Experiences with

Octagam

After a red cell aplasy early this year with HB dropping to 8,5 I got IgG Octagam every three month and all blood counts are green with HB of around 13,0 and 13,5. Early this week another MRD testing showed, much to my surprise again 1%, means no movement since 3/2023. I am satisfied.

I have a severe proctitis. The Dr. prescribed me with a Prednisolone suppositories 5mg twice daily plus started oral Mesalazine as Octasa 2.4g/day. I’m on my 3rd week of the medication. But is not working properly. I’m taking Octasa in the morning before breakfast (I tried to take it before dinner

Hi everyone, I'm Claire and was diagnosed with mild/moderative ulcerative colitis last year. Apart from an initial flare up (followed by diagnostic procedures leading to the diagnosis), my only symptoms have been an uncomfortable/slightly painful feeling in my stomach/upper intestine. My gastroenterologist

Hi everyone, I'm Claire and was diagnosed with mild/moderative ulcerative colitis last year. Apart from an initial flare up (followed by diagnostic procedures leading to a diagnosis), my only symptoms have been an uncomfortable/slightly painful feeling in my stomach/upper intestine. My gastroenterologist

I started taking Octasa for Crohns in October 23. Just had blood tests (for another issue) and dr called to say that my liver enzyme markers were raised (ALT 255, AST 99, ALP 239, GT 334.. all substantially above the top end of normal) and they want to do an ultrasound to check my liver. The only difference

I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then

Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher

Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side

Hi all! First post! I’ve been having problems with frequent diarrhoea for 4 years, finally last week got diagnosed with ulcerative colitis. I’ve been prescribed Octasa 800mg 6 times per day but have people got worse before they got better? Started them last Tuesday but by Thursday started aching all

Hi. I was diagnosed with UC 21 years ago when I was 19. For the most part I have been ok, with a few bad flares over the years treated with steroids. Lately I have been flaring more, bloods always fine, never any blood in my stools, but always have mucus and low left sided pain. Last 2 calprotectin

Hi, I'm newly diagnosed with "indeterminate colitis". Just been prescribed octasa 800 X 3 per day. Any thoughts on whether to take as 3 separate doses or all in one go would be welcome. Thank you.

Hello Does anyone feel chest ache since being on Octasa 1600mg per day.

Hi everyone Has anyone experienced maroon colour on the toilet tissue after wiping. I’ve only had this since being on Octasa 1600mg per day for my Ulcerative colitis.

Hi everyone I had my colonoscopy on Saturday and I have been diagnosed with ulcerative colitis. I have been prescribed with Octasa 1600mg to take but is it best to take these in the morning or evening? Any advise would be appreciated. Regards

had a problem about 15 years ago and had various tests and finally a colonoscopy. the results didnt show conclusively that i had uc but nevertheless was prescribed octasa 6 tablets per day. over the years that followed i reduced the tablets down to 1 in the morning and 1 at night. i went for another

Have been prescribed Prednisolone tablets, Octasa tablets and Ad-Cal. Shocked at how many I have to take every day, on top of the meds I already take.

Hi everyone I was diagnosed with moderate UC 5 years ago and am lucky to have only had 2 flares - the first one being brought on by the colonoscopy.| Occasionally I have an accident when I don't quite make it to the loo in time - fortunately whilst I'm still at home. I had one a few days ago and saw

Morning Wondered if anyone else has had issues with immune system since being diagnosed with an Mpn and being treated with peg interferon I started on 45mcg of peg in Jan 2021 thus was increased to 90mcg in May 2021 In June I had a positive Ena profile and was diagnosed with Sjogrens syndrome - not

Finally diagnosed with mild to moderate UC. Such a relief to no I haven't been going mad after 15 years. I have been prescribed Octasa 800mg 6 tablets per day. Has anyone felt a little odd after starting to take these. I have had a headache since starting the course on Friday and I have felt kind of

Hi not been on here for a while, I was in hospital at the beginning of December for a week losing blood and going to the loo a lot , put me on prednisone steroids tapering down over eight weeks. I was on Pentasa granules 2g morning and night. I ask to go back on to octasa which I have had before and