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New Study Results Dangerously Being Oversimplified
Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a recently released New England Journal of Medicine article citing a study done between 1999 and 2009 in the United Kingdom, 82,429 men between 50 and
Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a recently released New England Journal of Medicine article citing a study done between 1999 and 2009 in the United Kingdom, 82,429 men between 50 and
jazj
in
Advanced Prostate Cancer
1 year ago
Update on "Zytiga failed, Xtandi next" from 8 days ago
My "winter" MO (Fl vs Mass) says the active hip lesion means the Zytiga is failing, at least at that one area only but recommends Xtandi and I am now hormone resistant after 19 months on ADT plus Zytiga/prednisone. I asked my "summer" MO the following. [i]"Is it possible that the hip lesion is the
My "winter" MO (Fl vs Mass) says the active hip lesion means the Zytiga is failing, at least at that one area only but recommends Xtandi and I am now hormone resistant after 19 months on ADT plus Zytiga/prednisone. I asked my "summer" MO the following. [i]"Is it possible that the hip lesion is the
alperk
in
Advanced Prostate Cancer
1 year ago
biochemical re-occurrence
For those who had biochemical re-occurrence and were treated with ADT and radiation what has been your outcome over the years? basically, what I am asking were you cured and had a favorable outcome? How many years have you been with a low PSA, no further issues or, for that matter cured?
For those who had biochemical re-occurrence and were treated with ADT and radiation what has been your outcome over the years? basically, what I am asking were you cured and had a favorable outcome? How many years have you been with a low PSA, no further issues or, for that matter cured?
plato123
in
Advanced Prostate Cancer
1 year ago
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Gynecologist appointment outcome-advice please?
Hi all, So I had my first gynecologist appointment last week, and it wasn't what I was expecting. I've read so many accounts of people appointments, where they had plenty of time to discuss history, the horrendous pain, as well as a detailed treatment plan. However, my visit consisted of walking into
Hi all, So I had my first gynecologist appointment last week, and it wasn't what I was expecting. I've read so many accounts of people appointments, where they had plenty of time to discuss history, the horrendous pain, as well as a detailed treatment plan. However, my visit consisted of walking into
burke123
in
Endometriosis UK
1 year ago
Self medicating NDT
Hello, I am new, and don't have too much knowledge... I started googling about hormones and thyroid after pregnancy when I felt constantly tired yet wired, my TSH has always comes back within range, between 2.0-2.9. I know TSH doesn't give you the whole picture and I really need to test to see whats
Hello, I am new, and don't have too much knowledge... I started googling about hormones and thyroid after pregnancy when I felt constantly tired yet wired, my TSH has always comes back within range, between 2.0-2.9. I know TSH doesn't give you the whole picture and I really need to test to see whats
DamagingGiraffe
in
Thyroid UK
1 year ago
TRANSITIONING LEVOTHYROXINE TO NDT
Hi. Thank you firstly for looking at my post. I am 11 weeks post thyroidectomy and have been on levothyroxine since my surgery. I weigh 90kgs. From week 1 to week 4 I took 150mcgs of levothyroxine and my bloods were TSH <0.001 range 0.40-4.0 T4 18.9 range 10-22 T3 2.9 range 2.5-6.0 From week
Hi. Thank you firstly for looking at my post. I am 11 weeks post thyroidectomy and have been on levothyroxine since my surgery. I weigh 90kgs. From week 1 to week 4 I took 150mcgs of levothyroxine and my bloods were TSH <0.001 range 0.40-4.0 T4 18.9 range 10-22 T3 2.9 range 2.5-6.0 From week
NIKEGIRL
in
Thyroid UK
1 year ago
New treatement plan
So after my MO visit I have a new game plan. Restart ADT, Lupron and Daralutamide or Zytiga but prefer the Daralutamide so hoping that gets approved. Then radiation to the 4 spots that showed up on my PMSA PET Scan. So MO Appt Thursday, RO appt today, 1st Lupron jab on Wed the 15th. My MO said to check
So after my MO visit I have a new game plan. Restart ADT, Lupron and Daralutamide or Zytiga but prefer the Daralutamide so hoping that gets approved. Then radiation to the 4 spots that showed up on my PMSA PET Scan. So MO Appt Thursday, RO appt today, 1st Lupron jab on Wed the 15th. My MO said to check
treedown
in
Advanced Prostate Cancer
1 year ago
Adthyza... An affordable NDT?
Hello - I recently came across a post in another forum about something called Adthyza. It's a new NDT on the market and supposedly very affordable. I was wondering if anyone knew of this medication, has any experience with it? Many thanks! EDIT: I don’t know a lot about NDTs but I do know that ALL
Hello - I recently came across a post in another forum about something called Adthyza. It's a new NDT on the market and supposedly very affordable. I was wondering if anyone knew of this medication, has any experience with it? Many thanks! EDIT: I don’t know a lot about NDTs but I do know that ALL
Hidden
in
Thyroid UK
1 year ago
Cause of steady increase in Alt (liver) score
Hello, looking for advice regarding cause of steady increase in Alt (liver) score please. My husband is on ADT 3 monthly (10.8mg) Zoladex and due to have 6th and final Doxetaxal infusion next Thursday but his Alt score is now 114. He also takes Prednisolone and Omeprazole and he’s on a clinical trial
Hello, looking for advice regarding cause of steady increase in Alt (liver) score please. My husband is on ADT 3 monthly (10.8mg) Zoladex and due to have 6th and final Doxetaxal infusion next Thursday but his Alt score is now 114. He also takes Prednisolone and Omeprazole and he’s on a clinical trial
RunningViv
in
Advanced Prostate Cancer
1 year ago
New to the forum and doing Intermittent ADT
Hi, I've been reading this forum for quite a while now and finally joined. I've had Prostate Cancer for around 2 years now. Things looked great after my prostatectomy, but then my PSA started rising a year later. Got a PSMA scan and no mets were detectable. Decided against radiation and went with
Hi, I've been reading this forum for quite a while now and finally joined. I've had Prostate Cancer for around 2 years now. Things looked great after my prostatectomy, but then my PSA started rising a year later. Got a PSMA scan and no mets were detectable. Decided against radiation and went with
Cancerfighter57
in
Advanced Prostate Cancer
1 year ago
Any suggestions for headache?
After initial diagnosis in 2015, I've had EBRT; brachytherapy; chemo in 2019; ADT since 2019 chemo; two bone Mets on spine since 2019, but no detectable PSA. Have been on Orgovyx since December, 2020. Still have everyday, lowgrade --- not migraine --- headaches, for which I take Excedrin. In talking
After initial diagnosis in 2015, I've had EBRT; brachytherapy; chemo in 2019; ADT since 2019 chemo; two bone Mets on spine since 2019, but no detectable PSA. Have been on Orgovyx since December, 2020. Still have everyday, lowgrade --- not migraine --- headaches, for which I take Excedrin. In talking
fmh1
in
Advanced Prostate Cancer
1 year ago
Giving Erfa a go
I wonder if anyone is on Erfa NDT and can tell me how they find it. I was on Thyroid s for years but now it doesn't work for me. I have no thyroid and no gut problems either. At present I am on Levo plus T3 which I find difficult. I need to get my levels perfect for June when I go in to hospital for
I wonder if anyone is on Erfa NDT and can tell me how they find it. I was on Thyroid s for years but now it doesn't work for me. I have no thyroid and no gut problems either. At present I am on Levo plus T3 which I find difficult. I need to get my levels perfect for June when I go in to hospital for
Brightness14
in
Thyroid UK
1 year ago
NDT source urgently needed please!!!
Hi all,Can anyone recommend "reliable" NDT source? Replies through PRIVATE MESSAGE please. I made same request two months ago and received a few replies with recommendations of reliable sources. Unfortunately, out of the few sources people on this forum so kindly messaged me, I opted for a supplier
Hi all,Can anyone recommend "reliable" NDT source? Replies through PRIVATE MESSAGE please. I made same request two months ago and received a few replies with recommendations of reliable sources. Unfortunately, out of the few sources people on this forum so kindly messaged me, I opted for a supplier
DizzyD
in
Thyroid UK
1 year ago
No Benefit With Longer Course of ADT in Localized, High-RiskProstate Cancer
https://www.renalandurologynews.com/home/conference-highlights/genitourinary-cancers-symposium/no-benefit-longer-course-adt-localized-high-risk-prostate-cancer/
https://www.renalandurologynews.com/home/conference-highlights/genitourinary-cancers-symposium/no-benefit-longer-course-adt-localized-high-risk-prostate-cancer/
ADTMan
in
Advanced Prostate Cancer
1 year ago
Dr Maksoud
Has anyone seen a Dr Maksoud, I know I’ve asked this question before but did not get any replies. I’m particularly interested to know if he prescribes t3 or ndt. Obviously only pms please
Has anyone seen a Dr Maksoud, I know I’ve asked this question before but did not get any replies. I’m particularly interested to know if he prescribes t3 or ndt. Obviously only pms please
Dizzy444
in
Thyroid UK
1 year ago
NUBEQA (darolutimide) as MONOTHERAPY (no lupron or similar)?
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
I’ve seen two posts today in a couple of threads stating that they’re currently on NUBEQA, or will soon be as a monotherapy without first line ADT like casodex or Lupron. One gent says after 7 months he’s got testosterone levels of 700 with undetectable PSA and no progression on scans. Another says
Gl448
in
Advanced Prostate Cancer
1 year ago
Success or otherwise of Taking Levothyroxine Plus Metavive ?
Does anyone have experience of taking these two to get and stay well ? Or was it a disaster? As someone who just CANNOT get well on Thyroxine alone.. And having tried NDT at length.. For about 8 months been on a mix of Metavive and Levo.. I only take 25 mcg Levo..clearly not enough in itself…
Does anyone have experience of taking these two to get and stay well ? Or was it a disaster? As someone who just CANNOT get well on Thyroxine alone.. And having tried NDT at length.. For about 8 months been on a mix of Metavive and Levo.. I only take 25 mcg Levo..clearly not enough in itself…
Jollypolly
in
Thyroid UK
1 year ago
Treatment Options Analysis Paralysis
Currently suffering from "analysis paralysis" as I go back and forth between radiation (Cyberknife) and Surgery. I was set to go with Cyberknife at Georgetown which is a high volume center with tons of experience and then my Decipher test came back as High Risk which adds 6 months of Orgovyx to the
Currently suffering from "analysis paralysis" as I go back and forth between radiation (Cyberknife) and Surgery. I was set to go with Cyberknife at Georgetown which is a high volume center with tons of experience and then my Decipher test came back as High Risk which adds 6 months of Orgovyx to the
BMT07
in
Prostate Cancer Network
1 year ago
Triplet Therapy Failed. Now what?
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
Worriedson9
in
Advanced Prostate Cancer
1 year ago
<0.03 for the 9th month
Very pleased to see my undetectable PSA blood test for the ninth time but also that I had a great consult with my London MO and onco nurse where he said he would support me on a decision to come off ADT if this continues to June 23.. BUT he recommends I stay on to July 24. Hmmm .. to be honest I
Very pleased to see my undetectable PSA blood test for the ninth time but also that I had a great consult with my London MO and onco nurse where he said he would support me on a decision to come off ADT if this continues to June 23.. BUT he recommends I stay on to July 24. Hmmm .. to be honest I
Brysonal
in
Fight Prostate Cancer
1 year ago
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