Ocrevus

[mayestas]

Anybody taking to ocrevus? Sorry I don't know if I spelled it right.How have you felt on it, do you think it has benefited you?

[Jesmcd2 CommunityAmbassador]

Hi mayestas lm on it, and it all depends on what you mean about, do you feel it benefits you? As no DMT can stop MS we just hope to slow it down🙂 Slow it way down! 🙂 Personaly, l am doing good on it, only 1 new lesion. For me, that is great! 🤣

Is there a reason your neuro is changing you? 🤗💕🌠

[mayestas in reply to Jesmcd2]

I have been on gylenia for many years now and my conditioned has worsened in the last 6 months or so. Not with new lesions but just more back pain, easily tired, and more difficulty walking loss of balance.

[Jesmcd2 CommunityAmbassador in reply to mayestas]

There are alot of us on ocevus here. I dont know if it helps with all that? But if your neuro thinks itll help go for it! 🤗💕🌠

[Sweetheartonvdayl in reply to mayestas]

Hi mayestas 🙂I've been on gylenia, but I had a major exasperation!!! I could even get out of the bathtub w/o assistance. So after a course of steroids (which we all know), I asked to be on tysabri & after 7yrs (they usually take you off after 5yrs for 😨 fear 😱 of PML-infection your brain, for lack of getting too technical. I have not been on ocrevis yet 🤞.

Hope all goes well for you.

🙏❤Lisa 💕

[NorasMom]

I stopped taking it because I was having too many side effects, but I still believe that it's the best drug currently on the market for MS. In my case, my neuro felt that I was too far gone to get any use out of DMT's in the first place, so it wasn't a big deal for me to stop it.

[mrsmike]

Hi, I've been on Ocrevus for about 3 years. I've had no new lesions, but have progressed slowly. Hopefully slower than it would have been without. Let us know what you decide.

[Elizt3 in reply to mrsmike]

that’s been my exact experience. Started Jan 2019. No new lesions, but slowly getting worse. But maybe that’s expected (the slowly getting worse part) in someone who’s had this for 26 years?

[Sweetheartonvdayl in reply to Elizt3]

Hi 🙂 Ethyrum I've had MS for half my life ( only time I can say this-being 54 & all). But you're right, MS does get worse , no matter what DMT Your on...

🙏❤Lisa💕

[kwhompus]

The effects of the anticipation of the infuscion is far worse than the effects of Ocrevus. I always feel very tired after my infuscion , but that is the Benedryl they give you with the infuscion. Does it work ??? It's a catch 22 with PPMS. I may progress quicker w/o Ocrevus, I may not. Either way I progress. Please ask your doctor for statistics on how and who benefits from Ocrevus.

[Cutefreckles72]

Hi mayestas, I have been on Ocrevus for three years. I have PPMS, and I know Ocrevus won't cure it and I have accepted that. I just need it to slow the progression down in three years I went from walking to riding on a mobile scooter. I miss walking. 🚶🏽

[hairbrain4]

I was on Ocrevus for 2 years then it stopped working for me & I changed to Vumerity & doing great.

[Sweetheartonvdayl in reply to hairbrain4]

Hi 🙂 hairbrain4 Right now ,I'm currently on vumerity & seems to be working for me. ( until it doesn't)

🙏❤Lisa💕

[kdali]

I had a weird time on it with progression and drug reactions, but believe it did cut my relapse rate by half. I switched to Mavenclad this year.

[Neworleanslady]

ive been on ocrevus 2 years. Non new lesions. I started having to use a rollator and a wheelchair this year but doctor took me off baclofen and i now walk with rollator only occasionally. I like getting the infusion because they give me a warm blanket and i sleep for 6 hours (with 1-2 bathroom trips). Sometimes i have good days, sometimes not. The hour that i go to bed at night fluctuates a bit so I’m not sure what symptoms are from ocrevus or which are from amount of sleep i get at night. I feel fine to drive myself the 1 1/2 hours home from infusion center after

[Mollyabigail]

Hi, mayestas! I have had 4 Ocrevas infusions. They seems to last about 4 months for me, then I go into that 'crap gap.' My MRI's are unchanged. No side effects.

[Tazmanian]

I'm on ocrevus and I'm very happy with it

[twooldcrows]

yes i have used it since it first came out May 2017 love being on it has been so good...good luck on it ..it has helped me so much.......love and much happiness...

[pamgarner]

I have been taking it for 5 years,I can't say there is a miracle in my walking and fatique,but for the last 5 years i have had no new lesions on my brain,so i would say thats the whole point of ms meds....good luck