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Just so sad
My dad has stage 4 lung cancer. His first line treatment did nothing and was stopped as his kidneys were damaged by it. We have been on a year wait and watch. Well today it’s grown by 10%. He’s been offered another treatment but he has opted to go on an immunotherapy clinical trial. I hate this disease
My dad has stage 4 lung cancer. His first line treatment did nothing and was stopped as his kidneys were damaged by it. We have been on a year wait and watch. Well today it’s grown by 10%. He’s been offered another treatment but he has opted to go on an immunotherapy clinical trial. I hate this disease
Jill83
in
The Roy Castle Lung Cancer Foundation
7 years ago
Isolated, Oxygen User
Hi Guys, My name is Jyoti i'm 28 with pulmonary fiborsis, which is now terminal and i require ambulatory oxygen (oxygen user 2015. After my double lung transplant rejection i decided that i wanted to travel, however i am aware that some places don't like portable oxygen cyclinders, as i have progressed
Hi Guys, My name is Jyoti i'm 28 with pulmonary fiborsis, which is now terminal and i require ambulatory oxygen (oxygen user 2015. After my double lung transplant rejection i decided that i wanted to travel, however i am aware that some places don't like portable oxygen cyclinders, as i have progressed
Jyoti_Smith_1
in
Lung Conditions Community Forum
7 years ago
MANTEL CELL LYMPHOMA AND IBRUTINIB
Hello, I'm new to this group and wanted to find answers to concerned questions. My partner had been diagnosed with Mantel Cell Lymphoma three years ago. He underwent Chemo and stem cell treatment. Recently after a routine blood test, the doctors said his WBC was rising rapidly - it's doubled in the
Hello, I'm new to this group and wanted to find answers to concerned questions. My partner had been diagnosed with Mantel Cell Lymphoma three years ago. He underwent Chemo and stem cell treatment. Recently after a routine blood test, the doctors said his WBC was rising rapidly - it's doubled in the
pollyg2016
in
Non Hodgkin's Lymphoma Friends
7 years ago
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Mantel Cell Lymphomia
My partner was diagnosed with MCL three years ago. He underwent chemo and then had stem cell transplant. Recently, a blood test has indicated that his white blood cells have risen and that his platelets are now getting low. My partner looks and feels great, without showing any of the symptoms he first
My partner was diagnosed with MCL three years ago. He underwent chemo and then had stem cell transplant. Recently, a blood test has indicated that his white blood cells have risen and that his platelets are now getting low. My partner looks and feels great, without showing any of the symptoms he first
pollyg2016
in
CLL Support
7 years ago
New to this
Hello, I'm very new to writing on forums but here goes... Well I'm 45 and was diagnosed with alpha 1 emphersyma about 8 years ago and had to leave work 4 years ago as my job requires meet to be able to run !! Since leaving work it was always advised that I would require heart and double lung transplant
Hello, I'm very new to writing on forums but here goes... Well I'm 45 and was diagnosed with alpha 1 emphersyma about 8 years ago and had to leave work 4 years ago as my job requires meet to be able to run !! Since leaving work it was always advised that I would require heart and double lung transplant
Richiebalpha1
in
Lung Conditions Community Forum
7 years ago
EGFR Exon 20 mutation NSCLC PATIENTS
Calling all lung cancer patients with an EGFR or HER2 Exon 20 mutation. I have recently enrolled on a clinical trial in the United States which has had some very promising results. There are very few options for those who have this mutation other than chemotherapy. (The majority of EGFR positive patients
Calling all lung cancer patients with an EGFR or HER2 Exon 20 mutation. I have recently enrolled on a clinical trial in the United States which has had some very promising results. There are very few options for those who have this mutation other than chemotherapy. (The majority of EGFR positive patients
Hillyblue
in
The Roy Castle Lung Cancer Foundation
7 years ago
Real stories: life after a stem cell transplant
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
LCNurse2
in
Leukaemia Support
7 years ago
Lung Cancer is a National Epidemic. Join us Nov 2 in Washington DC.
Lung Cancer is a National Epidemic. The president recently declared opiate related deaths an epidemic that has reached National Emergency Status. 91 people die from it everyday. Why then isn't lung cancer a National Emergency? 433 people die every day from lung cancer. 433 people died from lung cancer
Lung Cancer is a National Epidemic. The president recently declared opiate related deaths an epidemic that has reached National Emergency Status. 91 people die from it everyday. Why then isn't lung cancer a National Emergency? 433 people die every day from lung cancer. 433 people died from lung cancer
Denzie
Volunteer
in
Lung Cancer Support
7 years ago
Epo. London mpn day
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
Rachelthepotter
in
MPN Voice
7 years ago
Applying for ESA advice
Hi, I'm in need of some advice please. I currently work and have done so with the same employer for the past 26 years. I have however been off sick since January with a severe COPD exacerbation due to Lymphangioleiomyomatosis requiring hospital treatment and now severe depression. I have received a copy
Hi, I'm in need of some advice please. I currently work and have done so with the same employer for the past 26 years. I have however been off sick since January with a severe COPD exacerbation due to Lymphangioleiomyomatosis requiring hospital treatment and now severe depression. I have received a copy
lenniep
in
Lung Conditions Community Forum
7 years ago
GDP - Change of Chemo - Advice
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Blueb
in
Non Hodgkin's Lymphoma Friends
7 years ago
Hiya I am Lynn from Cumbria
I was diagnosed with lung cancer 18myths ago I was 59yrs old was a great shock but have had exactly treatment at Christie in Manchester am doin really well at the moment xxxx
I was diagnosed with lung cancer 18myths ago I was 59yrs old was a great shock but have had exactly treatment at Christie in Manchester am doin really well at the moment xxxx
Lynn_bloor
in
Lung Conditions Community Forum
7 years ago
More Advice Needed Please re low B12 now & 10 years ago
Hi all, I've been back to the docs again today (my 2nd home at the mo!!) where I saw a more sympathetic GP. On filling her in on my previous visits she told me that as well as my ferritin being low last March (when I was pregnant and started on iron tablets) my b12 was low 10 years ago when they tested
Hi all, I've been back to the docs again today (my 2nd home at the mo!!) where I saw a more sympathetic GP. On filling her in on my previous visits she told me that as well as my ferritin being low last March (when I was pregnant and started on iron tablets) my b12 was low 10 years ago when they tested
Eoperez
in
Pernicious Anaemia Society
7 years ago
Lung transplant.
My family doctor and my cardio therapist have asked why I am not on a transplant list. I have to never thought about that and my doctors have never mentioned it.Has anyone on here had a long transplant and how are they now?
My family doctor and my cardio therapist have asked why I am not on a transplant list. I have to never thought about that and my doctors have never mentioned it.Has anyone on here had a long transplant and how are they now?
Bobbi6
in
Lung Conditions Community Forum
7 years ago
Heart complications
I have emphysema and also an aneurism in my aeorta to my heart. I was wandering if it would be safe to use an airosure for my copd?thank you.
I have emphysema and also an aneurism in my aeorta to my heart. I was wandering if it would be safe to use an airosure for my copd?thank you.
October1961
in
Lung Conditions Community Forum
7 years ago
Free to Breathe and HealthUnlocked Need You: Part 2!
We looking to raise greater awareness about some of the issues that affect real people experiencing a lung cancer diagnosis. In conjunction with the survey we have posted, we would also like to hear from you directly in your own words. The following video survey will allow you to record a video response
We looking to raise greater awareness about some of the issues that affect real people experiencing a lung cancer diagnosis. In conjunction with the survey we have posted, we would also like to hear from you directly in your own words. The following video survey will allow you to record a video response
amcm
in
Lung Cancer Support
7 years ago
Giant Cell Arteritis - Tocilizumab - NICE
If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or unfavourable then please can you contact, me, John Mills ASAP John.mills@vasculitis.org.uk - the NICE assessment committee meets next week and I would like some anecdotal evidence to present at the meeting. Thank
If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or unfavourable then please can you contact, me, John Mills ASAP John.mills@vasculitis.org.uk - the NICE assessment committee meets next week and I would like some anecdotal evidence to present at the meeting. Thank
John_Mills
Vasculitis UK
in
Vasculitis UK
7 years ago
Slippery elm
I have had a single lung transplant one year ago and about two months ago got a chest infection for which since then I've been on carbasistine to clear my mucous coz it's seems to get stuck! It doesn't seem to be doing very much at all, so on the Internet today I've found a herbal capsule from Holland
I have had a single lung transplant one year ago and about two months ago got a chest infection for which since then I've been on carbasistine to clear my mucous coz it's seems to get stuck! It doesn't seem to be doing very much at all, so on the Internet today I've found a herbal capsule from Holland
Hidden
in
Lung Conditions Community Forum
7 years ago
Bone marrow transplant
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
dave117
in
MPN Voice
7 years ago
The start of lung cancer
My husband has been taken to hospital with pneumonia and then cancer is it possible he started this when he went a bit delirious a week or so ago, nobody asked me, but found it on line. Now they say they can't diagnose which cancer it is to treat him. Any clues would help in this waiting game. Marie22
My husband has been taken to hospital with pneumonia and then cancer is it possible he started this when he went a bit delirious a week or so ago, nobody asked me, but found it on line. Now they say they can't diagnose which cancer it is to treat him. Any clues would help in this waiting game. Marie22
Marie22
in
Lung Conditions Community Forum
7 years ago
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