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New experiences of diagnosis video for World Lupus Day
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Article: Exciting time for biological use in Lupus
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
VeeWat
in
LUPUS UK
3 months ago
PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
BettysMom
in
My MSAA Community
3 months ago
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Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
Save a life with an AED
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
Arrhythmia Alliance supports and recognises the vital role an
AED
can play in saving lives For further details please follow the link below
What can I do about sudden cardiac arrest?
https://api.heartrhythmalliance.org/files/download/49bda8fa574082fedd9ee93e473182ea
SamAdmin
Administrator
in
Heart Rhythm Disorders Support
2 months ago
Atarax 25mg...has anyone used it?
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
AnonLupi
in
LUPUS UK
3 months ago
Cardioversion and PVCs and PACs
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Does a cardioversion help if you have PVCs and PACs or does it only help if you have Afib? I go in and out of Afib but my PVCs and PACs have been non-stop for 3 months. Flecainide did not work. I’m considering a cardioversion as I’m to the point I will try anything to get my heart back into NSR but
Debjimmay
in
Atrial Fibrillation Support
2 months ago
angiography
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Morning all Haven’t posted in ages been overdoing things have swollen hands but I suppose it could also be the heat. Due to have an angiogram just wondered if any of you warriors have had one and did RA cause any extra problems. Wishing you all a good day xx
Daffodil1958
in
NRAS
2 months ago
Help - trouble with diagnosis
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Severusisismydog
in
LUPUS UK
3 months ago
Graves in couples
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
Kari55
in
Thyroid UK
6 months ago
Living with lupus in 2024 survey - closing soon!
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages. To complete the survey, please click the following link
nakita_cambow
Moderator
in
LUPUS UK
3 months ago
Lupus Tumidus
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with Lupus Tumidus. Rheumatologist has said it is not SLE and will likely never turn into SLE. (I am not convinced but one battle at a time). Does
TumidusG
in
LUPUS UK
3 months ago
CAP score of 299, diagnosed with Cirrhosis
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
Carblover8
in
British Liver Trust
6 months ago
new INR tester
I have been diagnosed with APS for 25 years after having a stroke at 37 years. My treatment medication treatment regime is warfarin plus baby aspirin. I have my INR completed between 1-3 weeks apart but usually every two weeks due to its variability. I have received a coaguchek INRange point of care
I have been diagnosed with APS for 25 years after having a stroke at 37 years. My treatment medication treatment regime is warfarin plus baby aspirin. I have my INR completed between 1-3 weeks apart but usually every two weeks due to its variability. I have received a coaguchek INRange point of care
Beckysuec
in
Hughes Syndrome APS Forum
2 months ago
Ablation Cancelled
Hi Everyone I had ectopic beats for over a year, up to 24 a minute, dizzy, light headed, totally exhausted. I am 66 previously very fit, cycling, rowing,walking. When I started suffering chest pain my GP sent me to A&E by ambulance three times, each time I was told its nothing to worry about 'everybody
Hi Everyone I had ectopic beats for over a year, up to 24 a minute, dizzy, light headed, totally exhausted. I am 66 previously very fit, cycling, rowing,walking. When I started suffering chest pain my GP sent me to A&E by ambulance three times, each time I was told its nothing to worry about 'everybody
Lefthook
in
Atrial Fibrillation Support
2 months ago
Should I push for more help
UK, 46M So I'm 3 months post diagnosis, only taking 5mg Bisoprolol as a rate control strategy. I have episodes of what I believe to be Afib (very irregular rhythm) regularly - since tracking them at the start of April I've had 47. Longest run without an episode has been 6 days. They are a roughly
UK, 46M So I'm 3 months post diagnosis, only taking 5mg Bisoprolol as a rate control strategy. I have episodes of what I believe to be Afib (very irregular rhythm) regularly - since tracking them at the start of April I've had 47. Longest run without an episode has been 6 days. They are a roughly
Agrianes
in
Atrial Fibrillation Support
2 months ago
Ultrasound
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Chicob29
in
British Liver Trust
6 months ago
Feeling lonely and fobbed off! What are these symptoms??
Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later, lupus panniculitis which is quite rare (fatty lumps under the skin which leave atrophies. (Mine are on my face, breasts, and arms). For the last
Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later, lupus panniculitis which is quite rare (fatty lumps under the skin which leave atrophies. (Mine are on my face, breasts, and arms). For the last
Starshine83
in
LUPUS UK
3 months ago
"Impact of REM Sleep Behavior and Sleep Talking on Mortality in Parkinson's Disease" Rapid Eye Movement Behavior Disorder (RBD) & PD
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
JackBruce2024
in
Cure Parkinson's
6 months ago
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