Post 741 Do NOT just believe me resear... - My MSAA Community

My MSAA Community

9,211 members20,960 posts

Post 741 Do NOT just believe me research for yourself 9 Jun 2021

RoyceNewton profile image
1 Reply

Good Day to “YOU, my beloved ms family. It does not matter if we are close friends or complete strangers. Two of several Billion Homo Sapiens alive on this planet, or two of the many people living with multiple sclerosis (ms), I personally wish the best for “YOU”. That “YOU” can bare the indignities, the frustrations of this incurable chronic illness. In my many years, I have researched many sources. and I have never found concrete conclusive proof of where ms came from or why I have it, let alone how to make it go away and leave me alone. I am positive that I have forgotten many things and made unwitting errors.

It does not matter that sometimes I am factually wrong. It is “NEVER” my intention to actually mislead “YOU”. I do not wake up in the morning saying how can I lie and misinform today. I try to give “YOU” something to think about. To show “YOU” another path to take. It is always your choice what to do. I stand to make no gain whatever “YOU” may decide to do. My EGO likes to think that I am one of the few “YOU” who "YOU" will meet along this ms journey that wants nothing and has your interests at heart. If ever I do not give “YOU” this impression I am sorry.

It is okay to trust me, “YOU” should know by now my intentions, BUT do verify with your own sources what I say. Your medical team know “YOU” and your medical circumstances far better than I do. I am not in any way shape or form any sort of trained anything. Pilot maybe, long ago but anything else, not in this lifetime. So if it is medical advice that “YOU” need, talk to your Doctor. One thing I do strongly advocate for is starting Disease-Modifying Therapy (DMT) NOW if not yesterday. I believe Ocrevus is the strongest for Relapsing-Remitting ms (RRms) at the moment, so that is what I suggest. If somebody knows better tell me, I am open to new information.

I hope I make myself clear. Trust what I say, BUT verify with your own resources and your own research. I do remember that when I was first diagnosed (Dx’d) it seemed overwhelming with all the information that “YOU” are bombarded with. There seem to be a thousand theories, more cures and so many questions without answers. For a newby (newly diagnosed) here are some answers for “YOU”.

1)There is NO cure. (Yes, it sucks, but this is ours for life, sorry)

2)be careful who “YOU” give money to, very careful

3)Exercise, eat a healthy diet and take notes, lots of them.

4)YOU, ARE GOING TO LIVE A VERY LONG TIME

5)Sex, marriage and children are possible if that is what YOU want.

4 B) YOU ARE GOING TO LIVE A LONG TIME

5) There is no cure, feel free to look and prove me wrong.

4 C) YOU ARE GOING TO LIVE A LONG TIME

Royce (Your ms writer and Brother)

20+ years so far

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
Read more about...
1 Reply
twooldcrows profile image
twooldcrows

hope everyone reads this if they are still wondering about this thing they call MS ...

Not what you're looking for?

You may also like...

Crazy week for me and the hubby...

This week started off fairly well, only for it to start going downhill from Wednesday. I woke up...

Brain Fog and Words

Do any of you have a very hard time with finding the exact word you want to use? You know, like the...

Restless Legs Syndrome

I have severe Restless Leg Syndrome and I don't know what to do anymore. I tell my MS doctor and...

Kesimpta Question

I alternate which leg I do my Kesimpta injection on, and this month (month 6) was my left leg's...

Happy 4th MSers.

Havent been on,,,A dear friend had said when i stated i wrote poetry when it wasnt so bad....she...