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Pegasys
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Update 5.5 - Good News
The
Pegasys
was finally authorized and arrived yesterday. I did my first self-injection of 45mcg PEG at my hematology office the same day. The wonderful nursing staff did the training and supervision for the first injection. Was observed for about 20 minutes and then went on my way.
The
Pegasys
was finally authorized and arrived yesterday. I did my first self-injection of 45mcg PEG at my hematology office the same day. The wonderful nursing staff did the training and supervision for the first injection. Was observed for about 20 minutes and then went on my way.
hunter5582
in
MPN Voice
3 years ago
Has anyone that’s prone to depression taken PEG INF / Pegasys?
I guess I’m clutching at straws here but I’m not keen and will probably decide to not start Ruxolitinib at this time, so that just leaves Peg. I will post an update as to what’s going on since my last haem apt which was a couple of days ago but as always the monthly appointments tend to upset me so
I guess I’m clutching at straws here but I’m not keen and will probably decide to not start Ruxolitinib at this time, so that just leaves Peg. I will post an update as to what’s going on since my last haem apt which was a couple of days ago but as always the monthly appointments tend to upset me so
Magentas
in
MPN Voice
3 years ago
Blood test battle and more
Currently on 90mcg fortnightly of
Pegasys
- all going ok so far with treatment, thankfully. I called my GP on Monday to book in for next week to be told I couldn’t have bloods done prior to my hospital appointment due to the national shortage of tubes.
Currently on 90mcg fortnightly of
Pegasys
- all going ok so far with treatment, thankfully. I called my GP on Monday to book in for next week to be told I couldn’t have bloods done prior to my hospital appointment due to the national shortage of tubes.
Naynay81
in
MPN Voice
3 years ago
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Update 5.8 = Good news.
It appears that the 45mcg dose of
Pegasys
is working well for me. I am clearly benefiting and have had no adverse effects at all. The decline in WBCs had me a bit concerned, but that seems like it will be fine. I am very pleased that my iron levels are coming up and HCT is holding steady.
It appears that the 45mcg dose of
Pegasys
is working well for me. I am clearly benefiting and have had no adverse effects at all. The decline in WBCs had me a bit concerned, but that seems like it will be fine. I am very pleased that my iron levels are coming up and HCT is holding steady.
hunter5582
in
MPN Voice
3 years ago
A day of surprises
The consultant reported that my blood tests results were unchanged and stable and the
pegasys
had reduced my spleen size by 0.7cm. He said that I am quite symptomatic but my DIPSS score is still Int1 and therefore I am not eligible for ruxolitinib.
The consultant reported that my blood tests results were unchanged and stable and the
pegasys
had reduced my spleen size by 0.7cm. He said that I am quite symptomatic but my DIPSS score is still Int1 and therefore I am not eligible for ruxolitinib.
ConniesDad
in
MPN Voice
3 years ago
Anyone on Ropeginterferon (Besremi)?
Wondering if anyone has switched from
Pegasys
(peginterferon) to Besremi (ropeginterferon)? I’ve read that side effects, particularly fatigue, are less on Besremi so would be interested in giving it a go if that’s the case. Thanks, Sarah 🙂
Wondering if anyone has switched from
Pegasys
(peginterferon) to Besremi (ropeginterferon)? I’ve read that side effects, particularly fatigue, are less on Besremi so would be interested in giving it a go if that’s the case. Thanks, Sarah 🙂
IrishSarah
in
MPN Voice
3 years ago
Advise on timing of covid jab and Pegasys injection
I’m due my second AZ vaccine next week, and whilst I have no doubts about going ahead with it, my weekly
Pegasys
jab falls the next day. I wondered if there is any advise as to whether I should continue with my
Pegasys
jab the next day or delay it a few days.
I’m due my second AZ vaccine next week, and whilst I have no doubts about going ahead with it, my weekly
Pegasys
jab falls the next day. I wondered if there is any advise as to whether I should continue with my
Pegasys
jab the next day or delay it a few days.
swimswam
in
MPN Voice
3 years ago
Rapid aging of facial skin with Pegasys?
Since starting on
Pegasys
(have had 9th injection today given every 2 weeks 45mg until today upped to 67.5ish) I have noted my eyelid skin drooping over my eye to the point that it almost obscures full vision, my cheeks have sunken without weight loss and a mass of wrinkles has appeared all over.
Since starting on
Pegasys
(have had 9th injection today given every 2 weeks 45mg until today upped to 67.5ish) I have noted my eyelid skin drooping over my eye to the point that it almost obscures full vision, my cheeks have sunken without weight loss and a mass of wrinkles has appeared all over.
Planti
in
MPN Voice
3 years ago
Update 5.0
If Besremi does not get authorized, I will start on
Pegasys
then shift to Besremi when it does get FDA approved. I also saw the nephrologist yesterday to review the possible chronic kidney disease. She agrees that something is wrong, but that it is not an immediate threat.
If Besremi does not get authorized, I will start on
Pegasys
then shift to Besremi when it does get FDA approved. I also saw the nephrologist yesterday to review the possible chronic kidney disease. She agrees that something is wrong, but that it is not an immediate threat.
hunter5582
in
MPN Voice
3 years ago
Pegasys- How long to see results?
I’ve had my 3rd dose of 90mg
Pegasys
(ET JAK2+) and curious to know how long it took others in the same boat to see results? Sarah 💚
I’ve had my 3rd dose of 90mg
Pegasys
(ET JAK2+) and curious to know how long it took others in the same boat to see results? Sarah 💚
IrishSarah
in
MPN Voice
4 years ago
ET, JAK2+, Etc. Newly Diagnosed and Feeling Like One of the Lucky Ones
After all the facts were in place, my specialist suggested that I start
Pegasys
injections. Since seeing that recent studies had shown that twice/day aspirin was much better than once (similar to once/day plus HU or
Pegasys
???)
After all the facts were in place, my specialist suggested that I start
Pegasys
injections. Since seeing that recent studies had shown that twice/day aspirin was much better than once (similar to once/day plus HU or
Pegasys
???)
EssThro
in
MPN Voice
3 years ago
Starting Besremi
Hi, As
Pegasys
, Ruxolitnib and Hydroxy are no longer appropriate for my PV I have just started to transition to Besremi.
Hi, As
Pegasys
, Ruxolitnib and Hydroxy are no longer appropriate for my PV I have just started to transition to Besremi.
JohnSC
in
MPN Voice
4 years ago
Pegasys and high levels of liver enzyme or
The first month of being on
Pegasys
it doubled and then the 2nd month it tripled. Is this normal until the liver gets used to the drug? I don't drink alcohol, no other drugs and exercise/eat healthy. Has anyone else had this happen who has been on
Pegasys
?
The first month of being on
Pegasys
it doubled and then the 2nd month it tripled. Is this normal until the liver gets used to the drug? I don't drink alcohol, no other drugs and exercise/eat healthy. Has anyone else had this happen who has been on
Pegasys
?
ritaandscooter1
in
MPN Voice
3 years ago
General level of blood platerets seen as " normal"/acceptable/bearable in here.
I have been reading lost of posts, but have not reacted on many, maybe because the more you learn, the less you feel that you know :) I have ET Jak 2(maybe Negative)and get
Pegasys
65ml once a fortnight.
I have been reading lost of posts, but have not reacted on many, maybe because the more you learn, the less you feel that you know :) I have ET Jak 2(maybe Negative)and get
Pegasys
65ml once a fortnight.
yarrowleaf
in
MPN Voice
4 years ago
PV pinching - seriously can’t take it!
Pegasys
is no longer available in Canada and would that have even worked! I don’t know what else there is ... going to call my hematologist on Monday to see what else I can try but I don’t think the doctors or anyone really get how bad it is... .... how about gabapentin??
Pegasys
is no longer available in Canada and would that have even worked! I don’t know what else there is ... going to call my hematologist on Monday to see what else I can try but I don’t think the doctors or anyone really get how bad it is... .... how about gabapentin??
Hidden
in
MPN Voice
4 years ago
PV pinching - seriously can’t take it!
Pegasys
is no longer available in Canada and would that have even worked! I don’t know what else there is ... going to call my hematologist on Monday to see what else I can try but I don’t think the doctors or anyone really get how bad it is... .... how about gabapentin??
Pegasys
is no longer available in Canada and would that have even worked! I don’t know what else there is ... going to call my hematologist on Monday to see what else I can try but I don’t think the doctors or anyone really get how bad it is... .... how about gabapentin??
Hidden
in
MPN Voice
4 years ago
Covid jabs and bicycling :)
I have ET jak2 neg. and I am on
Pegasys
. The distance is about 10 km both ways. Thanks Yarrowleaf
I have ET jak2 neg. and I am on
Pegasys
. The distance is about 10 km both ways. Thanks Yarrowleaf
yarrowleaf
in
MPN Voice
4 years ago
Pegasys
Been on
Pegasys
135mg for about 3 years.. My bloods are ok, vastly reduced Hydro from 17 pills a week to 3.
Been on
Pegasys
135mg for about 3 years.. My bloods are ok, vastly reduced Hydro from 17 pills a week to 3.
shiftzz
in
MPN Voice
4 years ago
Shingles and essential thrombocythemia
Has anyone experienced shingles while on
Pegasys
interferon for essential thrombocythemia ? X
Has anyone experienced shingles while on
Pegasys
interferon for essential thrombocythemia ? X
BeckyG88
in
MPN Voice
4 years ago
hepatitis Delta
Feel so sad,the whole world crashed on me..feel so weak.After one year of
Pegasys
interferon ,i found out that i m in f3 stage of fibrosis,with an 1.47 Fib4score.I feel so weak,need someone to talk.I lost the game.Sorry for my english,i know is not so good.
Feel so sad,the whole world crashed on me..feel so weak.After one year of
Pegasys
interferon ,i found out that i m in f3 stage of fibrosis,with an 1.47 Fib4score.I feel so weak,need someone to talk.I lost the game.Sorry for my english,i know is not so good.
ionutz79
in
British Liver Trust
4 years ago
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