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Stage 4 endo really sucks!!!!
Dear fellow warriors, I'm 28 and I'm reaching out today to share my experience with endometriosis and to seek support from those who may have experienced a similar situation. In 2019, I underwent surgery to address stage 4 endometriosis, hoping to find relief from its debilitating symptoms. However
Dear fellow warriors, I'm 28 and I'm reaching out today to share my experience with endometriosis and to seek support from those who may have experienced a similar situation. In 2019, I underwent surgery to address stage 4 endometriosis, hoping to find relief from its debilitating symptoms. However
Swa_24
in
Endometriosis UK
1 month ago
Second Line Hormonal
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
Islandboy2021
in
Advanced Prostate Cancer
1 month ago
Zoladex injection today
Hi, I was due to have my prostab injection today but I’m having Zoladex instead. I’ve read in the past that it’s painful and googled a pic of the needle 🤯 needle looks huge. I normally have Buserelin but there’s a shortage . Doctor or nurse will be giving it to me later today, is it really awful
Hi, I was due to have my prostab injection today but I’m having Zoladex instead. I’ve read in the past that it’s painful and googled a pic of the needle 🤯 needle looks huge. I normally have Buserelin but there’s a shortage . Doctor or nurse will be giving it to me later today, is it really awful
Rol81
in
Fertility Network UK
1 month ago
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came off all hormones completely?
Hi I have woken up in unbareable pain this morning and I have been taken off zoladex at the start of the month, and my body has been having hormones in since April 2023 and now I have nothing at all. The gyni said she was going to put me in for a MRI as the pain is in is always the same and it never
Hi I have woken up in unbareable pain this morning and I have been taken off zoladex at the start of the month, and my body has been having hormones in since April 2023 and now I have nothing at all. The gyni said she was going to put me in for a MRI as the pain is in is always the same and it never
Ginge2001
in
Endometriosis UK
1 month ago
What Now?
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
Mummaamber
in
Endometriosis UK
2 months ago
Experience of Zoladex injections please??
Hi all, I have been suffering for years now from Endo, it is really impacting on my life and feel like I have to do something new. My consultant has suggested the next step is Zoladex injections. I am 51 years and feels like I am perimenopausal so starting with occasional symptoms of this. I am really
Hi all, I have been suffering for years now from Endo, it is really impacting on my life and feel like I have to do something new. My consultant has suggested the next step is Zoladex injections. I am 51 years and feels like I am perimenopausal so starting with occasional symptoms of this. I am really
Husky777
in
Endometriosis UK
2 months ago
Zoladex and bleeding
So I was on Decapeptyl for a few months last year, a month without HRT and a couple with. I stopped using it because it was causing me headaches and was switched to Zoladex alongside HRT. For the first 4 injections it was fine, it stopped my periods and I was doing ok, although my moods have got slightly
So I was on Decapeptyl for a few months last year, a month without HRT and a couple with. I stopped using it because it was causing me headaches and was switched to Zoladex alongside HRT. For the first 4 injections it was fine, it stopped my periods and I was doing ok, although my moods have got slightly
x_b_x
in
Endometriosis UK
2 months ago
PSA rise after triplet therapy
Hi everyone, my dad was diagnosed with stage 4 metastatic prostate cancer in 2023. He commenced on Triplett therapy - Zoladex, Darolutamide & Docetaxel chemo. His PSA has started to rise measuring 0.9 in January, 1.6 in February & 2.1 in March. We saw the MO yesterday and she recommended we see her again
Hi everyone, my dad was diagnosed with stage 4 metastatic prostate cancer in 2023. He commenced on Triplett therapy - Zoladex, Darolutamide & Docetaxel chemo. His PSA has started to rise measuring 0.9 in January, 1.6 in February & 2.1 in March. We saw the MO yesterday and she recommended we see her again
wiirz
in
Advanced Prostate Cancer
2 months ago
after zoladex?
Hi I’m just wondering if anybody who’s came of zoladex copes with mood changes? And hot flushes because I am really struggling to keep my cool and it’s so annoying because I have nothing to be annoyed about?
Hi I’m just wondering if anybody who’s came of zoladex copes with mood changes? And hot flushes because I am really struggling to keep my cool and it’s so annoying because I have nothing to be annoyed about?
Ginge2001
in
Endometriosis UK
2 months ago
Zoladex injections
I’ve been diagnosed with stage 2 endo on my pelvic side and pouch of Douglas. I am getting zoladex injections to eliminate any other cause of my symptoms and it has helped with the excruciating pain! But as well as having all of the side effects of the menopause which has been a real struggle…I’m still
I’ve been diagnosed with stage 2 endo on my pelvic side and pouch of Douglas. I am getting zoladex injections to eliminate any other cause of my symptoms and it has helped with the excruciating pain! But as well as having all of the side effects of the menopause which has been a real struggle…I’m still
Alicelovescats
in
Endometriosis UK
2 months ago
At what point for scan ?
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
positive-thinking
in
Advanced Prostate Cancer
2 months ago
Similar question to Ezzedine. PSA rising
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
arry4424
in
Prostate Cancer Network
2 months ago
bilateral oophorectomy at 34
Hi all, I am looking to hear from real people (you folks on this forum) about your experiences for a bilateral oophorectomy. I have been suffering with debilitating endometriosis symptoms for more than a decade and on Monday March 4th I saw a consultant about my treatment steps. She was the surgeon
Hi all, I am looking to hear from real people (you folks on this forum) about your experiences for a bilateral oophorectomy. I have been suffering with debilitating endometriosis symptoms for more than a decade and on Monday March 4th I saw a consultant about my treatment steps. She was the surgeon
HomebodyFig
in
Endometriosis UK
2 months ago
Help to do BAT treatment for my dad. Located in Norway.
Hello everyone! Writing on behalf of my father who is 67 yo and has prostate cancer. We are based in Norway. Prostatectomy done in March -17. Treated with Bicalutamide and Zoladex injection until rise in PSA 18 months ago. Increasing PSA from 6-12 on chemotherapy through last summer. September he was
Hello everyone! Writing on behalf of my father who is 67 yo and has prostate cancer. We are based in Norway. Prostatectomy done in March -17. Treated with Bicalutamide and Zoladex injection until rise in PSA 18 months ago. Increasing PSA from 6-12 on chemotherapy through last summer. September he was
VonKantarellen
in
Advanced Prostate Cancer
2 months ago
Castrate levels of Testosterone
My husband's testosterone level is 3nmol/L (86.5 ng/100ml). In the past year, his levels have ranged between 2-8 nmol/L. He's on quarterly Zoladex. I understand that castrate levels are ideally < 20 ng/100ml. If I understand correctly, his testosterone should be much lower. Can anyone please shed
My husband's testosterone level is 3nmol/L (86.5 ng/100ml). In the past year, his levels have ranged between 2-8 nmol/L. He's on quarterly Zoladex. I understand that castrate levels are ideally < 20 ng/100ml. If I understand correctly, his testosterone should be much lower. Can anyone please shed
cancervictim
in
Advanced Prostate Cancer
2 months ago
Zoladex privately in London?
hi has anyone gone private for zoladex in London? I’m trying to find a clinic/dr but struggling. My GP refuses without gyno and the referral for them on the NHS is so long. Any recommendations for individuals welcomed please, thanks.
hi has anyone gone private for zoladex in London? I’m trying to find a clinic/dr but struggling. My GP refuses without gyno and the referral for them on the NHS is so long. Any recommendations for individuals welcomed please, thanks.
Wilderpeople24
in
Endometriosis UK
2 months ago
Zoladex and flu like symptoms
Hey. This may sound strange but does anyone suffer with flu like symptoms with the Zoladex? For the past 6 months I’ve had a number of ‘colds’ which seem to go straight to my sinuses but I have nothing else apart from feeling bunged up and absolutely no energy and achy. Just wondering if it could be
Hey. This may sound strange but does anyone suffer with flu like symptoms with the Zoladex? For the past 6 months I’ve had a number of ‘colds’ which seem to go straight to my sinuses but I have nothing else apart from feeling bunged up and absolutely no energy and achy. Just wondering if it could be
Louboo78
in
Endometriosis UK
2 months ago
Zoladex experience
Just wanted to hear other people's experiences on Zoladex if possible because I don't know if my symptoms are all in my head or I'm just being made to feel that way by the consultant. Who's only advice every time I go for a review every couple of months day just keep going with it a little bit longer
Just wanted to hear other people's experiences on Zoladex if possible because I don't know if my symptoms are all in my head or I'm just being made to feel that way by the consultant. Who's only advice every time I go for a review every couple of months day just keep going with it a little bit longer
x_b_x
in
Endometriosis UK
2 months ago
Rapidly Rising PSA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
Ian996
in
Advanced Prostate Cancer
2 months ago
Zoladex & Tibolone
Hi, I have just started a 3month trial of Zoladex implant / injection and daily Tiblone. I was wondering if anyone else has tried this? I have been given a clearance of stage 3 and 4 endo but they are not sure if I have stage 1 or 2. Ive always struggled with IBS and painful periods which I went
Hi, I have just started a 3month trial of Zoladex implant / injection and daily Tiblone. I was wondering if anyone else has tried this? I have been given a clearance of stage 3 and 4 endo but they are not sure if I have stage 1 or 2. Ive always struggled with IBS and painful periods which I went
Loulabelle1709
in
Women's Health
3 months ago
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