The Pain! The Agony! The Defeat of Happiness! 😭😢 l felt like l was hit by a Mack truck! Or someone gave me steroids, and l didnt know. (They didnt, l checked my chart) lts been a week since my O infusion, and during that wk, OMG if there had been a fire? I would have just watched it burn around me...🤣 Cause l couldnt move cause it hurts!
Anyone else deal with extreme pain after Ocrevus? Anyone? Please tell me lm not starting to have an allergic reaction to it.. So... Anyone?
Hi Guys! 🤗💕🌠
Hey Jes, sorry you are going through this. Hoping for better days ahead.
Hi Sandydemop TY! You n me both! 🤗💕🌠
oh my! Definitely call ur Neuro.
Oh no Jesmcd2 Sounds like an allergic reaction. Call your neuro ASAP!
I can walk, kinda, now... and move my head, and shoulders, n arms, without screaming in pain... 🤣 so lm getting better🙂🤗💕🌠
glad it’s almost gone. I never experienced pain with my Ocrevus, tho I did have the infusion steroids.
Hi Jesmcd2 🙂Glad to hear you are doing better. But you still should talk to your neurologist before next infusion.
🙏❤Lisa 💕
BTW funny cartoon 🤣
Im going to email them write <~ 🙂 now! Cause this just stinks! And it hurts!! N TY, l tried to scratch out the bad word, but like my life right now, its just not working so good! 🤗💕🌠
Sorry 🙏 🥰😇❤💕
Glad you are getting better but it's not sounding very good. That's what was happening to me. I started feeling worse with every infusion. I posted earlier that with my last one I didn't do steroids & felt worse the next day & it kept getting worse. Called my neuro & she said we need to find another DMT. That's when I found Vumerity & I'm doing great on it. Ocrevus isn't for everyone, unfortunately.
No extreme pain after O infusion for me, Jesmcd2 . Please let your neurologist know straight away. 
Maybe because it was still classified as a new drug when I was on it, but I used to get a rep from Ocrevus who'd call me when my dose shipped to the neuro and then a follow-up call to see if I had any problems with it. I'm assuming they're not doing that anymore, but you might want to track down their headquarters and give them a call. The staff I spoke with were always very nice.
I have never experienced this! Talk to your neurologist don't wait please
I'm not sure which pain you mean. I had bone pain for a day or two afterwards, and horrible pain from spasticity for months, but it looks like you're getting over it a lot quicker than I did. If it is spasticity and you take something for it, you can ask your MD if your medication could be changed for the time when it's the worst. GL!
oh my have you talked to the doctor ...have never had all of this pain you are talking about ...love the poster so cute and so true watch out for us for we are warriors....we will not be messed with ...you call the doctor okay ...loads of love ...
I have never expierienced any pain whatsoever. Please call your doc and find out whats up.
Awnnn, so sorry to hear that my friend. My infusions are Sedoul Medrol (think I spelled it right) they make you sick too, or at least me! Hang in there my,. friend. One day at a time! Blessings and Peace. NeeC
So sorry Jes!😲 I hope you feel better really soon.❤️
Jes, I am so sorry you are going through this. I agree with all the other good advice you have gotten. Your Dr. must know about this, even though you are getting better. Please call or email him/her today. If you can email your Dr. directly, as I can, that would be better than a phone call and leaving a message for him. Feel better my friend/sister and do what we tell you to do! Linda
I hope you feel better soon. Sorry you’re going through this. I’ve been on Ocrevus since January 2019 and haven’t had this kind of experience. Keep us posted on what you find out and how you’re doing
Sorry u ere going through. You need to call your Ms nurse. Hope you get better soon. Many other illnesses are worse than Ms. Be happy.
I don't take that but have not heard others respond to theirs like that. Call your neuro!!!
i never have had that reaction! Im glad the pain is almost gone for you and you can function!
Sorry about your pain. I hope you feel better soon. 🙏🏽
How long have you been on Ocrevus? I have been on it for 2-1/2 years with no problems so far.
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