Search
Search
About
Log in
Join
Experiences with
Ocrevus
Posts
Communities
819 public posts
Filter results
jcv
JCV has nothing to do with
Ocrevus
. It is a problem related to Gilenya, so unless "YOU" plan on taking Gilenya it should not concern "YOU" When it comes to side effects read the forms they give "YOU" if "YOU" can as they are in small print.
JCV has nothing to do with
Ocrevus
. It is a problem related to Gilenya, so unless "YOU" plan on taking Gilenya it should not concern "YOU" When it comes to side effects read the forms they give "YOU" if "YOU" can as they are in small print.
RoyceNewton
in
My MSAA Community
6 years ago
Finally got my appoint for Ocrevus Infusion!
It took forever but I finally got an appointment for my first
Ocrevus
infusion! Sept. 10 at 9:30 am. I had to jump through hoops to get approvals from insurance, then finding a way to pay for the balance insurance doesn't pay.
Ocrevus
is picking up the balance.
It took forever but I finally got an appointment for my first
Ocrevus
infusion! Sept. 10 at 9:30 am. I had to jump through hoops to get approvals from insurance, then finding a way to pay for the balance insurance doesn't pay.
Ocrevus
is picking up the balance.
hairbrain4
in
My MSAA Community
6 years ago
Good news, bad news, and next steps
Not sure what to attribute this to: 1st round of
Ocrevus
treatment, diet or lifestyle changes (more exercise) or the disease opting to be dormant right now. But I'll take it! The bad news is that I lost my job at the end of August.
Not sure what to attribute this to: 1st round of
Ocrevus
treatment, diet or lifestyle changes (more exercise) or the disease opting to be dormant right now. But I'll take it! The bad news is that I lost my job at the end of August.
anaishunter
in
My MSAA Community
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My First Ocrevus Treatment
It went pretty good today. I got there at 9:30 am and left at about 3 pm. I was hydrated so no problem with the needle. I didn't have any site reaction or any other reactions at all. It was almost as if they only gave me saline only for 4 1/2 hours. The worst part was having to sit in a recliner
It went pretty good today. I got there at 9:30 am and left at about 3 pm. I was hydrated so no problem with the needle. I didn't have any site reaction or any other reactions at all. It was almost as if they only gave me saline only for 4 1/2 hours. The worst part was having to sit in a recliner
hairbrain4
in
My MSAA Community
6 years ago
They weren’t kidding about Ocrevus and respiratory illness risk!
I just wanted to warn my fellow
Ocrevus
peeps to take those respiratory risks seriously.
I just wanted to warn my fellow
Ocrevus
peeps to take those respiratory risks seriously.
Raingrrl
in
My MSAA Community
6 years ago
Starting Tysabri...what to do? Side effects so scary
I see alot of you are starting
Ocrevus
. Would that be better in the long run? Im only 46 and feel so confused with treatments. Any suggestions before I start Tysabri and while Im on it? Thank you guys...
I see alot of you are starting
Ocrevus
. Would that be better in the long run? Im only 46 and feel so confused with treatments. Any suggestions before I start Tysabri and while Im on it? Thank you guys...
Mymarcus2010
in
My MSAA Community
6 years ago
Ugh
I still have not got my 2nd half of
ocrevus
yet ugh
I still have not got my 2nd half of
ocrevus
yet ugh
Jackjosh
in
My MSAA Community
6 years ago
Tuesday is the day
Tuesday is the day for my first half dose of
ocrevus
. A little excited, and a lot nervous. You all have made me feel a little better of taking this giant step to improve my future. I appreciate that. It finally came through. Appt is Tuesday and I am ready to feel better. I can do this.
Tuesday is the day for my first half dose of
ocrevus
. A little excited, and a lot nervous. You all have made me feel a little better of taking this giant step to improve my future. I appreciate that. It finally came through. Appt is Tuesday and I am ready to feel better. I can do this.
jkdavid99
in
My MSAA Community
6 years ago
Progressive Drugs
The first one is
Ocrevus
, I forgot the other 2. Anyway, I can't find any objective information web sites. They are all the site for the manufacturer sites. They all paint a rosy picture of their own drugs. o if you guys could help, I would be incredibly grateful! Rob
The first one is
Ocrevus
, I forgot the other 2. Anyway, I can't find any objective information web sites. They are all the site for the manufacturer sites. They all paint a rosy picture of their own drugs. o if you guys could help, I would be incredibly grateful! Rob
rlh1974
in
My MSAA Community
6 years ago
Ocrevus OMG
If
Ocrevus
stops the progression of the disease then the goal would be to only take that medication and no other. I am absolutely confused
If
Ocrevus
stops the progression of the disease then the goal would be to only take that medication and no other. I am absolutely confused
dallas343
in
My MSAA Community
6 years ago
Ocrevus or not?
I'm not sure about this she is the one who started about
Ocrevus
then tells me she is not using
Ocrevus
... go figure I need to think about this for a while.
I'm not sure about this she is the one who started about
Ocrevus
then tells me she is not using
Ocrevus
... go figure I need to think about this for a while.
kycmary
in
My MSAA Community
6 years ago
Ocrevus experiences
Just curious how many people were able to go to work the day after an
Ocrevus
infusion and how many people have seen improvements?
Just curious how many people were able to go to work the day after an
Ocrevus
infusion and how many people have seen improvements?
Stronglady
in
My MSAA Community
6 years ago
Should Ocrevus Begin Listing Hair Loss as a Potential Side Effect?
As I understand,
Ocrevus
is fairly new drug for the treatment of MS — a little over a year approved as I write this — and * Hair Loss * is not listed as a potential side effect. Yet, I’ve read quite a few stories of people suffering hair shedding / hair loss after their
Ocrevus
infusions.
As I understand,
Ocrevus
is fairly new drug for the treatment of MS — a little over a year approved as I write this — and * Hair Loss * is not listed as a potential side effect. Yet, I’ve read quite a few stories of people suffering hair shedding / hair loss after their
Ocrevus
infusions.
TMasonMckee
in
My MSAA Community
6 years ago
So it looks like they now think I am PPMS
Not sure I am excited by this news but I guess not being on a DMT for the past 10 yrs and now starting
Ocrevus
is a good path???
Not sure I am excited by this news but I guess not being on a DMT for the past 10 yrs and now starting
Ocrevus
is a good path???
erash
in
My MSAA Community
6 years ago
Report ur side effects, hair loss etc phone#
Hi, if you are on
Ocrevus
and experiencing any minor side effects that need to be reported as post marketing events please contact the following number so that they can start tracking this information and see if there are patterns or things that can be done: 1800-821-8590 Then press option #5 and then
Hi, if you are on
Ocrevus
and experiencing any minor side effects that need to be reported as post marketing events please contact the following number so that they can start tracking this information and see if there are patterns or things that can be done: 1800-821-8590 Then press option #5 and then
erash
in
My MSAA Community
6 years ago
Ocrevus 1st infusion scheduled!
O-day is Sept 14th. P.S. B/C I missed the opportunity for the Shingrix (shingles vaccine) and b/c O can increase risk of shingles/herpes, and after discussion with the infusion Oncologist, I am going to take Valtrex as a preventive for potential shingles reactivation. It's an option he uses with some
O-day is Sept 14th. P.S. B/C I missed the opportunity for the Shingrix (shingles vaccine) and b/c O can increase risk of shingles/herpes, and after discussion with the infusion Oncologist, I am going to take Valtrex as a preventive for potential shingles reactivation. It's an option he uses with some
erash
in
My MSAA Community
6 years ago
FINALLY! Ocrevus
I was finally approved for the drug
ocrevus
. After months of trying and being denied. The drug company approved me for the free drug. I still have to pay for the hospital administering it. I am a little excited to try this.
I was finally approved for the drug
ocrevus
. After months of trying and being denied. The drug company approved me for the free drug. I still have to pay for the hospital administering it. I am a little excited to try this.
jkdavid99
in
My MSAA Community
6 years ago
Which FB Ocrevus support Group?
I see several. Which one r you guys (@kdali et al.) referring to? Thanks!
I see several. Which one r you guys (@kdali et al.) referring to? Thanks!
erash
in
My MSAA Community
6 years ago
Has anyone with Secondary Progressive MS been prescribed Ocrevus or is on it?
My doctor doesn’t want me back on Avonex instead wants me on
Ocrevus
. I’m just not sure if this will work for SPMS.
My doctor doesn’t want me back on Avonex instead wants me on
Ocrevus
. I’m just not sure if this will work for SPMS.
Pia7
in
My MSAA Community
6 years ago
Looking for YouTube or podcast self hypnosis for infusions?
So, I'm a strong believer in mind body connections and I'd like to potentiate the effects of my upcoming
Ocrevus
infusion via visualizing the infusion eradicating the MS. I know, sounds a bit hocus pocus 😜 I've searched the Internet and haven't found anything specific enough on YouTube etc. .
So, I'm a strong believer in mind body connections and I'd like to potentiate the effects of my upcoming
Ocrevus
infusion via visualizing the infusion eradicating the MS. I know, sounds a bit hocus pocus 😜 I've searched the Internet and haven't found anything specific enough on YouTube etc. .
erash
in
My MSAA Community
6 years ago
1
...
28
29
30
...
41
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
My MSAA Community
807 results
MS Society
4 results
NRAS
3 results
View top 10 communities
Sort by
Most Relevant
Newest