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Pegasys
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Weekly Pegasys and COVID vaccine
Hi folks Quick question; has anyone had vaccine on weekly interferon injections? If so does it present issues? Apparently people are being asked if they’ve had any injections in the last seven days. Thanks Pete
Hi folks Quick question; has anyone had vaccine on weekly interferon injections? If so does it present issues? Apparently people are being asked if they’ve had any injections in the last seven days. Thanks Pete
PT99
in
MPN Voice
4 years ago
Pegasys- smouldering systemic mastocytosis
I was told I had to get injections to slow down mast cell production. When I got the prescription it said a form of chemotherapy? Anyone in my position? Not sure why if mastocytosis is not cancerous at my category
I was told I had to get injections to slow down mast cell production. When I got the prescription it said a form of chemotherapy? Anyone in my position? Not sure why if mastocytosis is not cancerous at my category
Holiday1111
in
MPN Voice
4 years ago
Rechecking JAK2 V617F Allele Burden
Been on a daily double dose of a baby aspirin, weekly
pegasys
45mcg, and phlebotomies as necessary ever since. I’ll report back on the results. Curious if others have stories/data to share on changing allele burdens over time? Eric
Been on a daily double dose of a baby aspirin, weekly
pegasys
45mcg, and phlebotomies as necessary ever since. I’ll report back on the results. Curious if others have stories/data to share on changing allele burdens over time? Eric
JT_Marlin
in
MPN Voice
4 years ago
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MPN Specialists in California (ET - JAK2)
I’m a 40 year old male with ET (JAK2) currently on
Pegasys
. Any recommendations would be great, thanks in advance, and Happy New Years!
I’m a 40 year old male with ET (JAK2) currently on
Pegasys
. Any recommendations would be great, thanks in advance, and Happy New Years!
Kseely
in
MPN Voice
4 years ago
PV and Covid
I have done a search on this site and may have missed a post about this, but has any PV patient currently treated with
Pegasys
been unfortunate enough to catch COVID ? If so what were your symptoms and what was your recovery like?
I have done a search on this site and may have missed a post about this, but has any PV patient currently treated with
Pegasys
been unfortunate enough to catch COVID ? If so what were your symptoms and what was your recovery like?
Whatsisname
in
MPN Voice
4 years ago
Alternating Pegasys doses weekly ?
I have not had the best luck with
Pegasys
for my PV and watching how my counts react to changing doses over the last few years I'm starting to get the impression that my PV is adapting to dose changes after a month or two.
I have not had the best luck with
Pegasys
for my PV and watching how my counts react to changing doses over the last few years I'm starting to get the impression that my PV is adapting to dose changes after a month or two.
jon1972
in
MPN Voice
4 years ago
Pegasys and Blood Pressure Medication
I am also on a high dose 180mcg
Pegasys
and aspirin for ET. I inquired about drug interaction and she seemed to think it was ok, but on taking my first tablet of Ramipril, I’ve felt awful all day. It seems to have intensified the side-effects of
Pegasys
. Dry-mouth, dizziness and diarrhoea.
I am also on a high dose 180mcg
Pegasys
and aspirin for ET. I inquired about drug interaction and she seemed to think it was ok, but on taking my first tablet of Ramipril, I’ve felt awful all day. It seems to have intensified the side-effects of
Pegasys
. Dry-mouth, dizziness and diarrhoea.
swimswam
in
MPN Voice
4 years ago
Face and Ears hot/flushed in the morning
PV, JAK2+,
Pegasys
45mcg Anyone else get hot flushed face and ears particularly in the morning? Is this just a PV symptom?
PV, JAK2+,
Pegasys
45mcg Anyone else get hot flushed face and ears particularly in the morning? Is this just a PV symptom?
JT_Marlin
in
MPN Voice
4 years ago
When can we safely discontinue Pegasys in patients with MPN?
« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition, the MPN Hub spoke to the Steering Committee Chair, Jean-Jacques Kiladjian, Université de Paris, Paris, FR. We asked, When can we safely discontinue interferon alpha therapy in patients with myeloproliferative neoplasms
« During the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition, the MPN Hub spoke to the Steering Committee Chair, Jean-Jacques Kiladjian, Université de Paris, Paris, FR. We asked, When can we safely discontinue interferon alpha therapy in patients with myeloproliferative neoplasms
Manouche
in
MPN Voice
4 years ago
Itching intensified and in Pegasys
I have been on
Pegasys
for almost a year now, diagnosed PV Jak2 positive 5 years ago. I have been relatively symptom free with the exception of some minor itching over the years... the past few days the itch has intensified and it is so uncomfortable 😣.
I have been on
Pegasys
for almost a year now, diagnosed PV Jak2 positive 5 years ago. I have been relatively symptom free with the exception of some minor itching over the years... the past few days the itch has intensified and it is so uncomfortable 😣.
DN515
in
MPN Voice
4 years ago
Taking both HU and Pegasys?
I went on to
Pegasys
about a year ago (45ug fortnightly at the end) and had the best blood counts since Dx (Feb 2017). But the fatigue was really bad. And then I got pericarditis.
I went on to
Pegasys
about a year ago (45ug fortnightly at the end) and had the best blood counts since Dx (Feb 2017). But the fatigue was really bad. And then I got pericarditis.
MPNBlog
in
MPN Voice
4 years ago
Pegasys effect on labs
What have others’ experienced been with
Pegasys
and its effects on labs, and should I be concerned? I’d like to stay on but not at the cost of liver function/damage.
What have others’ experienced been with
Pegasys
and its effects on labs, and should I be concerned? I’d like to stay on but not at the cost of liver function/damage.
Snook37
in
MPN Voice
4 years ago
Switching to pegasys
If moving from hydroxycarbamide to
pegasys
, are they taken in combination initially until the effect of
pegasys
is known?
If moving from hydroxycarbamide to
pegasys
, are they taken in combination initially until the effect of
pegasys
is known?
muriell
in
MPN Voice
4 years ago
Pegasys 180mgs syringes- Are they discontinued?
Unfortunately my platlets refuse to come down below 650 even though I’m on 135mg
Pegasys
weekly since Jan. we agreed to up my dose to alternating 135mg one week and 180mg the next. When I took the prescriptions to the hospital pharm, I was given 2 x 90mg syringes instead of 180mg syringes.
Unfortunately my platlets refuse to come down below 650 even though I’m on 135mg
Pegasys
weekly since Jan. we agreed to up my dose to alternating 135mg one week and 180mg the next. When I took the prescriptions to the hospital pharm, I was given 2 x 90mg syringes instead of 180mg syringes.
swimswam
in
MPN Voice
4 years ago
What defines ‘Extremely Vulnerable’ for MPN?
eg those of us on
Pegasys
/Hydrox
eg those of us on
Pegasys
/Hydrox
Paul123456
in
MPN Voice
4 years ago
Allele burden results on Pegasys
After 22 months on
Pegasys
my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with
Pegasys
. My counts have been normal for about a year and a half, with the exception of monocytes, which run high.
After 22 months on
Pegasys
my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with
Pegasys
. My counts have been normal for about a year and a half, with the exception of monocytes, which run high.
charl17
in
MPN Voice
4 years ago
Prof Harrison, interferons and disease progression
Very useful video including Prof Harrison discussing Ropeg (
Pegasys
should offer similar results) and the correlation between reducing JAK2 AB and slowing down disease progression. This is the first ‘evidence’ that interferons can impact progression https://mpninfo.org/category/video-library/
Very useful video including Prof Harrison discussing Ropeg (
Pegasys
should offer similar results) and the correlation between reducing JAK2 AB and slowing down disease progression. This is the first ‘evidence’ that interferons can impact progression https://mpninfo.org/category/video-library/
Paul123456
in
MPN Voice
4 years ago
Pegasys having positive impact at last
i am 53 , have ET, Jak2 mutation and it’s s really good news today, 12 months ago my platelets were at 1500, and my consultant advised to start on
Pegasys
. I posted on here earlier this year in frustration as the results were limited and very slow.
i am 53 , have ET, Jak2 mutation and it’s s really good news today, 12 months ago my platelets were at 1500, and my consultant advised to start on
Pegasys
. I posted on here earlier this year in frustration as the results were limited and very slow.
Suebon
in
MPN Voice
4 years ago
Sudden increase in hematocrit while on Pegasys?
Before I started
Pegasys
it was in range form 46.5-50 max with RBC 5.4-5.6, platelets 600-800. On weekly 45mcg
Pegasys
for 6 months it came down to 43 and RBC 5.1, platelets 200.
Before I started
Pegasys
it was in range form 46.5-50 max with RBC 5.4-5.6, platelets 600-800. On weekly 45mcg
Pegasys
for 6 months it came down to 43 and RBC 5.1, platelets 200.
Alexbits
in
MPN Voice
4 years ago
Pegasys stopped working
I am wondering what might cause
Pegasys
to stop working (I didn't take any new medication nor herb etc...)? I am very skinny. Will lack of body fat affects the absorption of
Pegasys
after some period of time ? Not sure if anyone has experienced a similar situation.
I am wondering what might cause
Pegasys
to stop working (I didn't take any new medication nor herb etc...)? I am very skinny. Will lack of body fat affects the absorption of
Pegasys
after some period of time ? Not sure if anyone has experienced a similar situation.
LisaC101
in
MPN Voice
4 years ago
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