Unable to take Pirfenidone due to it causing sickness,so tried Nintedanib at 100mg ok for a week then sickness again,don't what to do.I feel that the way the medicine makes me feel that it's not worth continuing with them anymore,and I should just try to get on with life.Has anyone had the same problem? Thinking of having a rest from them for a week and trying again
iain
Hi Iain, like you I couldn't tolerate pirfenidone. I was OK with Nintedanib but it didn't work for me and I continued to deteriorate. In the end I told my consultant that I wanted to stop taking it and he agreed with me. It would probably be worth you giving Nintedanib another try in case it works for you. I was told to take it with meals as some people find this helps to prevent sickness and nausea. Good luck whatever you decide.
Helen
Blood pressure meds
Ipf support
Keeping active with ipf
Pirfenidone for IPF
Emergency meds
