Neurologist Visit

[hairbrain4]

I saw my neuro today. She isn't wanting to make any changes until she can see a new MRI. She didn't have an answer as to why all the flares but did say that it's a possibility that the trouble I have had with my thyroid could be the root cause of the problems. My thyroid has been leveled out for a couple of months now. Hopefully, the flares will too. So now I am waiting for an MRI to be scheduled. After the MRI we will decide whether to stay on Ocrevus or change to something else. In the meantime, I just have to put up with all the little flares that are happening right now since I can no longer do steroids.

[rjoneslaw]

Good luck

[hairbrain4 in reply to rjoneslaw]

Thanks!

[Raingrrl]

I share your frustration hairbrain4 ! Now that I’m on thyroid meds, no one can figure out what has been causing various weird things because it could be either. My last MRI was stable so both my neuro and my PCP just shrug. Thankfully the issues have subsided. It’s so annoying, isn’t it?

[hairbrain4 in reply to Raingrrl]

Yes! The thyroid controls so much of what the body does & if it's the least bit off-kilter it throws everything out of wack. Then it takes forever for the thyroid to get back to normal or stable then I have to wait for the rest of my body to catch up. The biggest question is what made the thyroid go wack in the first place? I did go back through all my records and made a timeline of what happened when. It looks like the thyroid problem started due to the dosage of levothyroxine being too high which sent me to the hospital with thyroid toxicity. Then when the thyroid got into the normal range it was borderline low & my new PCP wouldn't follow through with the plan from my previous PCP that retired. So the thyroid then dropped way below normal & told me "I guess you were right about needing a higher dosage." Needless to say, I have a new PCP & an Endocrinologist. Specialists cost more to go to but at least they know what they are doing.

[twooldcrows in reply to hairbrain4]

it is so sad when you loose the best of doctors and the next doesn't follow thru with the same type of care ...i had same and i finally just gave up and stopped taken the meds which upset some but what is there for us to do ...i know i shouldn't of done that it is bad to do ...take care and let them know what you have found out on your own...i never kept my self of a journal that is so great to do so you can go back and let them know what you know ....good luck and may you help them figure out what is going on...

[hairbrain4 in reply to twooldcrows]

It was actually the first dr that retired that started my thyroid problem. I was on ArmourThyroid (it's natural) & the drug company had to quit making it due to lack of ingredients. He changed me to Levothyroxine (synthetic) & he started me on the highest dose. I think he got confused on the formula or missed a "." somewhere which is why I went toxic at first. But I didn't realize that until after he retired. But that's water under the bridge & I have learned a valuable lesson... always research what your dr wants to give you before you take it.

[RoyceNewton]

remember your valium lowish dose for your MRI and good luck

[hairbrain4 in reply to RoyceNewton]

Thank you but MRIs don't bother me. I usually sing in my head my favorite hymns & I sometimes fall asleep. I learned how to block out pain when I had my daughter 48 years ago & that technique works for just about anything. Just focus your eyes on an object, breathe in through your nose & breathe out through your mouth. If you truly focus on those three things you can block out pain, fear, & sound. It works really well on spouses! 😀

[Turtlepie]

Prayers for a good outcome

[hairbrain4 in reply to Turtlepie]

Thank you!

[twooldcrows]

so sorry about not getting an answer yet but at least they are listening ...good luck that they find what is going on ...maybe just some good meds for the thyroid ...take care and be safe ...know we are here to help if we can ....loads of love and much happiness...

[hairbrain4 in reply to twooldcrows]

Thank You!

[sashaming1]

Hopefully the MRI is soon so you can get on another DMT if necessary. I'm on Levothyroxine for thyroid.

[hairbrain4 in reply to sashaming1]

I hope Levothyroxine works for you. It is a BIG NO for me at least the generic.

[sashaming1 in reply to hairbrain4]

Why? I'm just curious if you want to share.

[hairbrain4 in reply to sashaming1]

It made my hair fall out, my skin so dry it looked like leather & I just plain didn't feel right. Levothyroxine is known for those symptoms. As a cosmetologist/instructor, we can usually tell if a person is on it or Synthroid by looking at their hair and skin. My insurance wouldn't pay for Synthroid, which is actually a little better than the generic Levothyroxine.

[Tazmanian]

Sounds like you're a newbie all over again

[hairbrain4 in reply to Tazmanian]

Exactly! I feel like I did when I was diagnosed 16 years ago!

[mm1527mm]

Sorry to hear. Hope you get answers soon

[hairbrain4 in reply to mm1527mm]

Thank you!