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Experiences with
Permanent atrial fibrillation
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Living with someone with Cirrhosis it's hard but must stay optimistic!
A Long story short (difficult) in February 22 I came home to my husband yellow and barely breathing but conscious. Ambulance took him to hospital and he had to be resuscitated twice as his heart stopped before being put on a ventilator he had erupted varices in oesophagus(he'd been losing blood both
A Long story short (difficult) in February 22 I came home to my husband yellow and barely breathing but conscious. Ambulance took him to hospital and he had to be resuscitated twice as his heart stopped before being put on a ventilator he had erupted varices in oesophagus(he'd been losing blood both
DD75
in
British Liver Trust
1 year ago
Myocardial perfusion test results
I had the myocardial perfusion test back in July to rule out coronary artery problems causing my episodes of breathlessness. Promised the results in 2 weeks but have only just had them following numerous ephone calls to various departments at the heart institute. I have not been told the test was 'positive
I had the myocardial perfusion test back in July to rule out coronary artery problems causing my episodes of breathlessness. Promised the results in 2 weeks but have only just had them following numerous ephone calls to various departments at the heart institute. I have not been told the test was 'positive
Daisyblu
in
Atrial Fibrillation Support
2 years ago
A vagal manoeuvre to try…
Hello All, I wanted to share with you something that worked for me a couple of weeks ago for my paroxysmal Afib. We had friends over and I took a risk, of not only a very spicy Indian takeaway meal, but it arrived very late and I went to bed just over two hours after eating it 😳 so a double risky combination
Hello All, I wanted to share with you something that worked for me a couple of weeks ago for my paroxysmal Afib. We had friends over and I took a risk, of not only a very spicy Indian takeaway meal, but it arrived very late and I went to bed just over two hours after eating it 😳 so a double risky combination
Teresa156
in
Atrial Fibrillation Support
2 years ago
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Calquence and mouth issues?
I’m wondering if anyone taking Calquence has experienced white patches in their mouth? My dentist noticed I have one on my tongue side of gums. It doesn’t hurt and can’t be scraped off (fits the description of leukoplakia when I Google). My dentist thought it looked like trauma and said to call if it
I’m wondering if anyone taking Calquence has experienced white patches in their mouth? My dentist noticed I have one on my tongue side of gums. It doesn’t hurt and can’t be scraped off (fits the description of leukoplakia when I Google). My dentist thought it looked like trauma and said to call if it
CoCoLuna11
in
CLL Support
2 years ago
Bipolar Androgen Therapy Followed by Androgen Receptor Inhibition as Sequential Therapy for Prostate Cancer
Here's a treat - a review of BAT (Bipolar Androgen Therapy), actually written by Dr. Sam Denmeade [1]. In his intro, he makes a point of stressing that androgen receptor axis therapies are "highly effective [i]
palliative
[/i] therapy, but they are
not curative
." A few years ago it was
Here's a treat - a review of BAT (Bipolar Androgen Therapy), actually written by Dr. Sam Denmeade [1]. In his intro, he makes a point of stressing that androgen receptor axis therapies are "highly effective [i]
palliative
[/i] therapy, but they are
not curative
." A few years ago it was
pjoshea13
in
Fight Prostate Cancer
1 year ago
Clinical Trial with BGB-11417
Hi all! Would love to hear from anyone who is participating in / has considered and/or has knowledge of the NCT trial 04277637 - the Non-Randomized, Open-Label trial investigating the novel BCL-2 inhibitor BGB-11417? I am approaching my first treatment for CLL and my CLL specialist is a PI in this
Hi all! Would love to hear from anyone who is participating in / has considered and/or has knowledge of the NCT trial 04277637 - the Non-Randomized, Open-Label trial investigating the novel BCL-2 inhibitor BGB-11417? I am approaching my first treatment for CLL and my CLL specialist is a PI in this
Chi-town_Girl
in
CLL Support
1 year ago
Full Blood Count Test Results
Hiya, I’ve had a lot of help on this forum in regards to making some sense of my thyroid blood test results and I was wondering if anyone is able to advise with these results too. They are out of date as they are from December 2022 but they are the tests I was given when my hypothyroid symptoms started
Hiya, I’ve had a lot of help on this forum in regards to making some sense of my thyroid blood test results and I was wondering if anyone is able to advise with these results too. They are out of date as they are from December 2022 but they are the tests I was given when my hypothyroid symptoms started
NiaJayne
in
Thyroid UK
1 year ago
Involvement Opportunity - PRaCTicAL Research Project (UK)
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Iron regulation offers new treatment hope for incurable blood cancer
Published April 4, 2023 | Originally published on MedicalXpress Breaking News-and-Events A landmark discovery linking iron regulation to a rare blood cancer has led to clinical trials of a potential new treatment for patients with the incurable disease. The study focused on polycythemia vera (PV),
Published April 4, 2023 | Originally published on MedicalXpress Breaking News-and-Events A landmark discovery linking iron regulation to a rare blood cancer has led to clinical trials of a potential new treatment for patients with the incurable disease. The study focused on polycythemia vera (PV),
PhysAssist
in
MPN Voice
1 year ago
Do you know the symptoms associated with a heart rhythm disorder? 🤔
Could your heart rhythm problem be dangerous... ✅ Do you experience breathlessness or shortness of breath? ✅ Do you feel chest pain\discomfort? ✅ Do you often suffer from light-headedness? ✅ Do you have a rapid or irregular heart rate? ✅ Do you experience fainting? ✅ Do you experience fatigue?
Could your heart rhythm problem be dangerous... ✅ Do you experience breathlessness or shortness of breath? ✅ Do you feel chest pain\discomfort? ✅ Do you often suffer from light-headedness? ✅ Do you have a rapid or irregular heart rate? ✅ Do you experience fainting? ✅ Do you experience fatigue?
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Palpitations V Afib
Hello everyone. I know some of you are pretty slick with your understanding of ECG readings and I am hoping you can help me with mine. I have had a Kardia device since being diagnosed with Afib in 2017. I find it reassuring when I am mildly worried and get NSR readings, but worrying when I get other
Hello everyone. I know some of you are pretty slick with your understanding of ECG readings and I am hoping you can help me with mine. I have had a Kardia device since being diagnosed with Afib in 2017. I find it reassuring when I am mildly worried and get NSR readings, but worrying when I get other
Tellingfibs
in
Atrial Fibrillation Support
2 years ago
how to exercise with AFib?
I am new with AFib, just a week into it, 61 years old. I am very anxious now about this, as I am breathless even on an easy walk. I am taking bisoprolol after I ended up in hospital with a Heart rate that wouldn’t come down until they gave me this medication. I have until this point always been super
I am new with AFib, just a week into it, 61 years old. I am very anxious now about this, as I am breathless even on an easy walk. I am taking bisoprolol after I ended up in hospital with a Heart rate that wouldn’t come down until they gave me this medication. I have until this point always been super
intheweeds
in
Atrial Fibrillation Support
2 years ago
PSA fluctuations on docetaxel?
Hello all, is it normal for the PSA to increase and decrease while on docetaxel? Dad’s enrolled in a clinical trial and is receiving chemotherapy (docetaxel). His PSA was declining but suddenly increased to 1.26 two cycles/doses ago, and to 1.39 last cycle/dose. Wondering if this is indicating his cancer
Hello all, is it normal for the PSA to increase and decrease while on docetaxel? Dad’s enrolled in a clinical trial and is receiving chemotherapy (docetaxel). His PSA was declining but suddenly increased to 1.26 two cycles/doses ago, and to 1.39 last cycle/dose. Wondering if this is indicating his cancer
PHnerd
in
Advanced Prostate Cancer
1 year ago
Are Anticoagulants necessary?
I was diagnosed with PAF over two years ago following two episodes of fast AF which lasted for less than six hours. I was given IV Metoprolol in A&E and discharged on Bisoprolol 1.25mg daily. I have been well and active since but my cardiologist is keen for me to take anticoagulants as my CHADsVASc
I was diagnosed with PAF over two years ago following two episodes of fast AF which lasted for less than six hours. I was given IV Metoprolol in A&E and discharged on Bisoprolol 1.25mg daily. I have been well and active since but my cardiologist is keen for me to take anticoagulants as my CHADsVASc
anxiousgran
in
AF Association
2 years ago
BTK Inhibitor Therapy for CLL: An International Perspective - Stephan Stilgenbauer, MD
BTK Inhibitor Therapy for CLL: An International Perspective Stephan Stilgenbauer, MD Expert Commentary ClinicalThought™ - Targeted therapies, including BTK inhibitors and combinations incorporating BCL-2 inhibitors, have replaced chemoimmunotherapy as the standard of care for treating CLL.
BTK Inhibitor Therapy for CLL: An International Perspective Stephan Stilgenbauer, MD Expert Commentary ClinicalThought™ - Targeted therapies, including BTK inhibitors and combinations incorporating BCL-2 inhibitors, have replaced chemoimmunotherapy as the standard of care for treating CLL.
lankisterguy
Volunteer
in
CLL Support
1 year ago
Chemo vs Xofigo
I am seven years from diagnosis (PSA 1,666). Still have my prostate. Firmagon brought PSA to undetectable in five months. After continuous Eligard, Xtandi, and Clinical Trial, back up to 800 PSA. My decision now is this: Chemo or XOFIGO (RA 223). Anyone out there that can help me with their experiences
I am seven years from diagnosis (PSA 1,666). Still have my prostate. Firmagon brought PSA to undetectable in five months. After continuous Eligard, Xtandi, and Clinical Trial, back up to 800 PSA. My decision now is this: Chemo or XOFIGO (RA 223). Anyone out there that can help me with their experiences
fsiefert
in
Advanced Prostate Cancer
1 year ago
RECOVERY FROM PULSED FIELD CATHETER ABLATION – ANYONE HAD ONE YET?
Some of you may have seen my recent update post relating to my decision to have a catheter ablation to try and sort out my early persistent AF (which was tolerable in terms of symptoms at the time). The decision was swayed for an active/invasive intervention when I was offered a relatively new procedure
Some of you may have seen my recent update post relating to my decision to have a catheter ablation to try and sort out my early persistent AF (which was tolerable in terms of symptoms at the time). The decision was swayed for an active/invasive intervention when I was offered a relatively new procedure
FindingCaradoc
in
Atrial Fibrillation Support
2 years ago
Thyroid Blood Test Results
Hi all, I finally managed to get a copy of my thyroid blood test results but there is so little information on there that I’m unsure of what I should do next. I’ve posted before but my situation is that I had a partial thyroidectomy back in July 2022 and I’ve been getting symptoms such as tiredness
Hi all, I finally managed to get a copy of my thyroid blood test results but there is so little information on there that I’m unsure of what I should do next. I’ve posted before but my situation is that I had a partial thyroidectomy back in July 2022 and I’ve been getting symptoms such as tiredness
NiaJayne
in
Thyroid UK
1 year ago
More decisions!!
Well I saw Dr Pepper yesterday and all much as expected. I've moved to persistent AF and a cardioversion would be pointless. I keep self converting the back to AF. Sob. So options are... Live with it as long as my rate comes down to the 80s, so will be trying Digoxin after my holiday in Norfolk.
Well I saw Dr Pepper yesterday and all much as expected. I've moved to persistent AF and a cardioversion would be pointless. I keep self converting the back to AF. Sob. So options are... Live with it as long as my rate comes down to the 80s, so will be trying Digoxin after my holiday in Norfolk.
booboo73
in
AF Association
2 years ago
Oregovomab Clinical Trial
Hello, I was recently approved to participate in the Phase III trial. I am wondering if anyone has participated in the Phase II trial and what their experience has been. Also, do you think participation may exclude me from future treatments? https://clinicaltrials.gov/ct2/show/NCT04498117?term=oregovomab
Hello, I was recently approved to participate in the Phase III trial. I am wondering if anyone has participated in the Phase II trial and what their experience has been. Also, do you think participation may exclude me from future treatments? https://clinicaltrials.gov/ct2/show/NCT04498117?term=oregovomab
iqbalmel
in
My Ovacome
1 year ago
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