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Nurtec ODT
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Orgyvux(relugolix) and Zytiga(abiraterone)
I have a question from one of my support group members. They are currently on Orgyvux. Doc wants to add Zytiga to their treatment. Will the ADT side effects be the same with the addition of Zytiga, or will they become worse? Seems like the side effects would be worse, if T is driven to a lower level
I have a question from one of my support group members. They are currently on Orgyvux. Doc wants to add Zytiga to their treatment. Will the ADT side effects be the same with the addition of Zytiga, or will they become worse? Seems like the side effects would be worse, if T is driven to a lower level
billd50
in
Advanced Prostate Cancer
8 months ago
Severe coronary atherosclerosis and ADT
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
spencoid2
in
Advanced Prostate Cancer
8 months ago
Has anyone whose tried T3 and NDT felt better on just T4?
A little bit of history - thyroidectomy aged 21. More or less fine on just T4 for 20 plus years. I then saw an Endo about parathyroid issues in 2018 at which point he suggested ERFA because he felt lots of my symptoms were related to my thyroid and T3 conversion. Since then I’ve tried many different
A little bit of history - thyroidectomy aged 21. More or less fine on just T4 for 20 plus years. I then saw an Endo about parathyroid issues in 2018 at which point he suggested ERFA because he felt lots of my symptoms were related to my thyroid and T3 conversion. Since then I’ve tried many different
Spangle15
in
Thyroid UK
8 months ago
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armour prescriber
hi all just joined this community I’ve been on armour NDT 3 grains for over 10y following my own thyroid journey with many many arguments - armed with ‘stop the thyroid madness’ as my guiding light! My wonderful private GP is retired & can no longer perscribe. I understand that no one can post where
hi all just joined this community I’ve been on armour NDT 3 grains for over 10y following my own thyroid journey with many many arguments - armed with ‘stop the thyroid madness’ as my guiding light! My wonderful private GP is retired & can no longer perscribe. I understand that no one can post where
Bilbobaggins55
in
Thyroid UK
8 months ago
Adjuvant ADT & duration
When studies refer to adjuvant ADT with radiation are they counting the length of time from the start of RT or the end of the RT course ? And as previously questioned I didn’t quite get the answer I was looking for. In research when they refer to 6, 12, 18, 24 or 36 months of ADT, are they counting
When studies refer to adjuvant ADT with radiation are they counting the length of time from the start of RT or the end of the RT course ? And as previously questioned I didn’t quite get the answer I was looking for. In research when they refer to 6, 12, 18, 24 or 36 months of ADT, are they counting
SimMartin
in
Advanced Prostate Cancer
8 months ago
Quite happy with ADT
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
EBBEFLUT
in
Advanced Prostate Cancer
8 months ago
Covid & dosing
Hi, I tested +ve for covid this morning. It's the first time I've had it. I've had 5 vacs. My temperature is high & I'm taking paracetamol for that.My question is, should I alter my T4/NDT dose? I haven't been ill at all since I started on thyroid meds in 2015. I wondered if I should increase, decrease
Hi, I tested +ve for covid this morning. It's the first time I've had it. I've had 5 vacs. My temperature is high & I'm taking paracetamol for that.My question is, should I alter my T4/NDT dose? I haven't been ill at all since I started on thyroid meds in 2015. I wondered if I should increase, decrease
amala57
in
Thyroid UK
8 months ago
Online prescription for getting NDT in UK?
Has anyone had any success getting Armour or ERFA from a UK pharmacy using one of those online prescriptions via a UK online doc?. I usually buy Armour or ERA online from abroad but prices are getting ridiculous and last time got stuck in customs for a month, I was concerned about customs keeping it
Has anyone had any success getting Armour or ERFA from a UK pharmacy using one of those online prescriptions via a UK online doc?. I usually buy Armour or ERA online from abroad but prices are getting ridiculous and last time got stuck in customs for a month, I was concerned about customs keeping it
ainslie
in
Thyroid UK
8 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
8 months ago
Xtandi gap
Long story short, I'm on ADT & Xtandi and just retired this past summer. While employed I was fortunate enough to have no cost for this drug that my medical insurance was paying $13k/month for. When I retired I had a 3 month supply that'll take me through mid-November. But when I have refill it this
Long story short, I'm on ADT & Xtandi and just retired this past summer. While employed I was fortunate enough to have no cost for this drug that my medical insurance was paying $13k/month for. When I retired I had a 3 month supply that'll take me through mid-November. But when I have refill it this
shueswim
in
Advanced Prostate Cancer
8 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
8 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
8 months ago
drenching sweats
I was made stop my hormone patches 3 months ago. About 3 weeks after stopping I began having all over body drenching sweats, I have to change my clothes and bedding sometimes and they make me very nauseated. These don't happen just at night but during the day as well...I'm nearly 24/7 in a sweat. Has
I was made stop my hormone patches 3 months ago. About 3 weeks after stopping I began having all over body drenching sweats, I have to change my clothes and bedding sometimes and they make me very nauseated. These don't happen just at night but during the day as well...I'm nearly 24/7 in a sweat. Has
Hidden
in
Menopause and Perimenopause Support
8 months ago
High Potassium Levels?
I am just curious if anyone has had elevated potassium levels during or after PC treatment? Specifically Radiation and ADT. Hubby has dangerously high potassium levels, he has kidney disease so this is something that is watched. We even log all of our food and the Nephrologist is baffled by it-he doesn
I am just curious if anyone has had elevated potassium levels during or after PC treatment? Specifically Radiation and ADT. Hubby has dangerously high potassium levels, he has kidney disease so this is something that is watched. We even log all of our food and the Nephrologist is baffled by it-he doesn
USAFproudmom
in
Fight Prostate Cancer
8 months ago
Not so good on Levo and T3 - help source Thai dessicated thyroid ?
PM on this one if you can help please thank you. Background: Hashimoto's for 5 years + Menopause started same year (on Evorel Conti patch) Was on Thai desiccated porcine thyroid but with Covid that supply went. Since then been back on Levothyroxine 75mcg (recent bloods show satisfactory dose) with
PM on this one if you can help please thank you. Background: Hashimoto's for 5 years + Menopause started same year (on Evorel Conti patch) Was on Thai desiccated porcine thyroid but with Covid that supply went. Since then been back on Levothyroxine 75mcg (recent bloods show satisfactory dose) with
M33R4
in
Thyroid UK
8 months ago
ADT + Zytiga holiday???
I've been on Orgovyx since 8/15/22 and Zytiga since 4/1/23. I'm also suffering from neuropathy from nerve damage that occurred in December 22. The nerve pain has gotten worse and my oncologist and neurologist are wondering if ADT or Zytiga are too blame. Anyone have experience with these drugs and
I've been on Orgovyx since 8/15/22 and Zytiga since 4/1/23. I'm also suffering from neuropathy from nerve damage that occurred in December 22. The nerve pain has gotten worse and my oncologist and neurologist are wondering if ADT or Zytiga are too blame. Anyone have experience with these drugs and
VanHalen84
in
Advanced Prostate Cancer
8 months ago
T4/3 combo
I’ve been taking Armour Thyroid for over 20 years. Previously on NHS but we moved house to a different area and new GP wouldn’t even discuss it. Armour Thyroid is now very expensive and not easy to obtain. I’m concerned about the long term importing and prescribing issues. Long scenario but now under
I’ve been taking Armour Thyroid for over 20 years. Previously on NHS but we moved house to a different area and new GP wouldn’t even discuss it. Armour Thyroid is now very expensive and not easy to obtain. I’m concerned about the long term importing and prescribing issues. Long scenario but now under
Karen-Eleanor
in
Thyroid UK
8 months ago
Survey!
So, I and other members can get an idea on how you feel about ADT vacation(s). Please just answer YES if you think they’re okay, or NO, if you think they’re not.
This is a simple survey, and I would appreciate it if editorializing or commenting on your answer is
NOT
included in your response
So, I and other members can get an idea on how you feel about ADT vacation(s). Please just answer YES if you think they’re okay, or NO, if you think they’re not.
This is a simple survey, and I would appreciate it if editorializing or commenting on your answer is
NOT
included in your response
j-o-h-n
in
Advanced Prostate Cancer
8 months ago
BP and HR on Dose Increase
I'm on NDT. It's taken almost a year to get to this point, but last week I moved up to 2+3/4 Grains of NDT (Armour) from 2.5 grains after a blood test. TSH - 3.78 FT4 - 14.4 Range 12-22, (24%) FT3 - 4.7 Range 3.1-6.3, (50%) For the first time the increase has not caused me problems. I usually suffer
I'm on NDT. It's taken almost a year to get to this point, but last week I moved up to 2+3/4 Grains of NDT (Armour) from 2.5 grains after a blood test. TSH - 3.78 FT4 - 14.4 Range 12-22, (24%) FT3 - 4.7 Range 3.1-6.3, (50%) For the first time the increase has not caused me problems. I usually suffer
FancyPants54
in
Thyroid UK
8 months ago
Reduced-Dose Schedule of Cabazitaxel Viable for Seniors With mCRPC - MedPage Today, November 1, 2023
Modified dosing schedule from phase III randomized CABASTY trial for Jetvana (+ G-CSF) for older patients out of non-chemo treatment options. * * * [i]
Reduced-Dose Schedule of Cabazitaxel Viable for Seniors With mCRPC - Grade 3 or higher neutropenia, neutropenic complications reduced by 12-fold
Modified dosing schedule from phase III randomized CABASTY trial for Jetvana (+ G-CSF) for older patients out of non-chemo treatment options. * * * [i]
Reduced-Dose Schedule of Cabazitaxel Viable for Seniors With mCRPC - Grade 3 or higher neutropenia, neutropenic complications reduced by 12-fold
CaptnMojoe
in
Fight Prostate Cancer
8 months ago
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