Search
Search
About
Log in
Join
Experiences with
Ocrevus
Posts
Communities
819 public posts
Filter results
MS and Hip replacement? anything I should know?
I was still in denial then, but he's ready to take me on - meeting with my neuro in Oct to understand when should I schedule - right after or before
Ocrevus
and anything else. - I don't mind a 6+ to a year recovery process.
I was still in denial then, but he's ready to take me on - meeting with my neuro in Oct to understand when should I schedule - right after or before
Ocrevus
and anything else. - I don't mind a 6+ to a year recovery process.
anaishunter
in
My MSAA Community
3 years ago
Great News For Those on B cell depleters!
I’m on
Ocrevus
, and as I posted before, it is doing what it’s supposed to in killing off my B cells. Without sufficient B cells, you don’t produce antibodies from vaccines. So I have no Covid antibodies and remain at high risk for a bad outcome should I get Covid.
I’m on
Ocrevus
, and as I posted before, it is doing what it’s supposed to in killing off my B cells. Without sufficient B cells, you don’t produce antibodies from vaccines. So I have no Covid antibodies and remain at high risk for a bad outcome should I get Covid.
Raingrrl
in
My MSAA Community
2 years ago
Allergic Reaction to Rituximab!What's the Alternatives?
Rheumy is waiting for approval for
Ocrevus
infusion for her. PH Dr mentioned Cyclophosphamide. Rheumy keen for her to start on another biologic as will be better for her PH but haven't come up with any offerings.
Rheumy is waiting for approval for
Ocrevus
infusion for her. PH Dr mentioned Cyclophosphamide. Rheumy keen for her to start on another biologic as will be better for her PH but haven't come up with any offerings.
Wangpaupau
in
NRAS
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
J&J vaccine effectiveness with Ocrevus
I'm 73 taking
Ocrevus
. Has anyone taken J&J COVID vaccine? If so have you seen any increase in symptoms or disability?
I'm 73 taking
Ocrevus
. Has anyone taken J&J COVID vaccine? If so have you seen any increase in symptoms or disability?
gulfstream40
in
My MSAA Community
3 years ago
Ocrevus
Can anyone on
Ocrevus
please tell me how early you started feeling a crap gap? My infusion was a little over four months ago and my walking and vision is really bad.
Can anyone on
Ocrevus
please tell me how early you started feeling a crap gap? My infusion was a little over four months ago and my walking and vision is really bad.
Neworleanslady
in
My MSAA Community
3 years ago
Knee replacement, wound and shingles , what a month!
My next
Ocrevus
infusion is in less than a month. I'm thinking my neurologist will push it back. Anyway, I just wanted to share my experience.
My next
Ocrevus
infusion is in less than a month. I'm thinking my neurologist will push it back. Anyway, I just wanted to share my experience.
Wizardsmom
in
My MSAA Community
2 years ago
this has been a long few months
don't get me wrong,time is still flying.i am late for my
ocrevus
treatment by 1 month because just dealing with so much.having it sept. 14th and going to do the 2 hour one again.my broken upper rt arm has healed after 10 weeks and a nasty fall, good news.
don't get me wrong,time is still flying.i am late for my
ocrevus
treatment by 1 month because just dealing with so much.having it sept. 14th and going to do the 2 hour one again.my broken upper rt arm has healed after 10 weeks and a nasty fall, good news.
pamgarner
in
My MSAA Community
3 years ago
Still no B cells 😢
I had antibodies tested —none I had lymphocyte subset test — cd 19 % zero B cells I guess futile to get booster ☹️ By the way last
Ocrevus
infusion November 2020. Moderna vax x 2 completed late April 2021
I had antibodies tested —none I had lymphocyte subset test — cd 19 % zero B cells I guess futile to get booster ☹️ By the way last
Ocrevus
infusion November 2020. Moderna vax x 2 completed late April 2021
erash
in
My MSAA Community
3 years ago
how long between ocrevus
was up last month and they are 70 miles away.has anyone missed their
ocrevus
appt. and do I have to start over with 2- 1/2 appts. and how long between was it for you.planning in my head sooo busy thanks pam
was up last month and they are 70 miles away.has anyone missed their
ocrevus
appt. and do I have to start over with 2- 1/2 appts. and how long between was it for you.planning in my head sooo busy thanks pam
pamgarner
in
My MSAA Community
3 years ago
Post 750 NO need to be scared 21 Aug 2021
Pick your Disease-Modifying therapy (DMT), My suggestion is
Ocrevus
as it reduces relapses the most. I am NOT a paid spokesman, BUT if somebody wants to pay me I am okay with that:-) Talk to your doctor and find what is best for “YOU”. and do not be scared.
Pick your Disease-Modifying therapy (DMT), My suggestion is
Ocrevus
as it reduces relapses the most. I am NOT a paid spokesman, BUT if somebody wants to pay me I am okay with that:-) Talk to your doctor and find what is best for “YOU”. and do not be scared.
RoyceNewton
in
My MSAA Community
3 years ago
Neurologist Visit
After the MRI we will decide whether to stay on
Ocrevus
or change to something else. In the meantime, I just have to put up with all the little flares that are happening right now since I can no longer do steroids.
After the MRI we will decide whether to stay on
Ocrevus
or change to something else. In the meantime, I just have to put up with all the little flares that are happening right now since I can no longer do steroids.
hairbrain4
in
My MSAA Community
3 years ago
The CDC FINALLY talks about the problem of immunity in the immunocompromised. People on Ocrevus, Rituxan, Kesimpta and similar..take note.
If you are on DMT’s like
Ocrevus
, Rituxan and Kesimpta, please talk with your medical team and don’t assume that fully vaccinated gives you immunity. https://www.cnn.com/2021/07/16/health/cdc-warning-covid-19-vaccine-immunocompromised/index.html
If you are on DMT’s like
Ocrevus
, Rituxan and Kesimpta, please talk with your medical team and don’t assume that fully vaccinated gives you immunity. https://www.cnn.com/2021/07/16/health/cdc-warning-covid-19-vaccine-immunocompromised/index.html
Raingrrl
in
My MSAA Community
3 years ago
Covid vaccine timing?
Covid vaccine For anyone that had the covid vaccine and especially on
ocrevus
. How long after your infusion did you do the covid vaccine? I asked my neurologist because I am on
ocrevus
and he said 2-5 months after last infusion. Which tells me nothing.
Covid vaccine For anyone that had the covid vaccine and especially on
ocrevus
. How long after your infusion did you do the covid vaccine? I asked my neurologist because I am on
ocrevus
and he said 2-5 months after last infusion. Which tells me nothing.
jkdavid99
in
My MSAA Community
3 years ago
I Have A Question
I'm on
Ocrevus
, which hasn't helped me at all since the last infusion, which had been very disappointing since it has worked so well for a year & a half. My last infusion was at the end of April. So the question is... Have any of you had this sort of thing happen to your eyes?
I'm on
Ocrevus
, which hasn't helped me at all since the last infusion, which had been very disappointing since it has worked so well for a year & a half. My last infusion was at the end of April. So the question is... Have any of you had this sort of thing happen to your eyes?
hairbrain4
in
My MSAA Community
3 years ago
17 years and still searching
Tried
Ocrevus
a year ago and it made me worse, and just add the spinal tapAnd awaiting the results.
Tried
Ocrevus
a year ago and it made me worse, and just add the spinal tapAnd awaiting the results.
dallas343
in
My MSAA Community
3 years ago
New to the group
wondering how others who are on
Ocrevus
are doing? I have been doing the infusions for 2 years and having some side effects during and after infusions.
wondering how others who are on
Ocrevus
are doing? I have been doing the infusions for 2 years and having some side effects during and after infusions.
sailing42
in
My MSAA Community
3 years ago
Blood Test & Ocrevus B-cell repopulation & Covid immunity
I did the test yesterday so that it would show the maximum number of CD 20 expressing B-cells before
Ocrevus
starts killing them off again . The results are already back and aren’t pretty.
I did the test yesterday so that it would show the maximum number of CD 20 expressing B-cells before
Ocrevus
starts killing them off again . The results are already back and aren’t pretty.
Raingrrl
in
My MSAA Community
3 years ago
Post 743 Ocrevus my reasoning 23 Jun 2021
With this being the goal, I recommend currently
Ocrevus
. I STRESS that I am NOT your doctor or a trained medical anything. This is MY OPINION. Take it for what it is worth, something or nothing, your choice.
With this being the goal, I recommend currently
Ocrevus
. I STRESS that I am NOT your doctor or a trained medical anything. This is MY OPINION. Take it for what it is worth, something or nothing, your choice.
RoyceNewton
in
My MSAA Community
3 years ago
Unnumbered Post Dr Royce Newton 26 Jun 2021
In my opinion, today,
Ocrevus
. Everybody has an opinion, but if "YOU" are new and overwhelmed, this is what my 20+ years suggests. Keep searching as "YOU" wish but here might be an answer. Disease-Modifying Therapy (DMT) most certainly is and this might be your answer.
In my opinion, today,
Ocrevus
. Everybody has an opinion, but if "YOU" are new and overwhelmed, this is what my 20+ years suggests. Keep searching as "YOU" wish but here might be an answer. Disease-Modifying Therapy (DMT) most certainly is and this might be your answer.
RoyceNewton
in
My MSAA Community
3 years ago
Unnumbered post Keep the smile on your face 12 June 2021
Talk to your medical team, but
Ocrevus
is the drug "YOU" want to take it gives "YOU" the fewest relapses and that is what "YOU" want. There are many other things but they can come later, RELAX. Have a good cry but remember "YOU" are going to be okay.
Talk to your medical team, but
Ocrevus
is the drug "YOU" want to take it gives "YOU" the fewest relapses and that is what "YOU" want. There are many other things but they can come later, RELAX. Have a good cry but remember "YOU" are going to be okay.
RoyceNewton
in
My MSAA Community
3 years ago
1
...
8
9
10
...
41
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
My MSAA Community
807 results
MS Society
4 results
NRAS
3 results
View top 10 communities
Sort by
Most Relevant
Newest