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Pegasys
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Allele burden results on Pegasys
After 22 months on
Pegasys
my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with
Pegasys
. My counts have been normal for about a year and a half, with the exception of monocytes, which run high.
After 22 months on
Pegasys
my Jak2 allele burden has gone from 28% 4 years ago to 24% today. I have pmf and control my blood counts with
Pegasys
. My counts have been normal for about a year and a half, with the exception of monocytes, which run high.
charl17
in
MPN Voice
4 years ago
Prof Harrison, interferons and disease progression
Very useful video including Prof Harrison discussing Ropeg (
Pegasys
should offer similar results) and the correlation between reducing JAK2 AB and slowing down disease progression. This is the first ‘evidence’ that interferons can impact progression https://mpninfo.org/category/video-library/
Very useful video including Prof Harrison discussing Ropeg (
Pegasys
should offer similar results) and the correlation between reducing JAK2 AB and slowing down disease progression. This is the first ‘evidence’ that interferons can impact progression https://mpninfo.org/category/video-library/
Paul123456
in
MPN Voice
4 years ago
Pegasys having positive impact at last
i am 53 , have ET, Jak2 mutation and it’s s really good news today, 12 months ago my platelets were at 1500, and my consultant advised to start on
Pegasys
. I posted on here earlier this year in frustration as the results were limited and very slow.
i am 53 , have ET, Jak2 mutation and it’s s really good news today, 12 months ago my platelets were at 1500, and my consultant advised to start on
Pegasys
. I posted on here earlier this year in frustration as the results were limited and very slow.
Suebon
in
MPN Voice
4 years ago
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Sudden increase in hematocrit while on Pegasys?
Before I started
Pegasys
it was in range form 46.5-50 max with RBC 5.4-5.6, platelets 600-800. On weekly 45mcg
Pegasys
for 6 months it came down to 43 and RBC 5.1, platelets 200.
Before I started
Pegasys
it was in range form 46.5-50 max with RBC 5.4-5.6, platelets 600-800. On weekly 45mcg
Pegasys
for 6 months it came down to 43 and RBC 5.1, platelets 200.
Alexbits
in
MPN Voice
4 years ago
Pegasys stopped working
I am wondering what might cause
Pegasys
to stop working (I didn't take any new medication nor herb etc...)? I am very skinny. Will lack of body fat affects the absorption of
Pegasys
after some period of time ? Not sure if anyone has experienced a similar situation.
I am wondering what might cause
Pegasys
to stop working (I didn't take any new medication nor herb etc...)? I am very skinny. Will lack of body fat affects the absorption of
Pegasys
after some period of time ? Not sure if anyone has experienced a similar situation.
LisaC101
in
MPN Voice
4 years ago
Increase in Blood Pressure on Pegasys
I have noticed that my blood pressure has increased significantly. It has always been slightly high, but is now a lot higher. I have a telephone appointment in a couple of weeks so will mention it then, but wondered if it could be a side effect of the Peg, as I’m on quite a high dose. Has anyone else
I have noticed that my blood pressure has increased significantly. It has always been slightly high, but is now a lot higher. I have a telephone appointment in a couple of weeks so will mention it then, but wondered if it could be a side effect of the Peg, as I’m on quite a high dose. Has anyone else
swimswam
in
MPN Voice
4 years ago
THC?
I have PV and take
Pegasys
weekly ( the lowest dose). Cannabis is legal here in Oregon. Is there any reason why I shouldn’t use the THC? Does anyone have experience with this?
I have PV and take
Pegasys
weekly ( the lowest dose). Cannabis is legal here in Oregon. Is there any reason why I shouldn’t use the THC? Does anyone have experience with this?
DN515
in
MPN Voice
4 years ago
Excellent service
Had I been in the clinic I probably would have had a venesection then and there, however my consultant decided to continue with
Pegasys
and defer a venesection until my next appt on 2 October.
Had I been in the clinic I probably would have had a venesection then and there, however my consultant decided to continue with
Pegasys
and defer a venesection until my next appt on 2 October.
Whatsisname
in
MPN Voice
4 years ago
Pain in the coxis, hips, groins and the whole legs. Do you have?
If you take Interferon,
Pegasys
, do it finish with this pain or not? And Hydroxiurea? What drug is recommended with bones pain? What kind of medical proofs? Any recommendations. It can be confused with arthritis, Hashimoto, or other diseases. How do you know about it? Thanks
If you take Interferon,
Pegasys
, do it finish with this pain or not? And Hydroxiurea? What drug is recommended with bones pain? What kind of medical proofs? Any recommendations. It can be confused with arthritis, Hashimoto, or other diseases. How do you know about it? Thanks
SoledadBarcelona
in
MPN Voice
4 years ago
Does the nausea with HU diminish?
I have PCV and have generally been doing well with
Pegasys
except that its legendary itching has been a problem, especially in the hot, humid summer, so I thought I'd take a little vacation from it with hydroxyurea until the winter comes.
I have PCV and have generally been doing well with
Pegasys
except that its legendary itching has been a problem, especially in the hot, humid summer, so I thought I'd take a little vacation from it with hydroxyurea until the winter comes.
pnArt
in
MPN Voice
4 years ago
Sensitive skin?
PV, JAK2+,
Pegasys
45 weekly Anyone ever deal with migrating skin sensitivity? It’s the weirdest thing - over the past several days my skin has gotten crazy sensitive - almost like burn and sometimes the sensation runs internal to my bones too.
PV, JAK2+,
Pegasys
45 weekly Anyone ever deal with migrating skin sensitivity? It’s the weirdest thing - over the past several days my skin has gotten crazy sensitive - almost like burn and sometimes the sensation runs internal to my bones too.
JT_Marlin
in
MPN Voice
4 years ago
On bone marrow biopsy (BMB)?
Is this a reliable way to check the effect of Pegylated interferon alfa-2a (
Pegasys
)? Thanks and take care of yourself!
Is this a reliable way to check the effect of Pegylated interferon alfa-2a (
Pegasys
)? Thanks and take care of yourself!
samiris
in
MPN Voice
4 years ago
First post and thank you
Anyway the BMB results showed I was suffering with pre-MF and I started on weekly 45mg
Pegasys
injections almost immediately.
Anyway the BMB results showed I was suffering with pre-MF and I started on weekly 45mg
Pegasys
injections almost immediately.
Katy121
in
MPN Voice
4 years ago
Occupational health
I have PV and been prescribed
Pegasys
since 2016. All bloods are normal. This assessment was done through a computer program. My risk score was 3.1. The statement I was told 'you can't return to work. You will die if you get covid'.
I have PV and been prescribed
Pegasys
since 2016. All bloods are normal. This assessment was done through a computer program. My risk score was 3.1. The statement I was told 'you can't return to work. You will die if you get covid'.
EleanorPV
in
MPN Voice
4 years ago
Critical illness Insurance & ET
It’s so stressful, my medication of aspirin &
Pegasys
is keeping me normal without it I cannot function! I first submitted my claim in January.
It’s so stressful, my medication of aspirin &
Pegasys
is keeping me normal without it I cannot function! I first submitted my claim in January.
Fizzydog
in
MPN Voice
4 years ago
PV and Teaching Amidst Covid
I was being treated with
Pegasys
, and my blood levels were very well controlled. In the last few months though, inflammation led to a diagnosis of rheumatoid arthritis, which then led to may oncologist taking me off of
Pegasys
.
I was being treated with
Pegasys
, and my blood levels were very well controlled. In the last few months though, inflammation led to a diagnosis of rheumatoid arthritis, which then led to may oncologist taking me off of
Pegasys
.
clevemic
in
MPN Voice
4 years ago
Longterm Interferon treatment
The drug of choice I am inclined to initially try is pegylated interferon, either
pegasys
or besremi, if available in the US soon. I am calling on patients who have used and/or are still using interferon. How does/ did it work for you? What were your side effects and quality of life?
The drug of choice I am inclined to initially try is pegylated interferon, either
pegasys
or besremi, if available in the US soon. I am calling on patients who have used and/or are still using interferon. How does/ did it work for you? What were your side effects and quality of life?
Loooonglife
in
MPN Voice
4 years ago
Light-Headed / Dizzy
PV, JAK2+, been on
Pegasys
45mcg for 4 months. Could it be the peg just accumulating and just now showing a new symptom? Others out there on peg experience new symptoms long into treatment without a dose change?
PV, JAK2+, been on
Pegasys
45mcg for 4 months. Could it be the peg just accumulating and just now showing a new symptom? Others out there on peg experience new symptoms long into treatment without a dose change?
JT_Marlin
in
MPN Voice
4 years ago
Where do you inject your Pegasys?
I have always injected in my tummy, but I lost a lot of weight (mainly because of several courses of antibiotics earlier this year), and now I am struggling to grasp enough flesh. Do any of you inject into your thigh or anywhere else? Do you know if it makes any difference to absorption or effectiveness
I have always injected in my tummy, but I lost a lot of weight (mainly because of several courses of antibiotics earlier this year), and now I am struggling to grasp enough flesh. Do any of you inject into your thigh or anywhere else? Do you know if it makes any difference to absorption or effectiveness
Otterfield
in
MPN Voice
4 years ago
Ruxolitinib plus Pegasys for MF: anyone else on this combination? Oxford meet up.
Am taking ruxolitinib, and for the last month
pegasys
as well. Would be interested to make contact with anyone else taking this combination I’m sending this post while sitting in the university parks on a shady bench.
Am taking ruxolitinib, and for the last month
pegasys
as well. Would be interested to make contact with anyone else taking this combination I’m sending this post while sitting in the university parks on a shady bench.
Rachelthepotter
in
MPN Voice
4 years ago
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