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Ocrevus
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Ocrevus
I've had the first 2 and the 6 month follow-up on
Ocrevus
. I haven't noticed any improvement as far as my walking but have noticed that my hair has gotten thinner and my scalp gets very itchy. I called the
Ocrevus
people and they said they haven't heard that from anyone.
I've had the first 2 and the 6 month follow-up on
Ocrevus
. I haven't noticed any improvement as far as my walking but have noticed that my hair has gotten thinner and my scalp gets very itchy. I called the
Ocrevus
people and they said they haven't heard that from anyone.
sushimylove
in
My MSAA Community
6 years ago
Ocrevus
Well I may not be able to get the 2nd half I'm going to hospital today to see if I have an infection in my bladder or something couldn't get into my doctor life just gets harder hopefully all is good
Well I may not be able to get the 2nd half I'm going to hospital today to see if I have an infection in my bladder or something couldn't get into my doctor life just gets harder hopefully all is good
Jackjosh
in
My MSAA Community
6 years ago
Treatment
I am currently on
Ocrevus
from Genentech.
I am currently on
Ocrevus
from Genentech.
mrlknpp
in
My MSAA Community
6 years ago
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Ugh 🙁Shingles
once on
Ocrevus
. He explained
Ocrevus
depletes mature B cells, not the new ones and T cells are still preserved. So, no need to live in a bubble 😊 So, the shingles rash is fading, the pain is lessening --but not gone (a little gabapentin seems to help at night but I hated adding more meds 🙁).
once on
Ocrevus
. He explained
Ocrevus
depletes mature B cells, not the new ones and T cells are still preserved. So, no need to live in a bubble 😊 So, the shingles rash is fading, the pain is lessening --but not gone (a little gabapentin seems to help at night but I hated adding more meds 🙁).
erash
in
My MSAA Community
6 years ago
Ocrevus infusion
Do any of you have RA and MS and have ever been on the infusion
Ocrevus
? And if you have, how did you do on it?
Do any of you have RA and MS and have ever been on the infusion
Ocrevus
? And if you have, how did you do on it?
Zeke-17
in
NRAS
6 years ago
I fired my neurologist!
I notice many of you with SPMS are on
Ocrevus
with good results so far. That’s when I decided to fire him and find an MS clinic with MS specialists. I just refuse to give up that easily - I’m sure many of you can understand! I found a clinic up in Denver - Rocky Mountain MS Center.
I notice many of you with SPMS are on
Ocrevus
with good results so far. That’s when I decided to fire him and find an MS clinic with MS specialists. I just refuse to give up that easily - I’m sure many of you can understand! I found a clinic up in Denver - Rocky Mountain MS Center.
Hidden
in
My MSAA Community
6 years ago
Follow up + TB test and Ocrevus
2 reliable sources indicate as long as TB has been ruled out, it's ok to begin
Ocrevus
. Just waiting on my insurance approval now 😊
2 reliable sources indicate as long as TB has been ruled out, it's ok to begin
Ocrevus
. Just waiting on my insurance approval now 😊
erash
in
My MSAA Community
6 years ago
Feeling defeated
Then after almost three months my Blue Cross insurance upheld my previous denials for
Ocrevus
. They claim
Ocrevus
is experimental and refuse to cover it!
Then after almost three months my Blue Cross insurance upheld my previous denials for
Ocrevus
. They claim
Ocrevus
is experimental and refuse to cover it!
Hidden
in
My MSAA Community
6 years ago
Ocrevus - 30 days later
I had my 2nd 1/2 dose of
Ocrevus
on July 14th and here's where I'm at 30 days later.
I had my 2nd 1/2 dose of
Ocrevus
on July 14th and here's where I'm at 30 days later.
anaishunter
in
My MSAA Community
6 years ago
Hepatitis B vaccine before Ocrevus?
Anyone have to get a Hepatitis B vaccine prior to starting
Ocrevus
? I was asked to get the vaccine (which is actually a total of three doses; get the first two doses now) before starting O.
Anyone have to get a Hepatitis B vaccine prior to starting
Ocrevus
? I was asked to get the vaccine (which is actually a total of three doses; get the first two doses now) before starting O.
Elizt3
in
My MSAA Community
6 years ago
I'm new here
Started taking
Ocrevus
twice a year and I'm doing better except for fatigue that's better but still awful. I am doing online graduate school in social work and I'm pretty excited to help people in the future. I love going out to eat and watching movies. Looking forward to meeting you all! :D
Started taking
Ocrevus
twice a year and I'm doing better except for fatigue that's better but still awful. I am doing online graduate school in social work and I'm pretty excited to help people in the future. I love going out to eat and watching movies. Looking forward to meeting you all! :D
Hidden
in
My MSAA Community
6 years ago
My 3rd Ocrevus Infusion is August 15th for PPMS
I just wanted to know how many people on here that have PPMS and if you are getting
Ocrevus
to treat it ? And if you have seen any Improvement in your Symptoms?
I just wanted to know how many people on here that have PPMS and if you are getting
Ocrevus
to treat it ? And if you have seen any Improvement in your Symptoms?
ExSoCal54
in
My MSAA Community
6 years ago
Where to find Financial Assistance for your Ocrevus Infusion.
I was rather upset and thought I couldn't afford to have the
Ocrevus
infusion start.
I was rather upset and thought I couldn't afford to have the
Ocrevus
infusion start.
Fancy1959
CommunityAmbassador
in
My MSAA Community
6 years ago
Ocrevus infusion
Sitting in the chair getting my 4th infusion. 1yr in. Haven't felt any different but I also don't seem to be getting worse.
Sitting in the chair getting my 4th infusion. 1yr in. Haven't felt any different but I also don't seem to be getting worse.
Yooper
in
My MSAA Community
6 years ago
Ocrevus
I have read many questions about this drug. I've never heard of it and would like to know why so many people are nervous about getting this. I would also like to know what it does in the long run. Can you help me out?
I have read many questions about this drug. I've never heard of it and would like to know why so many people are nervous about getting this. I would also like to know what it does in the long run. Can you help me out?
MsGelfling1
in
My MSAA Community
6 years ago
Anyone have latent TB and on Ocrevus?
Somewhere I read that TB is a risk with specific DMTs, such as
Ocrevus
. And while my neuro checked my Hep B status, they did not discuss the latent TB that's likely buried in my chart. Has this been an issue for anyone? TIA
Somewhere I read that TB is a risk with specific DMTs, such as
Ocrevus
. And while my neuro checked my Hep B status, they did not discuss the latent TB that's likely buried in my chart. Has this been an issue for anyone? TIA
erash
in
My MSAA Community
6 years ago
Date set
August 9th I go get my first half dose of
ocrevus
I'm really nervous wish me luck actually it came a lot faster than I had seemed it would happen but hopefully all goes well keep me in y'all's prayers
August 9th I go get my first half dose of
ocrevus
I'm really nervous wish me luck actually it came a lot faster than I had seemed it would happen but hopefully all goes well keep me in y'all's prayers
Jackjosh
in
My MSAA Community
6 years ago
Ocrevus (financial) help
A question for those of you that got assistance for
Ocrevus
from Genetech....did they cover the cost of the drug itself AND the costs associated with the infusion? My insurance is still denying me and my neuro said we should go to Genetech to see if they’ll pay for the
Ocrevus
.
A question for those of you that got assistance for
Ocrevus
from Genetech....did they cover the cost of the drug itself AND the costs associated with the infusion? My insurance is still denying me and my neuro said we should go to Genetech to see if they’ll pay for the
Ocrevus
.
Hidden
in
My MSAA Community
6 years ago
Amandatine for fatigue; anyone else on this?
I started
Ocrevus
at the end of May 1st ½ injection and 2ns early June. My fatigue has gotten butter but my new normal had me passing out at 9 not able to help put the kids to bed and feeling like 8/9 hours asleep was never enough.
I started
Ocrevus
at the end of May 1st ½ injection and 2ns early June. My fatigue has gotten butter but my new normal had me passing out at 9 not able to help put the kids to bed and feeling like 8/9 hours asleep was never enough.
JMWCO
in
My MSAA Community
6 years ago
Talking about MS with my son
That’s why I am on Ampyra, I tried the Trileptal and now I am taking the
Ocrevus
. Well I am glad I had that talk with him. He is a strong young man he has helped me out a lot of times. In many ways. I think it is a good thing to let your children know what is going on with your disease.
That’s why I am on Ampyra, I tried the Trileptal and now I am taking the
Ocrevus
. Well I am glad I had that talk with him. He is a strong young man he has helped me out a lot of times. In many ways. I think it is a good thing to let your children know what is going on with your disease.
ssdw1958
in
My MSAA Community
6 years ago
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