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Pegasys
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Allele burden shock
Glad to be starting
Pegasys
and hoping to be able to stay on it, since I suffer from cutaneous sarcoidosis (an inflammatory condition) and alpha interferon may make it worse. Fingers crossed. If I can be on
Pegasys
, the plan is to test again for allele burden after at least six months.
Glad to be starting
Pegasys
and hoping to be able to stay on it, since I suffer from cutaneous sarcoidosis (an inflammatory condition) and alpha interferon may make it worse. Fingers crossed. If I can be on
Pegasys
, the plan is to test again for allele burden after at least six months.
Aldebaran25
in
MPN Voice
2 years ago
Great article for “the itch”.
I have been on
pegasys
for 6 months. Read this article on Mast Cell Activation it explains so much. I am now trying to follow the food recommendations. https://hoffmancentre.com/treatments/mcas/ I talked to the health food store owner and she recommended a combination of these.
I have been on
pegasys
for 6 months. Read this article on Mast Cell Activation it explains so much. I am now trying to follow the food recommendations. https://hoffmancentre.com/treatments/mcas/ I talked to the health food store owner and she recommended a combination of these.
MAP44
in
MPN Voice
2 years ago
Essential Thrombocythaemia
Hi, I have just been diagnosed with a rear blood condition called Essential Thrombocythaemia (ET The courses of treatment offered to me are Hydroxycarbamide and
Pegasys
.
Hi, I have just been diagnosed with a rear blood condition called Essential Thrombocythaemia (ET The courses of treatment offered to me are Hydroxycarbamide and
Pegasys
.
Snowking
in
Leukaemia Support
2 years ago
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Pegasys & Liver
Been on
Pegasys
for 8 years. Is it possible for liver issues to surface now or does it usually cause issues pretty soon after starting ? Seeing substantial increase in liver enzymes (10 times upper range) from previously normal.
Been on
Pegasys
for 8 years. Is it possible for liver issues to surface now or does it usually cause issues pretty soon after starting ? Seeing substantial increase in liver enzymes (10 times upper range) from previously normal.
Mountainbiker12
in
MPN Voice
2 years ago
ET CALR - Heavy Flu like head, neuropathy
In fall of 2020 I tried to stop
Pegasys
to see if it’s effects would leave me in remission, and relieve the neuropathy. After a month I went back on irregular
Pegasys
dosing as platelets rose. The sick head started in October 2020 along with moderate weakness in my neck.
In fall of 2020 I tried to stop
Pegasys
to see if it’s effects would leave me in remission, and relieve the neuropathy. After a month I went back on irregular
Pegasys
dosing as platelets rose. The sick head started in October 2020 along with moderate weakness in my neck.
George1976
in
MPN Voice
2 years ago
PEGASYS and Besremi Site injection pain
I started
Pegasys
about 2 months ago and experienced extreme pain where I injected myself on my first dose. At first my Dr thought it might have been infection but it happened again during me second dose. There was a 2 day delay and then redness, tenderness and extreme pain.
I started
Pegasys
about 2 months ago and experienced extreme pain where I injected myself on my first dose. At first my Dr thought it might have been infection but it happened again during me second dose. There was a 2 day delay and then redness, tenderness and extreme pain.
S_anth
in
MPN Voice
2 years ago
Interferon Alpha 2-a (PEG) vs 2-b,(Bes) exactly what's the diff?
Besremi chose 2b (with Arginine) ,
Pegasys
chose 2a (with Lysine). Does this matter, who knows. It sure does in Jak2 where switching V and F at 617 (Jak2-v617f) makes a life changing diff for us.
Besremi chose 2b (with Arginine) ,
Pegasys
chose 2a (with Lysine). Does this matter, who knows. It sure does in Jak2 where switching V and F at 617 (Jak2-v617f) makes a life changing diff for us.
EPguy
in
MPN Voice
2 years ago
Very HAPPY 😊
I started
Pegasys
November last year on 45mcg weekly with venesections various times, now running at every 6 weeks .
Pegasys
was increased to 90mcg weekly. Finally my platelets dropped to 411 & HCT 0.451 (15/07 before venesection).
I started
Pegasys
November last year on 45mcg weekly with venesections various times, now running at every 6 weeks .
Pegasys
was increased to 90mcg weekly. Finally my platelets dropped to 411 & HCT 0.451 (15/07 before venesection).
Vtr1000
in
MPN Voice
2 years ago
Starting low dose Interferon Pegasys
Currently taking 1500mg a day of Hydrea but platelets are still high. After years of consideration my Dr ordered low dose Interferon today (hoping my insurance approves it). I’m only 38 and there seems to be less long term side effects. Anyone else taking this drug and approve? How did your body adjust
Currently taking 1500mg a day of Hydrea but platelets are still high. After years of consideration my Dr ordered low dose Interferon today (hoping my insurance approves it). I’m only 38 and there seems to be less long term side effects. Anyone else taking this drug and approve? How did your body adjust
Zeppelin11
in
MPN Voice
2 years ago
Aquagenic puritis?
It seems strange that it would be caused by the MPN since my counts are so normal and it came out of the blue after over a year on
Pegasys
. Has anyone else experienced anything like this? If so, was it considered an MPN symptom? And, how was it treated? I would appreciate your response.
It seems strange that it would be caused by the MPN since my counts are so normal and it came out of the blue after over a year on
Pegasys
. Has anyone else experienced anything like this? If so, was it considered an MPN symptom? And, how was it treated? I would appreciate your response.
havashan
in
MPN Voice
2 years ago
PV and elevated body temperature of 37.5
I have PV and have been on
Pegasys
135 mcg for 5 months. Could this be a side effect of the
Pegasys
, or would it mean my PV is getting worse. I'm very worried while I wait for my hemtologist to get back to me, it's the holidays now so he's not there.
I have PV and have been on
Pegasys
135 mcg for 5 months. Could this be a side effect of the
Pegasys
, or would it mean my PV is getting worse. I'm very worried while I wait for my hemtologist to get back to me, it's the holidays now so he's not there.
cvita71
in
MPN Voice
2 years ago
Anyone with ET use Besremi?
Could Besremi be an option if
Pegasys
is causing problems?
Could Besremi be an option if
Pegasys
is causing problems?
Mountainbiker12
in
MPN Voice
2 years ago
Finally had BMB. Now diagnosed with MF, should I go on a trial and other questions!
My only symptom is fatigue due to the anaemia, which seems to be improving, not had any
Pegasys
injections for four weeks. Spleen normal. Other than that I’ve never had any symptoms, so I’m well puzzled.
My only symptom is fatigue due to the anaemia, which seems to be improving, not had any
Pegasys
injections for four weeks. Spleen normal. Other than that I’ve never had any symptoms, so I’m well puzzled.
Joetcalr
in
MPN Voice
2 years ago
combo Jakafi and Pegasys
i am just stated the combo treatment of Jakafi 20mg twice perday +
Pegasys
135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...?
i am just stated the combo treatment of Jakafi 20mg twice perday +
Pegasys
135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...?
william-Indo
in
MPN Voice
2 years ago
What and Why is IFN Pegylation?
Besremi is different from
Pegasys
at this circled area. Bes has this single attachment point, PEG has several and they vary. This difference is what Besremi claims as their improvement, the attachment is always the same and gives more consistent effects.
Besremi is different from
Pegasys
at this circled area. Bes has this single attachment point, PEG has several and they vary. This difference is what Besremi claims as their improvement, the attachment is always the same and gives more consistent effects.
EPguy
in
MPN Voice
2 years ago
Comparing two INFs
(
Pegasys
) is absorbed much more slowly and does not reach a steady-state until 4–6 weeks after starting therapy.
(
Pegasys
) is absorbed much more slowly and does not reach a steady-state until 4–6 weeks after starting therapy.
EPguy
in
MPN Voice
2 years ago
telephone or face to face consultations?
I’m on
Pegasys
and normally have about 4-6months supply to make things easier. Thanks
I’m on
Pegasys
and normally have about 4-6months supply to make things easier. Thanks
Vicki_02
in
MPN Voice
2 years ago
Interferon and alcohol interaction
Since starting
Pegasys
about a year ago I've found that I struggle to drink alcohol anymore. I've never drunk heavily (would drink on average twice a week, and up to 2 glasses of wine or a few beers per time) but since starting interferon, even drinking just 1 glass of wine is unpleasant!
Since starting
Pegasys
about a year ago I've found that I struggle to drink alcohol anymore. I've never drunk heavily (would drink on average twice a week, and up to 2 glasses of wine or a few beers per time) but since starting interferon, even drinking just 1 glass of wine is unpleasant!
cgcheets
in
MPN Voice
2 years ago
Covid treatments - Paxlovid or Monoclonals
. 😃 Anyone on
Pegasys
and take Paxlovid or Monoclonals?
. 😃 Anyone on
Pegasys
and take Paxlovid or Monoclonals?
Emmyroos
in
MPN Voice
2 years ago
ET diagnosed at 85 yrs. Failed HU because of side effects but platelets down to 555. Considering age and quality of life issues..........
The Hematologist is looking into our insurance coverage for Besremi or
Pegasys
. He tried the HU a second time after problems last week just to make sure it was really from the meds.
The Hematologist is looking into our insurance coverage for Besremi or
Pegasys
. He tried the HU a second time after problems last week just to make sure it was really from the meds.
endlessfun
in
MPN Voice
2 years ago
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