due to the
prednisone
.
Is it possible that symptoms of Autoimmune encephalitis can get worse again even though it seems that the
prednisone
is controlling the seizures my Dad was having. My Dad's skin condition has deteriorated which the GP says is due to the
prednisone
.
Mouseling
in
Encephalitis International
8 months ago
A Scary Situation with a Missed Dose
In the days that followed, I was reminded of the rather precarious situation I am in being dependent on
prednisone
. I became concerned that if I should be in an accident and did not receive my
prednisone
, my adrenal insufficiency could put my life in danger.
In the days that followed, I was reminded of the rather precarious situation I am in being dependent on
prednisone
. I became concerned that if I should be in an accident and did not receive my
prednisone
, my adrenal insufficiency could put my life in danger.
VOTSODsurvivor
in
PMRGCAuk
7 months ago
Wound healing and Steroid Use
I have been on
Prednisone
for just over a year. I am down to 10mg and cannot titer down without flare. I am waiting for approval for Kevzara.
I have been on
Prednisone
for just over a year. I am down to 10mg and cannot titer down without flare. I am waiting for approval for Kevzara.
lovemylife23
in
PMRGCAuk
4 months ago
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