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Nintedanib
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Pulmonary fibrosis
Any body out there who has been prescribed
NINTEDANIB
for treatment for pulmonary fibrosis I would be interested in any comments regarding your experience of this drug thank you
Any body out there who has been prescribed
NINTEDANIB
for treatment for pulmonary fibrosis I would be interested in any comments regarding your experience of this drug thank you
Servicer
in
Lung Conditions Community Forum
6 years ago
nintedanib
has any one been on
nintedanib
has a maintainance only ,my husband was on docetaxel with
nintedanib
but kept getting infections ,just received his scan results showing the tumour is stable (thank god )now just taking
nintedanib
is there any one out there who is on the same and if so how long and is
has any one been on
nintedanib
has a maintainance only ,my husband was on docetaxel with
nintedanib
but kept getting infections ,just received his scan results showing the tumour is stable (thank god )now just taking
nintedanib
is there any one out there who is on the same and if so how long and is
sue2428
in
The Roy Castle Lung Cancer Foundation
6 years ago
Docetaxel & Nintedanib for Non Small Cell Lung Cancer with Mets to the bones
From next week he will go back onto chemotherapy (Docetaxel) along with a targeted therapy in tablet form called
Nintedanib
. By all accounts it would appear this new regime is quite brutal.
From next week he will go back onto chemotherapy (Docetaxel) along with a targeted therapy in tablet form called
Nintedanib
. By all accounts it would appear this new regime is quite brutal.
GlasgowRangers
in
The Roy Castle Lung Cancer Foundation
6 years ago
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Any help on trials please
Hi diagnosed stage 4 nsclc in February 17..have received cisplatin pematrexted then pembrolizumab now on Docetaxel and
Nintedanib
...if scan shows progresion then I will be on trials..any advice much appreciated..thank you :)
Hi diagnosed stage 4 nsclc in February 17..have received cisplatin pematrexted then pembrolizumab now on Docetaxel and
Nintedanib
...if scan shows progresion then I will be on trials..any advice much appreciated..thank you :)
Wiseowl1
in
The Roy Castle Lung Cancer Foundation
6 years ago
IPF Meds
Unable to take Pirfenidone due to it causing sickness,so tried
Nintedanib
at 100mg ok for a week then sickness again,don't what to do.I feel that the way the medicine makes me feel that it's not worth continuing with them anymore,and I should just try to get on with life.Has anyone had the same problem
Unable to take Pirfenidone due to it causing sickness,so tried
Nintedanib
at 100mg ok for a week then sickness again,don't what to do.I feel that the way the medicine makes me feel that it's not worth continuing with them anymore,and I should just try to get on with life.Has anyone had the same problem
iain123
in
Lung Conditions Community Forum
6 years ago
docetaxel
has any one on here had good results on this chemo,my husband is on this along with
nintedanib
200mg twice a day thanks everyone keep up the good fight
has any one on here had good results on this chemo,my husband is on this along with
nintedanib
200mg twice a day thanks everyone keep up the good fight
sue2428
in
My Breast Cancer Community
6 years ago
IPF which drug do you take
My choices are
Nintedanib
or Esbriet (pirfenidone) The side effects of both are not special, just wondered if you good people out there have any experience on either. Theses drugs were recommended by the Brompton Hospital, look forward to you answers.
My choices are
Nintedanib
or Esbriet (pirfenidone) The side effects of both are not special, just wondered if you good people out there have any experience on either. Theses drugs were recommended by the Brompton Hospital, look forward to you answers.
robinc10
in
Lung Conditions Community Forum
6 years ago
which one is more effective in reducing lungs scarring pirfenidone or nintedanib based on long terms clinical trial
Both these drugs pirfenidone and
nintedanib
available in the market since long time for treatment for fibrosis or lungs scarring My question is which one is more effective in reducing lungs scarring pirfenidone or
nintedanib
based on long terms clinical trial there is lots of literature available in
Both these drugs pirfenidone and
nintedanib
available in the market since long time for treatment for fibrosis or lungs scarring My question is which one is more effective in reducing lungs scarring pirfenidone or
nintedanib
based on long terms clinical trial there is lots of literature available in
enm1sg
in
Lung Conditions Community Forum
6 years ago
Have I waited too long?
My onc offered me caelyx or the Niccc trial which would be either caelyx or
nintedanib
. The Niccc trial was still in the setting up process. Meanwhile I paid for a consultation in London and was sent to the UCLH research centre with the possibilty of being offered a phase one immunotherapy trial.
My onc offered me caelyx or the Niccc trial which would be either caelyx or
nintedanib
. The Niccc trial was still in the setting up process. Meanwhile I paid for a consultation in London and was sent to the UCLH research centre with the possibilty of being offered a phase one immunotherapy trial.
Neona57
in
My Ovacome
7 years ago
Pirfenidone or Nintedanib?
I've been offered a choice of which drug to take to slow down the my fibrosis - pirfenidone or
nintedanib
... it seems that they both have similar effectiveness, but different side-effects. Has anyone been on either? Any real-world advice or experience you could share? Thanks!
I've been offered a choice of which drug to take to slow down the my fibrosis - pirfenidone or
nintedanib
... it seems that they both have similar effectiveness, but different side-effects. Has anyone been on either? Any real-world advice or experience you could share? Thanks!
timCHP
in
Lung Conditions Community Forum
7 years ago
IPF I WILL NOT YIELD!
The last one was testing Perfinedone and
Nintedanib
. Couldn't cope with Perfinedon awful side effects.
The last one was testing Perfinedone and
Nintedanib
. Couldn't cope with Perfinedon awful side effects.
Margot13
in
Lung Conditions Community Forum
7 years ago
Went to the dentist and I'm on nintedanib
My gums really hurt is there a problem with takings
nintedanib
Can you gums get infected
My gums really hurt is there a problem with takings
nintedanib
Can you gums get infected
vibran14
in
Lung Conditions Community Forum
7 years ago
Nintedanib five weeks
I'm feeling tired, no energy sick in the mornings after taken my first tablet of the day, I have tried eating porridge in the morning after a hour I vomited it up. Do you get used the side effects?
I'm feeling tired, no energy sick in the mornings after taken my first tablet of the day, I have tried eating porridge in the morning after a hour I vomited it up. Do you get used the side effects?
vibran14
in
Lung Conditions Community Forum
7 years ago
Nintedanib trial
The onc thinks that I will fit the Niccc trial at Taunton which is comparing
Nintedanib
with chemotherapy. I would have either Caelex or the Nintedaneb. I am worried that the pulmonary embolism that I had after surgery will make me ineligible. Has anyone been on this trial please.
The onc thinks that I will fit the Niccc trial at Taunton which is comparing
Nintedanib
with chemotherapy. I would have either Caelex or the Nintedaneb. I am worried that the pulmonary embolism that I had after surgery will make me ineligible. Has anyone been on this trial please.
Neona57
in
My Ovacome
7 years ago
Nintedanib NICC trial for clear cell
I posted last month that I had applied for the NiCC trial for clear cell. Well the good news is that I have been accepted on the trial but the disappointing news is that when I was randomised I was allocated chemotherapy and not the trial tablets. I am disappointed as I really wanted to see how good
I posted last month that I had applied for the NiCC trial for clear cell. Well the good news is that I have been accepted on the trial but the disappointing news is that when I was randomised I was allocated chemotherapy and not the trial tablets. I am disappointed as I really wanted to see how good
Ann87
in
My Ovacome
7 years ago
Nintedanib trial
Following my post last week I went to Clatterbridge yesterday to discuss the trial further. I saw the trials nurse who was very informative and answered all my questions so I have signed up for the trial. I should hear in about 3 weeks if I have been accepted. I really hope I am as I have had some sleepless
Following my post last week I went to Clatterbridge yesterday to discuss the trial further. I saw the trials nurse who was very informative and answered all my questions so I have signed up for the trial. I should hear in about 3 weeks if I have been accepted. I really hope I am as I have had some sleepless
Ann87
in
My Ovacome
7 years ago
Nintedanib Trial
As I am clear cell she suggested I my be suitable for the
Nintedanib
(NiCCC) trial. I am going back to see my Oncologist next week to discuss further. Has anyone been on this trial? Ann xxx
As I am clear cell she suggested I my be suitable for the
Nintedanib
(NiCCC) trial. I am going back to see my Oncologist next week to discuss further. Has anyone been on this trial? Ann xxx
Ann87
in
My Ovacome
7 years ago
New user - Transplant
I have just started taking
nintedanib
, even though I am on warfarin. At my next consultant, the doctor is going to discuss transplant options. This may sound silly, but if I am offered a transplant is this a no brained? Would anyone know what I should ask my doctor regarding this. Ronnie
I have just started taking
nintedanib
, even though I am on warfarin. At my next consultant, the doctor is going to discuss transplant options. This may sound silly, but if I am offered a transplant is this a no brained? Would anyone know what I should ask my doctor regarding this. Ronnie
Ron62
in
Lung Conditions Community Forum
7 years ago
IPF - Nintedanib
Last week i started my medication
nintedanib
. I was wondering if those of you out there who have IPF and / or are taking
nintedanib
could offer some real life advice on this condition and how its effects you I have read quite a lot of stuff but still feel I know nothing. Many thanks in advance.
Last week i started my medication
nintedanib
. I was wondering if those of you out there who have IPF and / or are taking
nintedanib
could offer some real life advice on this condition and how its effects you I have read quite a lot of stuff but still feel I know nothing. Many thanks in advance.
Ian1369
in
Lung Conditions Community Forum
7 years ago
Lung Fibrosis
I am presently on a trial of
nintedanib
for lung fibrosis and am experiencing really bad side affects. Are there people who can't take this drug
I am presently on a trial of
nintedanib
for lung fibrosis and am experiencing really bad side affects. Are there people who can't take this drug
Malhig
in
Lung Conditions Community Forum
7 years ago
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