Completed first half of Ocrevus today! Sailed right thru no issues!
First half Ocrevus Done!: Completed first... - My MSAA Community
First half Ocrevus Done!
Woohoo!! π
Yay!
Well done, let's hope it continues and it really helps you. π π¦ π
Thanks, I know it will been doing great on Rituxan!
What kind of ms do you have? π π¦
My neurologist doesn't classify , I only have issues from waist down, stiff legs, foot drop, and some bladder issues.
I hope Ocrevus works even better than Rituxan for you. I just started last week, so too soon to know for me. Insurance usually requires the prescribing physician to designate the type of MS, at least in the U.S., but that's great that hasn't been a problem. Do you have relapses, or has your disease been mostly stable?
Rituxan? Why do you take this medication? Not trying to be nose. The mire I learn the better I feel
SlmHarris, I started Rituxan last summer when I was in the hospital,had lost everything from waist down. I had been doing cytoxan but had finished all the dose I could do, since Rituxan is the synthetic version of Ocrevus we did it until Ocrevus was approved. I think it really helped me, they were talking nursing home because I couldn't take care of myself. Happy to say I am in my own condo which I closed on while in rehab living alone with my cat. My siblings help with household things I can't manage but I take care of me.
So good to hear, cnichols
High 5! Still waiting on getting thyroid back in range. Then start my process to get on Ocruvis!
So proud for you that its not bothering you!
I have read the infusion can take up to 3 1/2 hours is that correct?
Can you share a little detail?
I am wishing you the best of best!
We started pre Meds at 830, Ocrevus at 845, finished at 1145, had to stay for 1 hour so done at 1245. She accelerated my rate a little, said next time they will accelerate even more because I had no reaction. I had already done 3 rounds of Rituxan which is basically
the same as Ocrevus. Only thing I am noticing today is a little sore throat but that could be from no sleep 2 nights in a row and air conditioning is set at 65 because of humidity.
I did too in Madison, WI. Got new hope.
Thank you for sharing! I like to get hand on informationΒ‘
Please keep us updated.
Wishing this medication is a blessing for you!
SlmHarris , I started Ocrevus last week, and for me I was at the infusion center eight hours. Everyone's different, so keep your schedule as flexible as possible. I did a post about the whole process and experience, you can search for it under my name if you're interested.
dianekjs . I cannot find your post about your experience. I must be doing something wrong, I was interested to see how you got on. Blessings Jimeka π¦ π
I am doing great! No problems during infusion. Only slept 2 hours last night, not uncommon for me. Today did 2 loads of laundry, cleaned bathrooms. It is 12:45 am here still up.
Here you go jimeka , the main post discusses the plan, and I update on how the experience went later in the comment thread. Hope it's helpful. π
Congrats! Its wonderful to hear you had no issues with the first infusion.
cnichols , hurrah!!!! Keep us posted! I'm thrilled for you!
Fantastic!
It's now been 3 days, feel awesome! Another great day!