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Trust in Healthcare session links for Wednesday June 26
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Darryl
Partner
in
Advanced Prostate Cancer
2 months ago
Exercise
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
DiamondSparkles
in
British Liver Trust
2 months ago
Annovis Bio Inc. (NYSE: ANVS) Schedules Investor Webcast to Discuss Parkinson’s Disease Data
For those who may be interested... MALVERN, Pa., June 25, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s Disease (AD)
For those who may be interested... MALVERN, Pa., June 25, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s Disease (AD)
Canddy
in
Cure Parkinson's
2 months ago
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Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
2 months ago
Bisoporol instead of Tildiem
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
sharpedge
in
Atrial Fibrillation Support
2 months ago
Hyberbaric Oxygen Therapy
I have a friend who contracted Lyme disease and recently underwent a series of hyperbaric oxygen therapy sessions. The treatment has completely transformed him and he is now his old self. I have read that this therapy helps Fibromyalgia and other autoimmune diseases and was wondering if anyone knew
I have a friend who contracted Lyme disease and recently underwent a series of hyperbaric oxygen therapy sessions. The treatment has completely transformed him and he is now his old self. I have read that this therapy helps Fibromyalgia and other autoimmune diseases and was wondering if anyone knew
Lassie2
in
PMRGCAuk
2 months ago
My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
2 months ago
Looking for vitamin C infusions in Perth, Western Australia without glutathione?
Dear all Vitamin C infusions were tremendously helpful for my Dad in 2017 when he was diagnosed with metastatic prostate cancer and underwent a prostatectomy, chemotherapy and radiotherapy. Now trying to find them again. Those I have found include glutathione which I think is not good with cancer.
Dear all Vitamin C infusions were tremendously helpful for my Dad in 2017 when he was diagnosed with metastatic prostate cancer and underwent a prostatectomy, chemotherapy and radiotherapy. Now trying to find them again. Those I have found include glutathione which I think is not good with cancer.
TomsD1
in
Advanced Prostate Cancer
2 months ago
how soon after starting orgovyx can one test PSA levels.
Dad started using orgovyx about 17 days ago. It is an Indian brand of relugolix which a reputed company here has started manufacturing here since this year. Doc has written to do a PSA test after 4-6 weeks but I wanted to do it sooner just to check that this generic version of relugolix is being
Dad started using orgovyx about 17 days ago. It is an Indian brand of relugolix which a reputed company here has started manufacturing here since this year. Doc has written to do a PSA test after 4-6 weeks but I wanted to do it sooner just to check that this generic version of relugolix is being
Tinkudi
in
Advanced Prostate Cancer
2 months ago
After Lupron I have been having seizures
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
darrylw
in
Advanced Prostate Cancer
2 months ago
Lupus diagnosis after taking hydroxychloriquine for 14 months
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Diagnosis_Collector
in
LUPUS UK
6 months ago
White Button Mushroom Extract
Hello everyone, Has anyone who has Metastatic Prostate Cancer taken White Button Mushroom Extract at the same time as getting Standard Of Care Treatments? Was this helpful. Thank you in advance.
Hello everyone, Has anyone who has Metastatic Prostate Cancer taken White Button Mushroom Extract at the same time as getting Standard Of Care Treatments? Was this helpful. Thank you in advance.
spolyu
in
Advanced Prostate Cancer
2 months ago
Blood Test for MS Activity Gets FDA Breakthrough Designation
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
BettysMom
in
My MSAA Community
6 months ago
What is the difference between pre-TT Graves' and post-TT Graves?
Hi all, thank you again for all the helpful comments on my last post. I'm really glad to be a part of this community - I only wish I'd known about it a little over 5 years ago, but perhaps that's a post for another day. I wanted to ask if anyone had any insight on what happens to the body when one's
Hi all, thank you again for all the helpful comments on my last post. I'm really glad to be a part of this community - I only wish I'd known about it a little over 5 years ago, but perhaps that's a post for another day. I wanted to ask if anyone had any insight on what happens to the body when one's
lau99
in
Thyroid UK
2 months ago
Surprising TRT research results in PCa patients
I’ve been researching the implications of testosterone replacement therapy (TRT) as it relates to the odds of biochemical recurrence with prostate cancer. I went down this path because my prostatectomy surgeon, who is very well respected in the field (200+ papers) and has performed over 5000 surgeries
I’ve been researching the implications of testosterone replacement therapy (TRT) as it relates to the odds of biochemical recurrence with prostate cancer. I went down this path because my prostatectomy surgeon, who is very well respected in the field (200+ papers) and has performed over 5000 surgeries
ManuteBol1
in
Advanced Prostate Cancer
2 months ago
AST to ALT ratio has become greater than 1 after decades of elevated levels
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
SkinNBones
in
British Liver Trust
2 months ago
Cirrhosis and very scared - please help!
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
puddy68
in
Liver4Life
2 months ago
RB-190 - A drug repurposed - for Parkinsons
There is hope! A drug repurposed for Parkinsons may become a game changer. Dr. Jonathan Sackner-Bernstein is working on a clinical trial (stage 2) for a repurposed drug for Parkinsons patients. He says, and all Parkinson's neurologists know that Parkinsons patients have little dopamine in their brains
There is hope! A drug repurposed for Parkinsons may become a game changer. Dr. Jonathan Sackner-Bernstein is working on a clinical trial (stage 2) for a repurposed drug for Parkinsons patients. He says, and all Parkinson's neurologists know that Parkinsons patients have little dopamine in their brains
Osteopathic
in
Cure Parkinson's
2 months ago
PSA Rising and Falling during Chemo
I have been receiving chemotherapy since November 2023. Started with Docetaxel until it failed after 7 cycles. Switched to Cabazitaxel and currently on the 5th cycle. Since starting the Cabazitaxil my PSA has been raising and lowering. I am currently having some scans done to confirm if there is progression
I have been receiving chemotherapy since November 2023. Started with Docetaxel until it failed after 7 cycles. Switched to Cabazitaxel and currently on the 5th cycle. Since starting the Cabazitaxil my PSA has been raising and lowering. I am currently having some scans done to confirm if there is progression
Islandboy2021
in
Advanced Prostate Cancer
2 months ago
Visual issues; feedback on meetings with the RNIB. 1 good and 2 bad.
Contacted the RNIB and arranged two phone meetings, one with an optometrist and the other with a sight technology expert. Lets start with the bad, visual conditions. The RNIB have no expertise with visual issues after a brain injury. The page on their site about visual issues after stroke is just for
Contacted the RNIB and arranged two phone meetings, one with an optometrist and the other with a sight technology expert. Lets start with the bad, visual conditions. The RNIB have no expertise with visual issues after a brain injury. The page on their site about visual issues after stroke is just for
pinkvision
in
Headway
2 months ago
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