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Nintedanib
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Nintedanib
Has anyone had any experience of
nintedanib
.?
Has anyone had any experience of
nintedanib
.?
Almaz65
in
Lung Conditions Community Forum
4 months ago
Advice
I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered
Nintedanib
. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered
Nintedanib
. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
4 months ago
Struggling with Mycophenolate
Hi all, do any of you take
Nintedanib
with Prednisolone? My consultant has been trying to get me onto Mycophenolate before starting me on
Nintedanib
, as it is steroid sparing,but I hate feeling the way I do on this drug.
Hi all, do any of you take
Nintedanib
with Prednisolone? My consultant has been trying to get me onto Mycophenolate before starting me on
Nintedanib
, as it is steroid sparing,but I hate feeling the way I do on this drug.
Blyth1
in
Lung Conditions Community Forum
6 months ago
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Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
9 months ago
Not feeling tip top
Happy to be home but the Drs in respiratory unit said I probably need to go onto the next tablet-
Nintedanib
but they would leave that for the ILD team to decide. I know I am fortunate, loving family and supportive friends but sometimes life can be such a blooming challenge!!!
Happy to be home but the Drs in respiratory unit said I probably need to go onto the next tablet-
Nintedanib
but they would leave that for the ILD team to decide. I know I am fortunate, loving family and supportive friends but sometimes life can be such a blooming challenge!!!
Blyth1
in
Lung Conditions Community Forum
3 months ago
Nintedanib
Interested to know how well others get on with
Nintedanib
? Since starting on it in March I have been feeling ill most days (like coming down with flu). It seems to be worse about 5 hours after taking it (day & night)……
Interested to know how well others get on with
Nintedanib
? Since starting on it in March I have been feeling ill most days (like coming down with flu). It seems to be worse about 5 hours after taking it (day & night)……
Tawny10
in
Living with Interstitial Lung Disease (ILD)
9 months ago
pulmonary fibrosis
Hi everyone, Intersted in hearing off anyone who has this and takes the anti fibrotic drug
Nintedanib
Hi everyone, Intersted in hearing off anyone who has this and takes the anti fibrotic drug
Nintedanib
Hidden
in
Lung Conditions Community Forum
9 months ago
No appetite & nausea
Now on
Nintedanib
(taken with food) & Mycophenolate. Im struggling with fatigue but also nausea & have lost my appetite. Any tips would be very welcome??
Now on
Nintedanib
(taken with food) & Mycophenolate. Im struggling with fatigue but also nausea & have lost my appetite. Any tips would be very welcome??
Tawny10
in
Lung Conditions Community Forum
10 months ago
Idiopathic pulmonary fibrosis
I have been on the anti fibrotic drug
nintedanib
for one year. I have recently had a knee replacement (six and a half weeks ago)
I have been on the anti fibrotic drug
nintedanib
for one year. I have recently had a knee replacement (six and a half weeks ago)
Hidden
in
Lung Conditions Community Forum
1 year ago
Time flies... when you're having babies!
I'm convinced that all the exercise plays a huge role in all this but it would be wrong to overlook the impact of the
nintedanib
, too, which certainly seems to have helped stem the flow. Hopefully, it'll buy me the time to get that transplant before my window closes.
I'm convinced that all the exercise plays a huge role in all this but it would be wrong to overlook the impact of the
nintedanib
, too, which certainly seems to have helped stem the flow. Hopefully, it'll buy me the time to get that transplant before my window closes.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 months ago
Lung Function Test
It proves that
Nintedanib
and Pirefidone (which I'm on) has worked to help the progression of this nasty disease. Ofcourse this medication has nasty side effects which are currently really getting to me. Indigestion and lots of pain.
It proves that
Nintedanib
and Pirefidone (which I'm on) has worked to help the progression of this nasty disease. Ofcourse this medication has nasty side effects which are currently really getting to me. Indigestion and lots of pain.
Suzie42
in
Lung Conditions Community Forum
11 months ago
ILD/ PULMONARY HYPERTENSION
Also using
Nintedanib
from Wythenshswe hospital to stop the progression I've got a long transplant assessment in October which I think I ll fail because of my BMI & probably many other things too
Also using
Nintedanib
from Wythenshswe hospital to stop the progression I've got a long transplant assessment in October which I think I ll fail because of my BMI & probably many other things too
Sara_2611
in
Living with Interstitial Lung Disease (ILD)
1 year ago
Mycophenolate
It seems to make me incredibly drowsy ie really struggling to stay awake in the daytime which of course messes up my sleep pattern (if I don’t take the daytime dose I’m much better & then sleep well at night) I’m also on
Nintedanib
, 10mg Pred, Fostair….
It seems to make me incredibly drowsy ie really struggling to stay awake in the daytime which of course messes up my sleep pattern (if I don’t take the daytime dose I’m much better & then sleep well at night) I’m also on
Nintedanib
, 10mg Pred, Fostair….
Tawny10
in
Living with Interstitial Lung Disease (ILD)
1 year ago
Nintedanib
Hi I have ILD and my Consultant is thinking of putting me on
Nintedanib
. Just wondering if anyone is on this and how they get on. Thanks
Hi I have ILD and my Consultant is thinking of putting me on
Nintedanib
. Just wondering if anyone is on this and how they get on. Thanks
juliecarey
in
Lung Conditions Community Forum
1 year ago
Hi everyone Happy Mayday
Hi everyone Sorry Ive been away for so long Ive not been well at all & having to do my 2 litres oxygen survivial days (except today as its bank hol) Ive been taking
nintedanib
tablets issued to me by Wythenshawe & theyre not too bad -I dont seem to be having any side effects Im on oxygen -I ve
Hi everyone Sorry Ive been away for so long Ive not been well at all & having to do my 2 litres oxygen survivial days (except today as its bank hol) Ive been taking
nintedanib
tablets issued to me by Wythenshawe & theyre not too bad -I dont seem to be having any side effects Im on oxygen -I ve
horseygirl_0103
in
Living with Interstitial Lung Disease (ILD)
1 year ago
Will lower dose of Nintedanib stop the terrible side effects?
After a long wait, a bronchoscopy and endless CT scans and lung function tests, I finally started on the standard dose of 2 x 150 mg
Nintedanib
at the end of February. The first few weeks weren’t too bad, my gut was unhappy and I experienced the expected diarrhoea. Took Imodium as advised.
After a long wait, a bronchoscopy and endless CT scans and lung function tests, I finally started on the standard dose of 2 x 150 mg
Nintedanib
at the end of February. The first few weeks weren’t too bad, my gut was unhappy and I experienced the expected diarrhoea. Took Imodium as advised.
Tryphena134
in
Lung Conditions Community Forum
1 year ago
NINTEDANIB (OFEV)
As a result of this, the doctor has decided to reduce my
nintedanib
medication from 150mg twice a day to 100mg twice a day. Was told it may take a while for the new prescription to come through so I’ll report back how I get on in the months ahead.
As a result of this, the doctor has decided to reduce my
nintedanib
medication from 150mg twice a day to 100mg twice a day. Was told it may take a while for the new prescription to come through so I’ll report back how I get on in the months ahead.
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
1 year ago
Home Oxygen is a game changer
This is obviously great news and could indicate that the
Nintedanib
is having some kind of beneficial impact. Last and by no means least, today marks 19 years since my Mum passed away.
This is obviously great news and could indicate that the
Nintedanib
is having some kind of beneficial impact. Last and by no means least, today marks 19 years since my Mum passed away.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
1 year ago
Mercedes 15
hi there is there anyone who has idiopathic pulmonary fibrosis and take
nintedanib
?
hi there is there anyone who has idiopathic pulmonary fibrosis and take
nintedanib
?
Hidden
in
Lung Conditions Community Forum
2 years ago
Diarrhea from SSc ILD medication Ofev (Nintedanib)
Dear SSc folks, are you suffering from significant Diarrhea resulting from taking Ofev (
Nintedanib
) ? If so, how do get this under control ? Thank you :-)
Dear SSc folks, are you suffering from significant Diarrhea resulting from taking Ofev (
Nintedanib
) ? If so, how do get this under control ? Thank you :-)
waermebaer
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
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