Experiences with

Pizotifen

I started pizotifen a few weeks ago for severe migraine and cluster headache prevention. It worked like magic but I gained 3/4 stone which, at just over 5ft is not ideal with an inflammatory arthritis which is getting worse. I was also extremely depressed and a bit snappy.

So I called the GP in desperation and was given pizotifen - which rang a bell from the mists of time. I think I may have been offered it years ago but was probably breast feeding or pregnant.

Has any of you ever taken Pizotifen for migraine prevention? How did you go? My head specialist prescribed the medic to me but I am not sure why because it looks like it has major side-effects (and my specialist know this is a known issue for me) and the evidence is not there really.

I'm on nortriptyline and pizotifen. Without medication I have up to 15 a month. My triggers Are hormone changes, food and exercise. I have managed to eliminate my food triggers.

I am currently take pizotifen as a preventative treatment. Nothing is working. The neurologist are always banging on about the fact you should only be taking meds (Almotriptan at present) three times a week or it'll cause rebound headaches.

Any idea's whether you can get pizotifen in a lactose FREE form? Many thanks

Having had migraines for 50 years I have finally found some success taking Pizotifen 0.5mg nightly. I have been taking them for about 4 months but ran out and missed a dose before I managed to get any more. What followed was a 72 hour migraine, couldn't take the next dose as was being sick.

I am on pizotifen for headaches. I take montelukast 10mg, fostair 200/6 and Spiriva Respimat 2.5 mcg. Is it ok for Me to take Promethazine with all these meds to help me sleep.

My 10 yr old son has suffered with migraines since he was four he gets 2 a week both lasting 24 hours in this time he is in bed and sick so many times hes just been prescribed pizotifen after getting home and looking it up im now reluctant to give it him as alot of people have had bad side effects and

Taking Pizotifen has helped but not with the cause. Has any one else suffered on going headaches years later? Thanks.

I have been prescribed Pizotifen and am reluctant to try as once again they incur lots of side effects and haven’t been able to tolerate many of the other meds I’ve tried. However, they seems to be relatively good for migraine.

Hi I've had migraines for last 7 years .. only thing that helps is sumatriptan .. but with having 4/5 migraines in a week my Doctor has suggested I try a preventive med of Pizotifen .. has this med helped anyonelse

Takes sodium valproate 200 mg, pizotifen, fultium 800mg, calcichew d3. Results 24 July TSH 7.14MU/L (3.5MU/L ON REPEAT) CORTISOL 313NMO/L KIDNEY, LIVER FUNCTION NORMAL B12, FOLATE, FERRATIN NORMAL NO EVIDENCE OF ANAEMIA OR COELIAC DISEASE CK NORMAL.

Hi been on this for 6 months . In six months put on a stone I've read that it is used in USA for weight gain .Going to Doctors as want to come off these any suggestions please would be appreciated

Hi has anyone else had withdrawals from stopping pizotifen? I've stopped taking it and now trying vitamin B2 (Riboflavin).So far I've not had a bad migraine but I've been shaking, felt sick,hallucinated a couple of times and have lost my appitite for food almost completely.

Ive just completed a degree during which time my migraines spiralled out of control. the only medication that I have found to work is Pizotifen. The problem is ,I have put on over a stone about 10kg since being on them.

For the past 7 years and every single day, I have been suffering from the worst headaches – Under the care of Neurologists (5 in total) 2 Pain Consultants and the trial and error of a cocktail of meds and invasive procedures: - Indomethacin Propanolol Atenolol Pizotifen Gabapentin Amitriptyline

Also gave me Pizotifen. Got to take them for a month. Don't really know if they work , as I sometimes went weeks without the headaches. At the moment I'm fine , sleeping well. The headaches are tension, over front and sides .Wouldn't say bad ,but annoying. Below are test results.

do migraines occur as often as i get them - vomiting, light sensitive bad pain and it also effects my speech and i get a bit disorientated (last yr they thought i had a stroke but got told it was a bad migraine by a consultant) anyways today he thinks its cluster headaches and i have now been given pizotifen

Two specialists have said its vestibular migraine and I have tried propranolol, amitriptaline, pizotifen and serc but all have increased the dizziness and made me feel really out of it. I am now trying feverfew, Q10 and magnesium but its early days on them.