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Ocrevus
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New Busy Member
Mixed media Artist changing from
Ocrevus
to Kesimpta. If you are taking either I would like to hear about it. Thanks. Let’s have cocoa
Mixed media Artist changing from
Ocrevus
to Kesimpta. If you are taking either I would like to hear about it. Thanks. Let’s have cocoa
Womenintec
in
My MSAA Community
2 years ago
Sort of hiding from medical stuff
My
Ocrevus
shipment got delayed by weather on the west coast and so my infusion is late, still waiting on many screening results and a couple more to go through before all done so lots of medical stresses right now, but has sort of pushed me to finish up some things.... ie that guitar and an electric
My
Ocrevus
shipment got delayed by weather on the west coast and so my infusion is late, still waiting on many screening results and a couple more to go through before all done so lots of medical stresses right now, but has sort of pushed me to finish up some things.... ie that guitar and an electric
Hidden
in
My MSAA Community
2 years ago
Body Shutdown
Didn't answer my questions and just noted to stay on
Ocrevus
and do PT. After 4/18 I called back to try to get an appointment and lucked up with an appointment on 4/28. I just wanted to get insight from my doctor in person.
Didn't answer my questions and just noted to stay on
Ocrevus
and do PT. After 4/18 I called back to try to get an appointment and lucked up with an appointment on 4/28. I just wanted to get insight from my doctor in person.
Diva1976
in
My MSAA Community
1 year ago
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In Need of Kesimpta Side Effects Info
Anybody else have intolerable side effects from this or
Ocrevus
which led you to stop taking it? I have another dose scheduled next week and I'm not looking forward to it. Looking forward to hearing from you. And P.S. I am so grateful to you all for being there and sharing.
Anybody else have intolerable side effects from this or
Ocrevus
which led you to stop taking it? I have another dose scheduled next week and I'm not looking forward to it. Looking forward to hearing from you. And P.S. I am so grateful to you all for being there and sharing.
Helpmeup
in
My MSAA Community
2 years ago
11 Feb 2023 Slowly but surely
I did the research, asked the doctors and came up with
Ocrevus
. Believe me, I want the best for YOU. If your personal ms neurologist has an alternate suggestion, feel free to ignore me.
I did the research, asked the doctors and came up with
Ocrevus
. Believe me, I want the best for YOU. If your personal ms neurologist has an alternate suggestion, feel free to ignore me.
RoyceNewton
in
My MSAA Community
2 years ago
1st time Ocrevus infusion
Hi MS family, I will have my very 1st
Ocrevus
infusion next Thursday. Anyone out there that is willing to tell me line by line what to expect? Unfortunately I am also having issues with my neurologist, he retired without notifying me so I don’t have someone following me right now.
Hi MS family, I will have my very 1st
Ocrevus
infusion next Thursday. Anyone out there that is willing to tell me line by line what to expect? Unfortunately I am also having issues with my neurologist, he retired without notifying me so I don’t have someone following me right now.
RTR1
in
My MSAA Community
2 years ago
Ocrevus post infusion gum pain
I've been on
Ocrevus
for over two years and tolerating the infusion and pre/post mostly fine. I had a dental checkup and cleaning two months ago and was told I'm doing very good brushing and flossing. However, a couple weeks after infusions, I notice my gums are very sensitive when flossing.
I've been on
Ocrevus
for over two years and tolerating the infusion and pre/post mostly fine. I had a dental checkup and cleaning two months ago and was told I'm doing very good brushing and flossing. However, a couple weeks after infusions, I notice my gums are very sensitive when flossing.
SuniShun
in
My MSAA Community
2 years ago
Belated thank yous
I don’t think Aubagio is controlling my symptoms anymore and was thinking
Ocrevus
, but after reading experiences with hair loss I’m not sure.
I don’t think Aubagio is controlling my symptoms anymore and was thinking
Ocrevus
, but after reading experiences with hair loss I’m not sure.
PWilli
in
My MSAA Community
2 years ago
OCrevus and hair loss
I’m so upset that I with no warning am now in position of losing my hair. This is aweful. I don’t know if this has even helped. I have only had my first dose that was broke up into two and my first full treatment is supposed to be later part of June but I don’t think I’m going to continue. I’m hoping
I’m so upset that I with no warning am now in position of losing my hair. This is aweful. I don’t know if this has even helped. I have only had my first dose that was broke up into two and my first full treatment is supposed to be later part of June but I don’t think I’m going to continue. I’m hoping
Scooterboo1973
in
My MSAA Community
2 years ago
Stopping Ocrevus-opinions/thoughts?
I have been on
Ocrevus
since July 2020. My WBC has been chronically low, the last infusion was almost held but I was able to get them to do it despite my WBC being at 2.7 which is lower than their 2.9 threshold for infusions.
I have been on
Ocrevus
since July 2020. My WBC has been chronically low, the last infusion was almost held but I was able to get them to do it despite my WBC being at 2.7 which is lower than their 2.9 threshold for infusions.
MoparMom
in
My MSAA Community
2 years ago
Do y'll get tired after...
Do yall get exhusted for a few days after your
Ocrevus
lnfusion? I had mine yesterday, everything went as planned! Even got out of there 5 mins early! 🙂🤣 Now, lm exhusted! Anyone else get like this? 🤗💕🌠
Do yall get exhusted for a few days after your
Ocrevus
lnfusion? I had mine yesterday, everything went as planned! Even got out of there 5 mins early! 🙂🤣 Now, lm exhusted! Anyone else get like this? 🤗💕🌠
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
Ughhh!
Anyone else deal with extreme pain after
Ocrevus
? Anyone? Please tell me lm not starting to have an allergic reaction to it.. So... Anyone? Hi Guys! 🤗💕🌠
Anyone else deal with extreme pain after
Ocrevus
? Anyone? Please tell me lm not starting to have an allergic reaction to it.. So... Anyone? Hi Guys! 🤗💕🌠
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
My first post
I had an
ocrevus
infusion at the end of November, so I'm just waiting for the 12 weeks before I can catch up with my vaccines 🙃 cannot wait!
I had an
ocrevus
infusion at the end of November, so I'm just waiting for the 12 weeks before I can catch up with my vaccines 🙃 cannot wait!
Cwright170994
in
My MSAA Community
2 years ago
Thank you everyone!
Take
Ocrevus
, and take mega pain meds after, because its been working? Orrrr Switch to? IDK ?? 🤗💕🌠 Yall are the smartest! 🙂
Take
Ocrevus
, and take mega pain meds after, because its been working? Orrrr Switch to? IDK ?? 🤗💕🌠 Yall are the smartest! 🙂
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
On a positive note
Ocrevus
last week in January, 3rd time on 5 month intervals grateful no noticeable gap issues. Peace my friends, welcome 2023, not looking for any miracles just some much needed peace. Buster and Bella besties in the making.
Ocrevus
last week in January, 3rd time on 5 month intervals grateful no noticeable gap issues. Peace my friends, welcome 2023, not looking for any miracles just some much needed peace. Buster and Bella besties in the making.
NanaCC
in
My MSAA Community
2 years ago
Ocrevus
Anybody taking to
ocrevus
? Sorry I don't know if I spelled it right.How have you felt on it, do you think it has benefited you?
Anybody taking to
ocrevus
? Sorry I don't know if I spelled it right.How have you felt on it, do you think it has benefited you?
mayestas
in
My MSAA Community
2 years ago
Cold sores and immuno surppresed
I also just have my
Ocrevus
therapy barely a month ago so my immunity is shot! I have never been one for essential oils but dang it they seem to be helping the most.
I also just have my
Ocrevus
therapy barely a month ago so my immunity is shot! I have never been one for essential oils but dang it they seem to be helping the most.
AriSmyelin
in
MS Society
2 years ago
If you are on a b-cell depleter, (like Ocrevus), be vigilant and don’t end up like me.
I’m 4 weeks post major surgery caused by a problem related to my intake of
Ocrevus
. Its been a struggle for the past 10 months finally culminating in surgery to clean up the problems. At one point I was in severe pain and doctors couldn’t figure out what was wrong.
I’m 4 weeks post major surgery caused by a problem related to my intake of
Ocrevus
. Its been a struggle for the past 10 months finally culminating in surgery to clean up the problems. At one point I was in severe pain and doctors couldn’t figure out what was wrong.
Raingrrl
in
My MSAA Community
2 years ago
my new MS limit post hip surgery
I'll finally get my
Ocrevus
treatment on Saturday (after 10 months hiatus) then I can work on rebuilding muscle and start on pushing the MS limit again, hopefully! Never giving up!
I'll finally get my
Ocrevus
treatment on Saturday (after 10 months hiatus) then I can work on rebuilding muscle and start on pushing the MS limit again, hopefully! Never giving up!
anaishunter
in
My MSAA Community
2 years ago
MS at 55, why me?
I will be receiving
Ocrevus
next month. Tried a steroid infusion for a week and didn't help with symptoms and made me feel terrible so won't be doing that again. I have foot drop and weakness on the right side.
I will be receiving
Ocrevus
next month. Tried a steroid infusion for a week and didn't help with symptoms and made me feel terrible so won't be doing that again. I have foot drop and weakness on the right side.
RTR1
in
My MSAA Community
2 years ago
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