Ocrevus infusion : Do any of you have RA and MS and... - NRAS

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Ocrevus infusion

Zeke-17 profile image
5 Replies

Do any of you have RA and MS and have ever been on the infusion Ocrevus? And if you have, how did you do on it?

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Zeke-17 profile image
Zeke-17
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oldtimer profile image
oldtimer

I gather it's only just been approved for use in the UK:

pharmatimes.com/news/nice_u...

nomoreheels profile image
nomoreheels

Whilst it is an immunosuppressive med it's not for treating RD, but it is for treating MS. As this is the NRAS site where we could help you with meds for treating RD we're not knowledgable about MS. I'm not sure but I think there's only one other member here who here has both conditions, they're in the UK where Ocrevus has only recently been approved in England & Wales by NICE, only for relapsing remitting MS, it's not been approved for early primary progressive MS. Maybe you'd have more luck asking on one of the MS sites, as you're in the US maybe either the HU MS site My MSAA Community healthunlocked.com/mymsaa or or the UK equivalent mstrust.org.uk or have a read about Ocrevus (ocrelizumab) here mymsaa.org/publications/msr...

Zeke-17 profile image
Zeke-17 in reply to nomoreheels

Ok Thank you

nomoreheels profile image
nomoreheels in reply to Zeke-17

You're welcome. I hope you manage to find some help.

kamille profile image
kamille

Hi Zeke,

I am responding to your post because it sounds like my symptoms but a little different. I was curious to see that you were diagnosed with MS. I am currently diagnosed with PMR which has a lot of pain and fatigue. I am not suggesting that is what you have. I tis a horrible struggle to figure these things out. Just when I was feeling like giving up I have come upon some good doctors. As far as the MS is concerned, my Dad had it and did very well with it. Don't think the worse as it has many different courses.

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