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Update
Just got my blood test results: Testo less 0.1 ng/ML and PSA still undetectable. Tomorrow I’ll receive my next 3-month Lupron shot, which will finalize my 24-month ADT after prostate bed and whole pelvic radiation. In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles
Just got my blood test results: Testo less 0.1 ng/ML and PSA still undetectable. Tomorrow I’ll receive my next 3-month Lupron shot, which will finalize my 24-month ADT after prostate bed and whole pelvic radiation. In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles
Nusch
in
Advanced Prostate Cancer
9 months ago
LEUPRORELIN ACETATE
Any information on results or side effects for this ADT
Any information on results or side effects for this ADT
Stevegr
in
Advanced Prostate Cancer
9 months ago
Long time reader / first time poster…
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
MrWonderful4U
in
Advanced Prostate Cancer
9 months ago
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Do low PSA-producing cells still rely on testosterone to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
novatimo
in
Advanced Prostate Cancer
9 months ago
EMBARK Study: ADT vs Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Advanced Prostate Cancer
9 months ago
EMBARK Study: Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Fight Prostate Cancer
9 months ago
NDT Supplier - from America
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
Delilahmy
in
Thyroid UK
9 months ago
Would I be on thin ice if I tried adaptive ADT this soon?
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
jackwfrench
in
Advanced Prostate Cancer
9 months ago
Sleep while taking Xtandi and Adt
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
JD-guy
in
Advanced Prostate Cancer
9 months ago
Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
9 months ago
please could I have feedback on my results?
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
Knackeredandcross
in
Thyroid UK
9 months ago
NDT range
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
Ari3
in
Thyroid UK
9 months ago
Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
9 months ago
what’s 1 grain of NDT in Levo please?
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
PixieElv
in
Thyroid UK
9 months ago
NDT Thiland
Hi, I’ve been taking armour thyroid for 9 months or so now. I’m now up to 2.5 grains and the private clinic I use don’t think I’m at my optimal dose yet. I feel a lot better but the problem is that it’s very expensive. Dose anyone have any advice about getting NDT from Thailand and what brand. Thanks
Hi, I’ve been taking armour thyroid for 9 months or so now. I’m now up to 2.5 grains and the private clinic I use don’t think I’m at my optimal dose yet. I feel a lot better but the problem is that it’s very expensive. Dose anyone have any advice about getting NDT from Thailand and what brand. Thanks
Bigfraz76
in
Thyroid UK
9 months ago
Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
9 months ago
Vacation from ADT
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
gsun
in
Advanced Prostate Cancer
9 months ago
ADT and bone health
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
Stevegr
in
Advanced Prostate Cancer
9 months ago
so many supplements, so much money - any advice for lowering the cost?
hi everyone, I’ve just added up how much I’m spending on ndt and supplements and it’s an awful lot of money. I wondered if anyone had advice on cheaper options or those they think are unnecessary. I’ve got hashimotos and have also been diagnosed with ME/ CFS - these are a mixture of things recommended
hi everyone, I’ve just added up how much I’m spending on ndt and supplements and it’s an awful lot of money. I wondered if anyone had advice on cheaper options or those they think are unnecessary. I’ve got hashimotos and have also been diagnosed with ME/ CFS - these are a mixture of things recommended
Mazes
in
Thyroid UK
9 months ago
NDT advice please
Hello everyone I’m on T4/T3 combined meds for UAT. I read on here about people being on NDT, I’ve never tried it or been offered it. How do you go about trying to get a trial? It’s obviously an Endo route but are they even receptive to this as an option if you ask? I’m very curious to find out if this
Hello everyone I’m on T4/T3 combined meds for UAT. I read on here about people being on NDT, I’ve never tried it or been offered it. How do you go about trying to get a trial? It’s obviously an Endo route but are they even receptive to this as an option if you ask? I’m very curious to find out if this
Bollieforme
in
Thyroid UK
9 months ago
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