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Neomycin / Prednisolone
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Stopping abiraterone
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
chickgreen
in
Advanced Prostate Cancer
11 months ago
Chronic
3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet cough. Now I have excessive phlegm. Choking phlegm! Been thru blood work, Exray, ENT, Allergist, Pulmonologist, Asthma Testing, Emergency Room a couple of times, meds galore, nose sprays, prednisone a few times, antibiotics
3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet cough. Now I have excessive phlegm. Choking phlegm! Been thru blood work, Exray, ENT, Allergist, Pulmonologist, Asthma Testing, Emergency Room a couple of times, meds galore, nose sprays, prednisone a few times, antibiotics
Frustratedo
in
Lung Conditions Community Forum
11 months ago
new myocarditis MRI results; what now?
Dear Forumites, Yesterday I received results from my followup cMRI for myocarditis. The good news, it is better since the first cMRI in April. There is still swelling and enlargement of the heart walls, but not as much, and the EFs (ejection fractions) are both still down, but not as far down (55%
Dear Forumites, Yesterday I received results from my followup cMRI for myocarditis. The good news, it is better since the first cMRI in April. There is still swelling and enlargement of the heart walls, but not as much, and the EFs (ejection fractions) are both still down, but not as far down (55%
Britomartis29
in
British Heart Foundation
11 months ago
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Newly diagnosed
Hi everyone, I've just been told that my symptoms suggest I have PMR. My GP has sought advice from Rheumatology and been advised to treat as PMR and see how my symptoms go. I started 20mg of Prednisolone per day yesterday and within a few hours felt quite sick and a little dizzy with a very bad headache
Hi everyone, I've just been told that my symptoms suggest I have PMR. My GP has sought advice from Rheumatology and been advised to treat as PMR and see how my symptoms go. I started 20mg of Prednisolone per day yesterday and within a few hours felt quite sick and a little dizzy with a very bad headache
Kma123
in
PMRGCAuk
1 year ago
wrong diagnosis - paying the price!!
briefly, diagnosed by GP with PMR in April this year, on 15mg of prednisolone - total relief (all day/night). Rheumatology Consultant said not PMR as CRP normal and I’m 54 years old. Told to Fast taper 15, 10, 5 then off over 4 weeks. I was Ok down to 5mg, twinges started - told to continue off.
briefly, diagnosed by GP with PMR in April this year, on 15mg of prednisolone - total relief (all day/night). Rheumatology Consultant said not PMR as CRP normal and I’m 54 years old. Told to Fast taper 15, 10, 5 then off over 4 weeks. I was Ok down to 5mg, twinges started - told to continue off.
RedRum1968
in
PMRGCAuk
1 year ago
enteric coated empty capsules
My pharmacist has never heard of enteric Prednisone. Where can I buy empty enteric capsules to put prednisone in.
My pharmacist has never heard of enteric Prednisone. Where can I buy empty enteric capsules to put prednisone in.
darkred
in
PMRGCAuk
11 months ago
Prednisolone withdrawal.
I just came from a Rheumatologist appointment. He has discontinued my prednisolone. I'm currently taking 5/10mg. tablets. I ran out of the liquid about a week ago (15mls.) every morning. I started having severe GCA symptoms (headaches, scalp tenderness, jaw and gum pain). Also, my PMR symptoms have
I just came from a Rheumatologist appointment. He has discontinued my prednisolone. I'm currently taking 5/10mg. tablets. I ran out of the liquid about a week ago (15mls.) every morning. I started having severe GCA symptoms (headaches, scalp tenderness, jaw and gum pain). Also, my PMR symptoms have
pomeranion
in
PMRGCAuk
1 year ago
Trouble Tapering
I was diagnosed with PMR 2 years ago. My doctor started me on 40 mg prednisone. I think the higher dose was because I was in severe pain. It didn't take too long before I tapered to 20 mg. I then got down to 15 mg but had to go back up to 20 mg where I was stuck for a while. By this past February I had
I was diagnosed with PMR 2 years ago. My doctor started me on 40 mg prednisone. I think the higher dose was because I was in severe pain. It didn't take too long before I tapered to 20 mg. I then got down to 15 mg but had to go back up to 20 mg where I was stuck for a while. By this past February I had
noslak
in
PMRGCAuk
11 months ago
Rapid Taper
My Rheumatologist wanted me to taper in 6 days from 20mg to 0 prednisone in order to reassess me for PMR. Even though I did have elevated CRP and ESR he is not quite sure since some of my symptoms weren’t gone. Will all my so called PMR symptoms return by the time I’m at O and will my markers be back
My Rheumatologist wanted me to taper in 6 days from 20mg to 0 prednisone in order to reassess me for PMR. Even though I did have elevated CRP and ESR he is not quite sure since some of my symptoms weren’t gone. Will all my so called PMR symptoms return by the time I’m at O and will my markers be back
3dogsheidi
in
PMRGCAuk
11 months ago
Flare or not
Five years on and been doing okay. Struggling to get below 1mg prednisone though. I've been splitting the 1mg and taking it slowly but maybe not slowly enough. I now live in new town with new doctor (two years here) . I'm growing conscious of morning aches and stiffness in both shoulders and hips
Five years on and been doing okay. Struggling to get below 1mg prednisone though. I've been splitting the 1mg and taking it slowly but maybe not slowly enough. I now live in new town with new doctor (two years here) . I'm growing conscious of morning aches and stiffness in both shoulders and hips
Kinnear
in
PMRGCAuk
11 months ago
Down to 1.5mg prednisone now for about 5 days
I do notice a few more stiffness issues in the morning. But no typical PMR pains. Left middle finger maybe slightly improved. I actually can sleep better now as the fingers dont hurt so much. The pain develops mostly when sleeping, I can not sleep in any position except for on my stomach or my hands
I do notice a few more stiffness issues in the morning. But no typical PMR pains. Left middle finger maybe slightly improved. I actually can sleep better now as the fingers dont hurt so much. The pain develops mostly when sleeping, I can not sleep in any position except for on my stomach or my hands
sdowney717
in
PMRGCAuk
11 months ago
Decision Xtandi or radiation
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
alperk
in
Advanced Prostate Cancer
11 months ago
Profile Update
I was going to update my profile but after adding additional ailments several times and then having them disappear, I have decided to inform via this post. I was diagnosed with PMR early 2016 with 15 mgs prednisone. Since that year I've had right leg replacement and bleeding ulcer at the same time
I was going to update my profile but after adding additional ailments several times and then having them disappear, I have decided to inform via this post. I was diagnosed with PMR early 2016 with 15 mgs prednisone. Since that year I've had right leg replacement and bleeding ulcer at the same time
pegpowell
in
PMRGCAuk
11 months ago
Should I persevere and keep working?
I’m just starting to taper from 10mg prednisolone to 9.5mg using the DSNS method. I’m 71 and until PMR hit I was very fit and active and still working 3 six hour shifts a week in a care home. After a couple of weeks off sick before the steroids kicked in I’ve continued to work but just the last few
I’m just starting to taper from 10mg prednisolone to 9.5mg using the DSNS method. I’m 71 and until PMR hit I was very fit and active and still working 3 six hour shifts a week in a care home. After a couple of weeks off sick before the steroids kicked in I’ve continued to work but just the last few
Mfaepink1973
in
PMRGCAuk
1 year ago
hrt/menopause and lupus
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
Babycakes1971
in
LUPUS UK
11 months ago
Itching due to medication??
Hello, I had a liver transplant 3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect. I was wondering if it could be a reaction to any
Hello, I had a liver transplant 3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect. I was wondering if it could be a reaction to any
Chasdog
in
British Liver Trust
11 months ago
shingles
I was diagnosed with PMR 3 years ago and after a fairly bumpy ride I have now been off Prednisone for two and a half months. I have been called for a Shingles vaccination. I reacted badly to the Covid jabs each time. I have had Shingles twice! Once about 35 years ago and then for the second time
I was diagnosed with PMR 3 years ago and after a fairly bumpy ride I have now been off Prednisone for two and a half months. I have been called for a Shingles vaccination. I reacted badly to the Covid jabs each time. I have had Shingles twice! Once about 35 years ago and then for the second time
Oldfogie
in
PMRGCAuk
11 months ago
Has 3 years on Prednisolone caused all these problems?
Hi All,I haven't posted for a while but regularly read the daily highlights and continue to learn about our condition and take comfort that there are others who understand the difficulties we face living with PMR. The last few weeks, have been challenging for a few reasons. I'm currently 3 weeks into
Hi All,I haven't posted for a while but regularly read the daily highlights and continue to learn about our condition and take comfort that there are others who understand the difficulties we face living with PMR. The last few weeks, have been challenging for a few reasons. I'm currently 3 weeks into
CarolF1312
in
PMRGCAuk
1 year ago
Head Pains
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and (touch wood) no jaw pain etc but it's new and obviously worried re GCA! Any ideas/advice/similar experiences please. I've just (last Weds) reduced
Pusph
in
PMRGCAuk
1 year ago
Taking ibuprofen while on a low dose of prednisolone
Hi I’ve already had one hip replaced 13 years ago (before my PMR diagnosis) and I’ve been lucky to get away with not having any trouble with the other - until recently. It’s deteriorating rapidly, and I’m on first steps of the “pathway” to have surgery, which I know will likely take years. The best
Hi I’ve already had one hip replaced 13 years ago (before my PMR diagnosis) and I’ve been lucky to get away with not having any trouble with the other - until recently. It’s deteriorating rapidly, and I’m on first steps of the “pathway” to have surgery, which I know will likely take years. The best
calibriel
in
PMRGCAuk
1 year ago
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