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Polyglucosan body disease
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Arthritis
Does everyone who has this condition end up getting arthritis or some form of it?
Does everyone who has this condition end up getting arthritis or some form of it?
Caulkhead63
in
PMRGCAuk
6 months ago
Finally passed a kt/v test
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
RonZone
in
Kidney Dialysis
8 months ago
test results
I have just had my yearly thyroid test results: Serum TSH Level 3.12mu/L (0.35- 494) Serum free T4 Level 13.6pmol/L (9.0- 19ul) FT3 3.7 pmol/L (2.4-6.0) I also had a cholesterol test and it’s 8 gone up in 2 months from 7.8. Despite a healthy diet and drinking a cholesterol lowering drink every
I have just had my yearly thyroid test results: Serum TSH Level 3.12mu/L (0.35- 494) Serum free T4 Level 13.6pmol/L (9.0- 19ul) FT3 3.7 pmol/L (2.4-6.0) I also had a cholesterol test and it’s 8 gone up in 2 months from 7.8. Despite a healthy diet and drinking a cholesterol lowering drink every
Hidden
in
Thyroid UK
6 months ago
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Update on AFIB after Doctor visit
Update from my Electrophylogist Doc. Yesterday. He said since the afib just started and was persistent he wanted to start slowly and start with cardio version. Will be scheduled within next two weeks. Said ekg showed afib with heart rate from 70 to 92 beats per minute. Said afib has no cure but many
Update from my Electrophylogist Doc. Yesterday. He said since the afib just started and was persistent he wanted to start slowly and start with cardio version. Will be scheduled within next two weeks. Said ekg showed afib with heart rate from 70 to 92 beats per minute. Said afib has no cure but many
Stetson
in
AF Association
5 months ago
Xarelto and enoxaprin sodium at the same time
Is there anyone in this community that is taking Xarelto and enoxaprin sodium at the same time. I am looking for an alternative to aspirin and I’m already on enoxaprin sodium. just wanted to know if there’s anyone else in our group who might be taking both
Is there anyone in this community that is taking Xarelto and enoxaprin sodium at the same time. I am looking for an alternative to aspirin and I’m already on enoxaprin sodium. just wanted to know if there’s anyone else in our group who might be taking both
Thick_Blood
in
Hughes Syndrome APS Forum
5 months ago
Can Nubeqa (Darolutamide) be used instead of normal ADT drugs for localized PCa?
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Mike58
in
Advanced Prostate Cancer
8 months ago
Biopsy for hcc and cirrhosis
hello everyone. Did anyone with HCC have a biopsy? I read somewhere that they dont usually do biopsies after mri and ct and ultrasound but my partner has been told he is having a biopsy next week. Just wondered how many of you had to have this and how did you feel after . Thank you
hello everyone. Did anyone with HCC have a biopsy? I read somewhere that they dont usually do biopsies after mri and ct and ultrasound but my partner has been told he is having a biopsy next week. Just wondered how many of you had to have this and how did you feel after . Thank you
pussycat66
in
British Liver Trust
8 months ago
Nicorandil and AF.
i have periodic AF and on pill in pocket bisoprolol but i take half of a small one daily which keeps the attacks at bay, Blood thinners, Statins lansoprosole. Now as i am getting breathless saw my GP and he is more or less sure he says i have angina too (but not diagnosed by cardio as yet) he has
i have periodic AF and on pill in pocket bisoprolol but i take half of a small one daily which keeps the attacks at bay, Blood thinners, Statins lansoprosole. Now as i am getting breathless saw my GP and he is more or less sure he says i have angina too (but not diagnosed by cardio as yet) he has
Nightmare2
in
AF Association
5 months ago
Fibroscan CAP scores
There are a few things that I don’t understand about Fibroscan CAP scores. I have looked at the NICE 49 full guideline which can be found here: https://www.nice.org.uk/guidance/ng49/evidence/full-guideline-pdf-2548213310 Fibroscan CAP scores are discussed in detail on pages 62 to 74; the CAP scores
There are a few things that I don’t understand about Fibroscan CAP scores. I have looked at the NICE 49 full guideline which can be found here: https://www.nice.org.uk/guidance/ng49/evidence/full-guideline-pdf-2548213310 Fibroscan CAP scores are discussed in detail on pages 62 to 74; the CAP scores
mickeymouse42
in
British Liver Trust
8 months ago
Endocrinologist recommendations in/near West Sussex for Addison's / adrenals
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
JumpJiving
in
Thyroid UK
7 months ago
difference between portal vein thrombosis and portal hypertension?
Good evening. New here. Husband in hospital with liver cirrhosis. Having scope on Monday and we were told today that he has portal vein thrombosis. I understand what that is but I’m confused after doing some research as to the difference between portal vein thrombosis and portal vein hypertension? Or
Good evening. New here. Husband in hospital with liver cirrhosis. Having scope on Monday and we were told today that he has portal vein thrombosis. I understand what that is but I’m confused after doing some research as to the difference between portal vein thrombosis and portal vein hypertension? Or
Lvbv
in
British Liver Trust
5 months ago
Confused, Don’t know what’s going on!
In my previous posts I mentioned that we booked a private appointment with cardiologist. After mum had a heart monitor for a week, the consultant confirmed that mum’s average heart rate was around 86, and the peak was around 160. The consultant has doubled the dose of bisoprolol so now mum is to take
In my previous posts I mentioned that we booked a private appointment with cardiologist. After mum had a heart monitor for a week, the consultant confirmed that mum’s average heart rate was around 86, and the peak was around 160. The consultant has doubled the dose of bisoprolol so now mum is to take
Nickybhf
in
AF Association
5 months ago
Shortness of breath and chest pains
Two years after afib started I slipped into persistent afib and had an ablation. 60% of the way through the ablation I developed pericardial effusion and the ablation stopped and a drainage tube was placed in my heart. A couple of weeks later I developed chest pain from an autoimmune reaction called
Two years after afib started I slipped into persistent afib and had an ablation. 60% of the way through the ablation I developed pericardial effusion and the ablation stopped and a drainage tube was placed in my heart. A couple of weeks later I developed chest pain from an autoimmune reaction called
loghousegal
in
AF Association
5 months ago
Lexiscan Chemical Stress Test
My EP wants me to have a chemical stress test before he puts me on Flecainide. I have so many problems with Afib and PACs that I’m terrified to have them inject me with something that’s going to make my heart take off. I contacted the doctors office to ask them if I can have the treadmill stress test
My EP wants me to have a chemical stress test before he puts me on Flecainide. I have so many problems with Afib and PACs that I’m terrified to have them inject me with something that’s going to make my heart take off. I contacted the doctors office to ask them if I can have the treadmill stress test
Debjimmay
in
Atrial Fibrillation Support
5 months ago
Latest Prostate Cancer News from ESMO23
For those interested in the outcomes of recent prostate cancer trials or those just curious about the current thinking on 'where to next' the latest GU Cast podcast from Declan Murphy is well worth watching. The presentation is ‘peppered’ with conversation from the various speakers interviewed that
For those interested in the outcomes of recent prostate cancer trials or those just curious about the current thinking on 'where to next' the latest GU Cast podcast from Declan Murphy is well worth watching. The presentation is ‘peppered’ with conversation from the various speakers interviewed that
marnieg46
in
Advanced Prostate Cancer
8 months ago
Vitamin D
I have it prescribed once a week D3 ( CLL & Multiple Sclerosis
I have it prescribed once a week D3 ( CLL & Multiple Sclerosis
Marco54
in
CLL Support
6 months ago
INR BLOOD
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Crock73
in
Anticoagulation Support
5 months ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
8 months ago
RA in jaw
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!👍
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!👍
Mybirthday1975
in
NRAS
6 months ago
Confused about how all the different PCa drugs work?
This recent article (Oct 2023) has a nice high level diagram that organizes the more common prostate cancer drugs and their mechanism of action. Scroll down to Figure 1. De Novo Metastatic Prostate Cancer: Are We Moving toward a Personalized Treatment? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10605467
This recent article (Oct 2023) has a nice high level diagram that organizes the more common prostate cancer drugs and their mechanism of action. Scroll down to Figure 1. De Novo Metastatic Prostate Cancer: Are We Moving toward a Personalized Treatment? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10605467
skiingfiend
in
Advanced Prostate Cancer
8 months ago
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