Search
Search
About
Log in
Join
Experiences with
Pneumonitis
Posts
Communities
203 public posts
Filter results
Can anyone share experiences of External Beam Radiotherapy to the lungs?
I have no idea what side effects might develop but I am thinking
pneumonitis
or possibly plural effusion...neither of which are good things to have in a Covid 19 pandemic...already been told that if either of these things happen I would be admitted to hospital and assumed to be Covid positive until proven
I have no idea what side effects might develop but I am thinking
pneumonitis
or possibly plural effusion...neither of which are good things to have in a Covid 19 pandemic...already been told that if either of these things happen I would be admitted to hospital and assumed to be Covid positive until proven
Llanigirl
in
The Roy Castle Lung Cancer Foundation
4 years ago
Stable CT scan. Five years+ living with Stage IV NSCLC
I am grateful that I just received happy CT scan results that my chest, abdomen, and pelvis look terrific for this Stage IV lung cancer patient: scarring,
pneumonitis
, necrotic femoral head in my hip, and other stuff that we keep watching. The images do not show any new active cancer growth.
I am grateful that I just received happy CT scan results that my chest, abdomen, and pelvis look terrific for this Stage IV lung cancer patient: scarring,
pneumonitis
, necrotic femoral head in my hip, and other stuff that we keep watching. The images do not show any new active cancer growth.
Jenniferroseolson
in
Lung Cancer Support
4 years ago
Newly diagnosed with hypersensitivity pneumonitis
Hello everyone New to the site ..does anyone have any advice on claiming pip due to hypersensitivity
pneumonitis
and mental health issues . Any help would be appreciated.
Hello everyone New to the site ..does anyone have any advice on claiming pip due to hypersensitivity
pneumonitis
and mental health issues . Any help would be appreciated.
Peachypoppers
in
Lung Conditions Community Forum
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Olaparib question - temperature and feeling rubbish.
In the side effects list it says that upper respiratory chest infections and
pneumonitis
are potential problems. If its a simple chest infection then I can deal with that but if its
pneumonitis
then I think the tablets have to be stopped for a while which of course I don't want to happen.
In the side effects list it says that upper respiratory chest infections and
pneumonitis
are potential problems. If its a simple chest infection then I can deal with that but if its
pneumonitis
then I think the tablets have to be stopped for a while which of course I don't want to happen.
sticky3006
in
My Ovacome
4 years ago
Second-Generation BTK Inhibitors Hit the Treatment Bullseye With Fewer Off-Target Effects
Zanubrutinib is associated with less incidence of muscle spasm, peripheral edema,
pneumonitis
, and pneumonia. In essence, fewer overall AEs with second-generation BTK inhibitors means less of a need to reduce dosing and a greater likelihood of being able to stay on treatment longer.
Zanubrutinib is associated with less incidence of muscle spasm, peripheral edema,
pneumonitis
, and pneumonia. In essence, fewer overall AEs with second-generation BTK inhibitors means less of a need to reduce dosing and a greater likelihood of being able to stay on treatment longer.
Jm954
Administrator
in
CLL Support
4 years ago
Oxygen therapy
I am new here.Just started oxygen therapy for hypersensitivity
pneumonitis
I am new here.Just started oxygen therapy for hypersensitivity
pneumonitis
Bobbiedazzler
in
Lung Conditions Community Forum
4 years ago
2 Lung Diseases and falling apart
I joined yesterday but gave up as when writing about my condition it allowed me to put Pulmonary Fibrosis, not my main lung disease hypersensitivity
pneumonitis
why is this? Also not sure which help site I belong to as a result of my lungs I have had Chronic Heart Failure 2 years ago.
I joined yesterday but gave up as when writing about my condition it allowed me to put Pulmonary Fibrosis, not my main lung disease hypersensitivity
pneumonitis
why is this? Also not sure which help site I belong to as a result of my lungs I have had Chronic Heart Failure 2 years ago.
Hidden
in
Lung Conditions Community Forum
4 years ago
18 years with metastatic prostate cancer – operation number three, but no good news for me – the end game begins.
., I just assumed it would be another pembro side effect i.e. interstitial
pneumonitis
. But, the Hospital said it could be COVID-19 – as the symptoms are almost identical. So, I was whisked off to the COVID ward to await the results of corona virus tests.
., I just assumed it would be another pembro side effect i.e. interstitial
pneumonitis
. But, the Hospital said it could be COVID-19 – as the symptoms are almost identical. So, I was whisked off to the COVID ward to await the results of corona virus tests.
Hidden
in
Advanced Prostate Cancer
4 years ago
Stopped Progression of CHP without steroids.
After all that effort, it was not fully conclusive but the biopsy was suggestive of Chronic Hypersensitive
Pneumonitis
or might change to fibrosis in time. They did not find any apparent trigger or reason for CPH. We also did a mold check in house that came negative.
After all that effort, it was not fully conclusive but the biopsy was suggestive of Chronic Hypersensitive
Pneumonitis
or might change to fibrosis in time. They did not find any apparent trigger or reason for CPH. We also did a mold check in house that came negative.
hsoni30
in
Lung Conditions Community Forum
4 years ago
Confused
I have hypersensitivity
pneumonitis
with fibrosis and live alone, I haven't received a letter but am I a high risk person. I would like to know. I live on my own any way so I don't have baby contacts except possibly shopping.
I have hypersensitivity
pneumonitis
with fibrosis and live alone, I haven't received a letter but am I a high risk person. I would like to know. I live on my own any way so I don't have baby contacts except possibly shopping.
Almaz65
in
Lung Conditions Community Forum
4 years ago
Self Isolation?
Hi I have hypersensitivity
pneumonitis
and been taking steroids for over 3 years. With the coronavirus, should I self isolate do you think?
Hi I have hypersensitivity
pneumonitis
and been taking steroids for over 3 years. With the coronavirus, should I self isolate do you think?
Adele14
in
Lung Conditions Community Forum
4 years ago
Stop Progression of CHP(Chronic Hypersensitivity Pneumonitis, ILD) without steroids
By Blessing of God, I managed to Stop Progression of CHP(Chronic Hypersensitivity
Pneumonitis
, ILD) without steroids. with medicine from blogs and life style and situation management. Result is Improved Lung Function test. will post details soon.
By Blessing of God, I managed to Stop Progression of CHP(Chronic Hypersensitivity
Pneumonitis
, ILD) without steroids. with medicine from blogs and life style and situation management. Result is Improved Lung Function test. will post details soon.
hsoni30
in
Lung Conditions Community Forum
5 years ago
CLL with Acute Interstitial Pneumonitis
CT revealed with acute interstitial
pneumonitis
, a form of interstitial lung disease. Is on antibiotics and steroids started again, with o2 supply always in hospital. Has anyone undergone this interstitial lung complication? We live in India.
CT revealed with acute interstitial
pneumonitis
, a form of interstitial lung disease. Is on antibiotics and steroids started again, with o2 supply always in hospital. Has anyone undergone this interstitial lung complication? We live in India.
Almanac
in
CLL Support
5 years ago
Novel Israeli Therapy Takes Aim at Coronavirus
“PLX cells may potentially reduce … COVID-19-induced pneumonia and
pneumonitis
,” the company explained.
“PLX cells may potentially reduce … COVID-19-induced pneumonia and
pneumonitis
,” the company explained.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Hypersensitivity Pneumonitis
I have Acute Hypersensitivity
Pneumonitis
. My breathing is getting worse every day and I was hoping to find someone else who has this disease that I could talk to. Anyone out there? I’m being treated by the Brompton in London so it’s not a phantom disease 😁. Thanks!!
I have Acute Hypersensitivity
Pneumonitis
. My breathing is getting worse every day and I was hoping to find someone else who has this disease that I could talk to. Anyone out there? I’m being treated by the Brompton in London so it’s not a phantom disease 😁. Thanks!!
Teresadeeb
in
Lung Conditions Community Forum
5 years ago
Winter blues
Hi I've got hypersensitivity
pneumonitis
with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Hi I've got hypersensitivity
pneumonitis
with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Almaz65
in
Lung Conditions Community Forum
5 years ago
Advice
My sister has been diagnosed with Non specific Interstitial
Pneumonitis
(think that is the way it is all spelt!!). Both me and my nephew are looking for advice on how to support her through this. Are there any counselling services that we can speak to/attend?
My sister has been diagnosed with Non specific Interstitial
Pneumonitis
(think that is the way it is all spelt!!). Both me and my nephew are looking for advice on how to support her through this. Are there any counselling services that we can speak to/attend?
Jackyw1056
in
Lung Conditions Community Forum
5 years ago
Oxygen question
Hello I have Hypersensitivity
pneumonitis
and am on oxygen 16 hrs a day at home with a concentrater I also use oxygen canisters for when I'm out and about. I have a plan for a holiday this summer to celebrate my 60th year and 25 year wedding anniversary and my youngest graduation.
Hello I have Hypersensitivity
pneumonitis
and am on oxygen 16 hrs a day at home with a concentrater I also use oxygen canisters for when I'm out and about. I have a plan for a holiday this summer to celebrate my 60th year and 25 year wedding anniversary and my youngest graduation.
cazza34
in
Lung Conditions Community Forum
5 years ago
Treatment With PI3K Inhibitors Is Associated With a Number of Adverse Events and Toxicities
However, according to a study results presented at the 61st American Society of Hematology (ASH) Annual Meeting & Exposition, held in Orlando, Florida, PI3K treatment is also associated with an increased incidence of adverse events including
pneumonitis
, Pneumocystis jiroveci pneumonia, any-grade upper
However, according to a study results presented at the 61st American Society of Hematology (ASH) Annual Meeting & Exposition, held in Orlando, Florida, PI3K treatment is also associated with an increased incidence of adverse events including
pneumonitis
, Pneumocystis jiroveci pneumonia, any-grade upper
Jm954
Administrator
in
CLL Support
5 years ago
Concerned with Diagnosis
Mine on 2013 diagnosed Usual Interstitial
Pneumonitis
(UIP), but my Consiltant disagreed and has treated me since for Hypersensitivity
Pneumonitis
. Now my condition is getting worse and I do not know who was right. Lung Transplant next
Mine on 2013 diagnosed Usual Interstitial
Pneumonitis
(UIP), but my Consiltant disagreed and has treated me since for Hypersensitivity
Pneumonitis
. Now my condition is getting worse and I do not know who was right. Lung Transplant next
mary1956
in
Lung Conditions Community Forum
5 years ago
1
...
3
4
5
...
11
Next page
10
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
108 results
Lung Cancer Support
13 results
NRAS
11 results
View top 10 communities
Sort by
Most Relevant
Newest