I had my 2nd 1/2 dose of Ocrevus on July 14th and here's where I'm at 30 days later. (Full disclosure: I have no idea if any of this is related to treatment or not. who knows)
- mild tingling in left foot, which I had on and off in June depending on how active I am, is gone
- last week's trip to hot area (100 degree+) did not impact me at all. Same trip in May in same weather made me feel horrible - nauseous, floaters in my eyes, bad vision... so maybe progress?
- not so good is some mild electricity feelings in my left knee, that started 3 weeks ago. No pattern to it. Got worse as I traveled. Seems to disappear now that I'm back home.
(note that so far my symptoms have been mild and invisible despite 20+ lesions on 1st MRI leading to DX).
Next stop is neuro visit mid-September but I'm not expecting anything new or different out of it. What can he say? Next MRI is not until next January.
It’s good to hear about some potentially good signs. Keep us posted please!