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Autoimmune condition
Hi everyone. The results from my ANA and ENA came back with a broad diagnosis of connective tissue disease. They've ruled out lupus. This plus the thyroid stuff is going to be fun to deal with 😅. The Coeliac disease test was inconclusive because my GP forgot to advise me to have bread for at least 4
Hi everyone. The results from my ANA and ENA came back with a broad diagnosis of connective tissue disease. They've ruled out lupus. This plus the thyroid stuff is going to be fun to deal with 😅. The Coeliac disease test was inconclusive because my GP forgot to advise me to have bread for at least 4
MauveMouse
in
Thyroid UK
3 months ago
little advice from fellow Coeliac’s
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
RJane83
in
Gluten Free Guerrillas
3 months ago
Latest blood tests
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Button83
in
Thyroid UK
3 months ago
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Any info on the drug Dapaglifozen?
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Will1408
in
LUPUS UK
3 months ago
underactive thyroid
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
Carlphilip1958
in
Thyroid UK
3 months ago
Interesting article on why women get higher levels of autoimmune disease
Two versions: [i][/i] [i]
Stanford Medicine-led study shows why women are at greater risk of autoimmune disease
[/i] [i][/i] [i][/i] [i]Research throws light on the mystery of why women are much more prone to autoimmune disorders: A molecule made by one X chromosome in every female cell can
Two versions: [i][/i] [i]
Stanford Medicine-led study shows why women are at greater risk of autoimmune disease
[/i] [i][/i] [i][/i] [i]Research throws light on the mystery of why women are much more prone to autoimmune disorders: A molecule made by one X chromosome in every female cell can
TSH110
in
Thyroid UK
3 months ago
Teesside Lupus Group
Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our meetings please contact me. We are based in the North East. Lets meet for a chat and coffee. Keep on keeping on xxx
Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our meetings please contact me. We are based in the North East. Lets meet for a chat and coffee. Keep on keeping on xxx
Pipido36
in
LUPUS UK
3 months ago
91% of lupus patients report using steroids to manage symptoms
Global survey highlights urgent need for treatments with fewer side effects About 91% of lupus patients report they are currently taking or had been using oral steroids to manage their symptoms, according to a global survey of more than 7,700 patients. The World Lupus Federation (WLF) released findings
Global survey highlights urgent need for treatments with fewer side effects About 91% of lupus patients report they are currently taking or had been using oral steroids to manage their symptoms, according to a global survey of more than 7,700 patients. The World Lupus Federation (WLF) released findings
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Do I Poke The Bear?
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
Sparklingsunshine
in
Pernicious Anaemia Society
3 months ago
Lupus Diagnosis Experience: Webinar Q&A with Beth, Khiry & Maryann - Tuesday 21st May
On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for lupus. We are holding a free webinar on Tuesday 21st May at 6:00pm - 7:30pm (BST) featuring Beth, Khiry and Maryann as they discuss their
On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for lupus. We are holding a free webinar on Tuesday 21st May at 6:00pm - 7:30pm (BST) featuring Beth, Khiry and Maryann as they discuss their
nakita_cambow
Moderator
in
LUPUS UK
3 months ago
How UV affects us
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
IsleofWight1
in
LUPUS UK
3 months ago
GP wants to put me on statins but reluctant to take due to underactive thyroid and liver issues
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
Fergus883782
in
Thyroid UK
4 months ago
Discoid lupus help please!
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Nome11
in
LUPUS UK
4 months ago
Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
4 months ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
4 months ago
New experiences of diagnosis video for World Lupus Day
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Article: Exciting time for biological use in Lupus
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
VeeWat
in
LUPUS UK
4 months ago
PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
BettysMom
in
My MSAA Community
4 months ago
Atarax 25mg...has anyone used it?
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it was OK to take with my other meds I also searched online and saw its also used to treat lupus rashes and itchy skin. I'm hoping it might help my
AnonLupi
in
LUPUS UK
4 months ago
Help - trouble with diagnosis
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female, and for about 2 years on and off I have had a number of lupus symptoms, Raynaud's in my hands, joint pain, horrendous fatigue that means I sleep
Severusisismydog
in
LUPUS UK
4 months ago
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