Search
Search
About
Log in
Join
Experiences with
Pneumonitis
Posts
Communities
203 public posts
Filter results
Radiotherapy and Chemotherapy treatment affecting my lungs.
Now I am diagnosed with Hypersensitivity
Pneumonitis
and Bronchiolitis. On 1st January I have started using oxygen for 2 hours daily. The illness is progressing. I had very aggressive chemo too. Carboplatin and Taxol which are known to cause scarring too.
Now I am diagnosed with Hypersensitivity
Pneumonitis
and Bronchiolitis. On 1st January I have started using oxygen for 2 hours daily. The illness is progressing. I had very aggressive chemo too. Carboplatin and Taxol which are known to cause scarring too.
23september
in
Lung Conditions Community Forum
3 years ago
Pemetrexed maintenance/ Pneumonitis
So diagnosed with
Pneumonitis
sadly in both lungs not nice they are a great team here nurses and drs. They're throwing everything at me š¤ it works. Fighting back with all I've got. Will keep you updated ā¤ to you all xxx
So diagnosed with
Pneumonitis
sadly in both lungs not nice they are a great team here nurses and drs. They're throwing everything at me š¤ it works. Fighting back with all I've got. Will keep you updated ā¤ to you all xxx
Ollie13
in
The Roy Castle Lung Cancer Foundation
3 years ago
Unfortunate News precipitated by rare side effect of Docetaxl
He was taken to emergency on Jan 6th where a lung x-ray was conducted and he was diagnosed with Non-specific interstitial
pneumonitis
(NSIP) - perhaps ILD (interstitial lung disease) induced by chemo, and he was started on 40mg soluble medrol (methyl prednisolone) via infusion for 5 days.
He was taken to emergency on Jan 6th where a lung x-ray was conducted and he was diagnosed with Non-specific interstitial
pneumonitis
(NSIP) - perhaps ILD (interstitial lung disease) induced by chemo, and he was started on 40mg soluble medrol (methyl prednisolone) via infusion for 5 days.
doklam2017
in
Advanced Prostate Cancer
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Interstitial pneumonitis secondary to auto immune disease
I started a reducing dose of Prednisolone January 2021 and also Mycophenolate in January 2021. I dont get breathless or any other symptoms except occasional dry cough. Has any one else on the ILD forum had experience of these meds and most importantly do they work ?? There is so much negativity about
I started a reducing dose of Prednisolone January 2021 and also Mycophenolate in January 2021. I dont get breathless or any other symptoms except occasional dry cough. Has any one else on the ILD forum had experience of these meds and most importantly do they work ?? There is so much negativity about
maisied
in
Living with Interstitial Lung Disease (ILD)
3 years ago
Exercise and hobbies
My boyfriend has hypersensitivity
pneumonitis
and hes gained alot of weight I think due to steroids maybe and struggles to exercise due to breathe. Any ideas where to start would be great thank you
My boyfriend has hypersensitivity
pneumonitis
and hes gained alot of weight I think due to steroids maybe and struggles to exercise due to breathe. Any ideas where to start would be great thank you
leannagoddess
in
Lung Conditions Community Forum
3 years ago
Scan results with some question
It showed inflammation in both lungs called
pneumonitis
. Right worse then left . It actually said left lung was improved but it was never mentioned in any report before yesterday . Did some research and it could be a side affect from ibrance . I feel great no symptoms for me .
It showed inflammation in both lungs called
pneumonitis
. Right worse then left . It actually said left lung was improved but it was never mentioned in any report before yesterday . Did some research and it could be a side affect from ibrance . I feel great no symptoms for me .
Anitafazz
in
SHARE Metastatic Breast Cancer
3 years ago
Hypersensitivity pneumonitis
My partner has been diagnosed with Hypersensitivity
pneumonitis
I just wanted to see how people live with it and try to remain positive and what hobbies can they do and how to love their life with it It's very sad seeing him unwell and depressed.
My partner has been diagnosed with Hypersensitivity
pneumonitis
I just wanted to see how people live with it and try to remain positive and what hobbies can they do and how to love their life with it It's very sad seeing him unwell and depressed.
leannagoddess
in
Lung Conditions Community Forum
3 years ago
So fed up
Biopsy showed up both areas of
pneumonitis
and fibrosis but at present they want to concentrate on the rituximab before looking at further medication for the fibrosis. I've got to the point that I just can't see an end to it. I'm so sorry for the long rant and I hope you're all as good as can be š
Biopsy showed up both areas of
pneumonitis
and fibrosis but at present they want to concentrate on the rituximab before looking at further medication for the fibrosis. I've got to the point that I just can't see an end to it. I'm so sorry for the long rant and I hope you're all as good as can be š
CarolMcl
in
LUPUS UK
3 years ago
Pneumonitis from Ibrance
Greetings to All you lovely people: Has anyone on Ibrance had any experience with
pneumonitis
?
Greetings to All you lovely people: Has anyone on Ibrance had any experience with
pneumonitis
?
Maddyandherkittens
in
SHARE Metastatic Breast Cancer
3 years ago
Changing Meds to Xeloda/capecitabine
I developed
pneumonitis
and had blood in my sputum when I coughed so now after a two month break and radiation therapy I will be moving on to Xeloda next week if my labs are good. Any advice on Xeloda is greatly appreciated. Thank you, Esther
I developed
pneumonitis
and had blood in my sputum when I coughed so now after a two month break and radiation therapy I will be moving on to Xeloda next week if my labs are good. Any advice on Xeloda is greatly appreciated. Thank you, Esther
Sparky95
in
SHARE Metastatic Breast Cancer
3 years ago
A cautionary tale about Amiodarone
He is now on a massive dose of steroids because he has interstitial
pneumonitis
, which is an irreversible inflammatory condition of the lungs. This is a well known and often fatal side effect of Amiodarone, which is usually only used for severe, life threatening.
He is now on a massive dose of steroids because he has interstitial
pneumonitis
, which is an irreversible inflammatory condition of the lungs. This is a well known and often fatal side effect of Amiodarone, which is usually only used for severe, life threatening.
Maggimunro
in
AF Association
3 years ago
Body pain
I have hypersensitivity
pneumonitis
xx
I have hypersensitivity
pneumonitis
xx
Sjw9
in
Lung Conditions Community Forum
3 years ago
New Diagnosis
Iām new to this forum, my husband just got diagnosed with Hypersensitivity
Pneumonitis
yesterday. Does anyone else on here have this form of ILD? Iām looking for advice on living with this condition with perhaps an idea of what the future might hold in store for him. Any advice greatly received x
Iām new to this forum, my husband just got diagnosed with Hypersensitivity
Pneumonitis
yesterday. Does anyone else on here have this form of ILD? Iām looking for advice on living with this condition with perhaps an idea of what the future might hold in store for him. Any advice greatly received x
DebsnAlf
in
Living with Interstitial Lung Disease (ILD)
3 years ago
Chemo for lung disease
My immune system is sadly still attacking itās self as I have hypersensitivity
pneumonitis
.
My immune system is sadly still attacking itās self as I have hypersensitivity
pneumonitis
.
Sjw9
in
Lung Conditions Community Forum
3 years ago
Mtx and breathing difficulties/ chest pain update
Chest x ray was normal and oxygen levels normal, consultant says not
pneumonitis
. GP has signed me off for another week as still not improving. Just said take pain killers. I didnāt expect this to go on so long, can mtx really mess you up for this long? ss
Chest x ray was normal and oxygen levels normal, consultant says not
pneumonitis
. GP has signed me off for another week as still not improving. Just said take pain killers. I didnāt expect this to go on so long, can mtx really mess you up for this long? ss
Sunnyseas
in
NRAS
3 years ago
Low Oxygen Levels
I have chronic hypersensitivity
Pneumonitis
with Fibrosis. On 24 hour oxygen and on lung transplant list. Trying to stay fit to help with the post operative recovery but the slightest activity now makes my SATās plummet.
I have chronic hypersensitivity
Pneumonitis
with Fibrosis. On 24 hour oxygen and on lung transplant list. Trying to stay fit to help with the post operative recovery but the slightest activity now makes my SATās plummet.
mary1956
in
Lung Conditions Community Forum
3 years ago
Hypersensitivity Pneumonitis
Been diagnosed with Hypersensitivity
Pneumonitis
with scarring as well just looking for some more information please?
Been diagnosed with Hypersensitivity
Pneumonitis
with scarring as well just looking for some more information please?
Suzanne99
in
British Liver Trust
4 years ago
Hoping for some advice
The doctor has told my husband that the treatment has a 50/50 chance of shrinking the tumour (they are not able to operate or put him back on immunotherapy due to the
pneumonitis
). Thank you so much to anyone out there who might be able to give their views or advice.
The doctor has told my husband that the treatment has a 50/50 chance of shrinking the tumour (they are not able to operate or put him back on immunotherapy due to the
pneumonitis
). Thank you so much to anyone out there who might be able to give their views or advice.
yellowtulip55
in
The Roy Castle Lung Cancer Foundation
4 years ago
Results Of My CTA Cardiac Function
No evidence of
pneumonitis
. CONCLUSION: 1. No significant coronary arterial narrowing is seen within the LAD or circumflex coronary arteries.
No evidence of
pneumonitis
. CONCLUSION: 1. No significant coronary arterial narrowing is seen within the LAD or circumflex coronary arteries.
Hidden
in
British Heart Foundation
4 years ago
Does anyone know anything about LIP lymphocytic intersistial pneumonitis. My consultant doesnāt know much and not much online either
Lung disease, LIP,
Lung disease, LIP,
Neffie95
in
Lung Conditions Community Forum
4 years ago
1
2
3
4
...
11
Next page
10
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
108 results
Lung Cancer Support
13 results
NRAS
11 results
View top 10 communities
Sort by
Most Relevant
Newest