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Permanent atrial fibrillation
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Is my TSH too low
Hi I’ve posted several times before regarding my Thyroid journey but not yet filled in my profile. In brief partial Thyroidectomy in 1995 & stable for many years on 75mcgs of Thyroxine till TSH started creeping up & up regularly over 5. After lots of arguments with my GP I eventually managed to see an
Hi I’ve posted several times before regarding my Thyroid journey but not yet filled in my profile. In brief partial Thyroidectomy in 1995 & stable for many years on 75mcgs of Thyroxine till TSH started creeping up & up regularly over 5. After lots of arguments with my GP I eventually managed to see an
Otto11
in
Thyroid UK
1 year ago
STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
steve5441
in
CLL Support
1 year ago
Hormone video
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
Guineapiggy
in
Thyroid UK
1 year ago
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VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
Severe bruising
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
spanish36
in
CLL Support
1 year ago
Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
CLLerinOz
Administrator
in
CLL Support
1 year ago
So now I'm a bit scared.
I posted about deciding to do an ablation consult the other day, I have that scheduled for Dec 30th. Well that evening the 23rd I had a new arrhythmia show up. I sent it to Kardia clinician review, and they said it was ventricular tachycardia. The sort of rhythm that when sustained can lead to ventricular
I posted about deciding to do an ablation consult the other day, I have that scheduled for Dec 30th. Well that evening the 23rd I had a new arrhythmia show up. I sent it to Kardia clinician review, and they said it was ventricular tachycardia. The sort of rhythm that when sustained can lead to ventricular
ChasMartin
in
AF Association
2 years ago
Cost of PSMA scan in US
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
TJGuy
in
Advanced Prostate Cancer
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
Afib worse than before ablation
I had the most glorious day in 3 years on the 4th day after my first ablation, which the doc said went great. The first three days were tougher because I had a sort throat, fever, then a migraine. But on day 4 I felt incredible…until about 9:30pm when my watch told me I was in afib again. And then
I had the most glorious day in 3 years on the 4th day after my first ablation, which the doc said went great. The first three days were tougher because I had a sort throat, fever, then a migraine. But on day 4 I felt incredible…until about 9:30pm when my watch told me I was in afib again. And then
UnhappyAF
in
AF Association
2 years ago
”Aggressive” AF
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July, I
Does anybody on here have experience or encouraging stories about Atrial Fibrillation especially the aggressive kind. I'm 43 and diagnosed with AF in March '21. I've had a cardioversion, 2 ablations in the upper chamber and 1 ablation in a lower chamber. The last ablation was in June then in July, I
BeeBee79
in
AF Association
2 years ago
Any ideas/stories about treating PAC’s??
Had ablation in May of this year for lone AFib. Structurally normal heart. Had mild runs of PACs prior to the procedure that would come and go. Now going on 7 months after procedure and they are more bothersome than the AFib was. Last for hours and/or days on end. It’s really wearing me down. I’ve tried
Had ablation in May of this year for lone AFib. Structurally normal heart. Had mild runs of PACs prior to the procedure that would come and go. Now going on 7 months after procedure and they are more bothersome than the AFib was. Last for hours and/or days on end. It’s really wearing me down. I’ve tried
Golf1515
in
AF Association
2 years ago
A-Flutter Ablation Success
How many have had an a-flutter ablation and it lasted? My doctor made it sound like its one and done for a long time to come but the more I read, the more it makes me think it's just temporary and a way of life to have to keep going in or then possibly have to get another one for Afib very soon after
How many have had an a-flutter ablation and it lasted? My doctor made it sound like its one and done for a long time to come but the more I read, the more it makes me think it's just temporary and a way of life to have to keep going in or then possibly have to get another one for Afib very soon after
Aflutter1
in
AF Association
2 years ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
New shooting pain in left breast
So today I have another strange new symptom - quick shooting pain from my left side across/through my left breast. Its happened 3 times today and each time its been about 6 quick pains then went away, all times I have been relaxed and at rest. I have done an ECG on my Apple Watch, checked my heart
So today I have another strange new symptom - quick shooting pain from my left side across/through my left breast. Its happened 3 times today and each time its been about 6 quick pains then went away, all times I have been relaxed and at rest. I have done an ECG on my Apple Watch, checked my heart
HappyDiamonds
in
PMRGCAuk
2 years ago
Cox maze: anyone had this procedure?
Hi all just booked for a private consult with cardiothoraticic surgeon in northwest, hopefully for Cox maze procedure for afib. Was in a+e for 14 hours yesterday on monitors...sent me home, still in AFib. Long story, but bit by bit I am finding out that treatment for my AFib is very limited due to other
Hi all just booked for a private consult with cardiothoraticic surgeon in northwest, hopefully for Cox maze procedure for afib. Was in a+e for 14 hours yesterday on monitors...sent me home, still in AFib. Long story, but bit by bit I am finding out that treatment for my AFib is very limited due to other
DizzyD
in
Atrial Fibrillation Support
2 years ago
I am back again sorry if I wrote this last night.
almost a month ago I had a cardioversion and it was amazing. I have been dealing with a heart rate in the 150s since the end of April. When I woke up from the CV it was 82. I actually had a smile as I awoke. I did not even know my heart rate was down yet so maybe it was the drugs lol but I felt happier
almost a month ago I had a cardioversion and it was amazing. I have been dealing with a heart rate in the 150s since the end of April. When I woke up from the CV it was 82. I actually had a smile as I awoke. I did not even know my heart rate was down yet so maybe it was the drugs lol but I felt happier
DawnTX
in
AF Association
2 years ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
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