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Coping with medication side effects
I am 28 and I am on day 2 taking Cellcept (an immunosuppressant) for lupus
nephritis
and I haven't been feeling so good since yesterday. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
I am 28 and I am on day 2 taking Cellcept (an immunosuppressant) for lupus
nephritis
and I haven't been feeling so good since yesterday. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
November90
in
Anxiety Support
5 years ago
Live Vaccine
If a lupus
nephritis
patient is administered live polio vaccine what will be the effect? Will it cause poliomyelitis as well? Patient is currently on high dose cellcept and prednisone
If a lupus
nephritis
patient is administered live polio vaccine what will be the effect? Will it cause poliomyelitis as well? Patient is currently on high dose cellcept and prednisone
Addiction88
in
LUPUS UK
5 years ago
Using Hydroxychloroquine for Less Than 1 Year Raises Patients’ Likelihood of Flares, Study Suggests
Secondary goals were specific manifestations of flares, such as arthritis, low levels of blood cells, oral ulcers, or lupus
nephritis
(a type of kidney inflammation).
Secondary goals were specific manifestations of flares, such as arthritis, low levels of blood cells, oral ulcers, or lupus
nephritis
(a type of kidney inflammation).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
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Secondary Sjögren’s Syndrome in Lupus Increases with Age
Compared with SLE patients who did not have secondary Sjögren’s syndrome, those with secondary Sjögren’s syndrome were an average of nine years older, more likely to be female, 96 percent versus 84 percent, and more likely to have leukopenia, 57 percent versus 45 percent, but less likely to have
nephritis
Compared with SLE patients who did not have secondary Sjögren’s syndrome, those with secondary Sjögren’s syndrome were an average of nine years older, more likely to be female, 96 percent versus 84 percent, and more likely to have leukopenia, 57 percent versus 45 percent, but less likely to have
nephritis
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Entry Requirements for Lupus Nephritis Clinical Trials Exclude Majority of Patients in UK Registry, Study Says
Lupus
nephritis
(inflammation of the kidneys) can be a serious complication of systemic lupus erythematosus (SLE). The standard of care for lupus
nephritis
is treatment using glucocorticoids or conventional immunosuppressants.
Lupus
nephritis
(inflammation of the kidneys) can be a serious complication of systemic lupus erythematosus (SLE). The standard of care for lupus
nephritis
is treatment using glucocorticoids or conventional immunosuppressants.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Fracture Risk is High in Lupus
The risk is particularly high among patients with lupus
nephritis
. In a study published in a recent issue of Arthritis & Rheumatology, investigators foiund that patients with lupus
nephritis
were far more likely to break a bone than patients who do not have lupus.
The risk is particularly high among patients with lupus
nephritis
. In a study published in a recent issue of Arthritis & Rheumatology, investigators foiund that patients with lupus
nephritis
were far more likely to break a bone than patients who do not have lupus.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Insomnia on CellCept? Sleeping pills that helped?HELP
I have been on cellcept for around 1 month, I started it for lupus
nephritis
. I noticed sleep issues as I was titrating up from 500mg, I am now on 1gram BID and have HORRIBLE insomnia--not falling asleep at all , just laying in bed exhausted with closed eyes.
I have been on cellcept for around 1 month, I started it for lupus
nephritis
. I noticed sleep issues as I was titrating up from 500mg, I am now on 1gram BID and have HORRIBLE insomnia--not falling asleep at all , just laying in bed exhausted with closed eyes.
NewEngland3
in
LUPUS UK
5 years ago
Prednisone
I've been put on Prednisone for (suspected) lupus
nephritis
- still waiting for the biopsy results to come back, but the consultant I saw says he is 99% sure that this is what it is. I had a large dose given intravenously over the weekend (they call it "pulse steroids", I think, not sure why!)
I've been put on Prednisone for (suspected) lupus
nephritis
- still waiting for the biopsy results to come back, but the consultant I saw says he is 99% sure that this is what it is. I had a large dose given intravenously over the weekend (they call it "pulse steroids", I think, not sure why!)
November90
in
LUPUS UK
5 years ago
Lupus nephritis
Hello everyone, I've just been diagnosed with Lupus
nephritis
on to of my sle.....has anyone undergone treatment for this as I've been offered the choice of two. mycophenolate vs cyclophosphamide Ones intravenous and ones tablet ...any information on how you felt while taking either would be a great
Hello everyone, I've just been diagnosed with Lupus
nephritis
on to of my sle.....has anyone undergone treatment for this as I've been offered the choice of two. mycophenolate vs cyclophosphamide Ones intravenous and ones tablet ...any information on how you felt while taking either would be a great
Northernd
in
LUPUS UK
5 years ago
Alendronic acid (sodium alendronate): a dilemma...
Hello lupus sufferers, When I was first diagnosed with SLE, DLE and lupus
nephritis
some 4 years ago I was initially prescribed high doses of corticosteroid, Prednisolone, 50mg to begin with, MMF, hydroxychlorine etc including weekly 70mg tablets of Alendronic acid.
Hello lupus sufferers, When I was first diagnosed with SLE, DLE and lupus
nephritis
some 4 years ago I was initially prescribed high doses of corticosteroid, Prednisolone, 50mg to begin with, MMF, hydroxychlorine etc including weekly 70mg tablets of Alendronic acid.
Hidden
in
LUPUS UK
5 years ago
Fatigue, or just being lazy?!
I've just VERY recently been diagnosed with lupus and Class III lupus
nephritis
. The diagnosis came as something of a shock since I was actually feeling pretty well and had only been investigated further because of some concerning blood test results.
I've just VERY recently been diagnosed with lupus and Class III lupus
nephritis
. The diagnosis came as something of a shock since I was actually feeling pretty well and had only been investigated further because of some concerning blood test results.
November90
in
LUPUS UK
5 years ago
New therapies for systemic lupus erythematosus - past imperfect, future tense
Arguably, the success of B cell depletion with rituximab in open-label clinical trials, the approval of belimumab (which blocks B cell-activating factor (BAFF)) for use in patients with lupus
nephritis
in the USA and in difficult-to-treat patients with SLE in the UK and the recognition that clinical
Arguably, the success of B cell depletion with rituximab in open-label clinical trials, the approval of belimumab (which blocks B cell-activating factor (BAFF)) for use in patients with lupus
nephritis
in the USA and in difficult-to-treat patients with SLE in the UK and the recognition that clinical
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Anyone with pure membranous (lupus nephritis Type 5)?
I have had lupus since 22. I never had any kidney issues until this year--at age 44--I am beyond angry about this--I have never heard of it attacking your kidneys so late in the game--I have type 5--pure membranous nephropathy and very high protein in urine. I will be going on cellcept(mycophenolate)
I have had lupus since 22. I never had any kidney issues until this year--at age 44--I am beyond angry about this--I have never heard of it attacking your kidneys so late in the game--I have type 5--pure membranous nephropathy and very high protein in urine. I will be going on cellcept(mycophenolate)
NewEngland3
in
LUPUS UK
5 years ago
Proton Pump Inhibitors (ppi's) - here is a short, digestible but expert article.
Some of these adverse events are already noted in the FDA-approved product information, such as Clostridium difficile–associated diarrhea (CDAD); increased risk of osteoporosis-related fractures of the hip, wrist, or spine; vitamin B12 deficiency; hypomagnesemia; acute interstitial
nephritis
; and diminished
Some of these adverse events are already noted in the FDA-approved product information, such as Clostridium difficile–associated diarrhea (CDAD); increased risk of osteoporosis-related fractures of the hip, wrist, or spine; vitamin B12 deficiency; hypomagnesemia; acute interstitial
nephritis
; and diminished
gutlesswonder
in
Oesophageal & Gastric Cancer
5 years ago
Lupus, Vasculitis and Blocked Blood Vessels
Small-vessel vasculitis can also be seen in children as palpable purpura (red dots that feel like tiny bumps), which causes a rash, but also causes abdominal pain and kidney inflammation (called Henoch-Schoenlein purpura, or IgA
nephritis
).
Small-vessel vasculitis can also be seen in children as palpable purpura (red dots that feel like tiny bumps), which causes a rash, but also causes abdominal pain and kidney inflammation (called Henoch-Schoenlein purpura, or IgA
nephritis
).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
REMISSION.
I've been diagnosed with Lupus with
Nephritis
about a year ago and I've been on steroids since then though the dose varies now. My physician told me that judging on my blood result, look's like I'm on remission.
I've been diagnosed with Lupus with
Nephritis
about a year ago and I've been on steroids since then though the dose varies now. My physician told me that judging on my blood result, look's like I'm on remission.
salty_yogurt
in
LUPUS UK
5 years ago
Stem Cells Have Promise for SLE Treatment Across Ethnicities, Proof-of-concept Study Shows
The trial (2017-000391-28), already approved by the Spanish Medicines Agency, will include 36 patients with lupus
nephritis
(a common kidney inflammation in SLE patients) and randomly assign them an infusion with MSCs or a placebo.
The trial (2017-000391-28), already approved by the Spanish Medicines Agency, will include 36 patients with lupus
nephritis
(a common kidney inflammation in SLE patients) and randomly assign them an infusion with MSCs or a placebo.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
SLE & Lupus Nephritis, now liver problems
So currently on steroids and imunosuppresants and 6 monthly doses of rituximab for SLE & Lupus
Nephritis
. Saw my Nephrologist last Monday who was concerned that my Liver function result has been 'off ' for the last 5 years and getting worse and asked if it had ever been investigated.
So currently on steroids and imunosuppresants and 6 monthly doses of rituximab for SLE & Lupus
Nephritis
. Saw my Nephrologist last Monday who was concerned that my Liver function result has been 'off ' for the last 5 years and getting worse and asked if it had ever been investigated.
MOOG144
in
LUPUS UK
5 years ago
Lupus nephritis Grade IV...... Proliferative
I am studying lot of literature on internet regarding lupus
nephritis
and it has surprised me that almost all literature focuses on the use of corticosteroids, immunosupprents in the treatment of lupus
nephritis
but my doctor has not prescribed any of these in the last 4 years even when the creatinine
I am studying lot of literature on internet regarding lupus
nephritis
and it has surprised me that almost all literature focuses on the use of corticosteroids, immunosupprents in the treatment of lupus
nephritis
but my doctor has not prescribed any of these in the last 4 years even when the creatinine
Drakula
in
LUPUS UK
5 years ago
childhood and adult nephrosis
old,and had numerous relapses for the next 10+ years.I was disease free for the next 13 years and relapsed in my early 30s.The disease is a lot different as a adult,i relapsed 2 more times over the next 10 years.I am now 54 years old and all is well.If anyone has questions about childhood or adult
nephritis
old,and had numerous relapses for the next 10+ years.I was disease free for the next 13 years and relapsed in my early 30s.The disease is a lot different as a adult,i relapsed 2 more times over the next 10 years.I am now 54 years old and all is well.If anyone has questions about childhood or adult
nephritis
oriole12
in
Parents of Children with Kidney Disease
5 years ago
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