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Experiences with
Natural desiccated thyroid (NDT)
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Incontinence after RP and ADT
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
Runner1957
in
Advanced Prostate Cancer
1 year ago
Minor incontinence
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in the UK. My incontinence seemed to solve itself around 12 months after RP but never fully. In the past 12 months I still suffer from minor involuntary
Runner1957
in
Prostate Cancer Network
1 year ago
Enzalutamide or Darolutamide
Hi, I have advanced metastatic hormone sensitive prostate cancer and as well as my usual three monthly ADT (Lucrin-Depot) injection, I have been offered either Enzalutamide (Xtandi) or Darolutamide (Nubeqa). My PSA is currently below 0.1 due to the Lucrin-Depot. I am a bit nervous at taking additional
Hi, I have advanced metastatic hormone sensitive prostate cancer and as well as my usual three monthly ADT (Lucrin-Depot) injection, I have been offered either Enzalutamide (Xtandi) or Darolutamide (Nubeqa). My PSA is currently below 0.1 due to the Lucrin-Depot. I am a bit nervous at taking additional
x-rays1
in
Advanced Prostate Cancer
1 year ago
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If all treatment has failed do you continue with ADT?
Now that all treatment has failed to stop the beast do you continue ADT ? Husband has failed out of 6 pluvicto and now 6 Jevtana. No further treatment is planned. Any reason to continue?
Now that all treatment has failed to stop the beast do you continue ADT ? Husband has failed out of 6 pluvicto and now 6 Jevtana. No further treatment is planned. Any reason to continue?
Cynthgob
in
Advanced Prostate Cancer
1 year ago
Success on NDT
I started Armour
NDT
at 1 grain and very slowly went up to 2.5. I had palpitations when I tried to increase it too fast but I have settled comfortably at this level. My brain fog is clearing, I have twice as much energy, if not more and miraculously my blood pressure is normal (on medication).
I started Armour
NDT
at 1 grain and very slowly went up to 2.5. I had palpitations when I tried to increase it too fast but I have settled comfortably at this level. My brain fog is clearing, I have twice as much energy, if not more and miraculously my blood pressure is normal (on medication).
Piranesi55
in
Thyroid UK
2 years ago
Followup on friend I mentioned.
He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is saying it's Stage 1., which is absurd unless I'm woefully ill-informed. There is a good chance of miscommunication here. They go back to Urologist Thursday, so perhaps I'm posting this prematurely. (I have their permission
He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is saying it's Stage 1., which is absurd unless I'm woefully ill-informed. There is a good chance of miscommunication here. They go back to Urologist Thursday, so perhaps I'm posting this prematurely. (I have their permission
WhatHump
in
Prostate Cancer Network
1 year ago
Can you really end all ADT?
Hello all warriors! My husband is on 23 of 44 IG/IMRT treatments. Radiology Oncologist has suggested he stop all Elligard & Zytiga ehen he finishes his radiation treatments His 2nd opinion radiologist determined that bone Mets at dx were likely” over called “ What’s your opinion? He hates how he
Hello all warriors! My husband is on 23 of 44 IG/IMRT treatments. Radiology Oncologist has suggested he stop all Elligard & Zytiga ehen he finishes his radiation treatments His 2nd opinion radiologist determined that bone Mets at dx were likely” over called “ What’s your opinion? He hates how he
Keeper70
in
Advanced Prostate Cancer
1 year ago
PSA after 4-5 months on Lupron (Scholz)?
Just watched a Scholz (PCRI) video posted last week about PSA. He said multiple times that PSA should reach a nadir of <0.1 after 4-5 months on 1st generation ADT and that if it didn't "[i]something's wrong, that is an unusual type of prostate cancer that has some hormone resistance and studies over
Just watched a Scholz (PCRI) video posted last week about PSA. He said multiple times that PSA should reach a nadir of <0.1 after 4-5 months on 1st generation ADT and that if it didn't "[i]something's wrong, that is an unusual type of prostate cancer that has some hormone resistance and studies over
Gl448
in
Advanced Prostate Cancer
1 year ago
NDT suppliers
Looking for information regarding
NDT
suppliers. Please advise by private message. Many Thanks
Looking for information regarding
NDT
suppliers. Please advise by private message. Many Thanks
Caze
in
Thyroid UK
2 years ago
Triple Therapy
I started with Lupron+Abiraterone + Docetaxel. As I mentioned before elevated liver enzymes caused MO to place me on an Abiraterone vacation after cycle 1 of Docetaxel. Docetaxel was reduced to 3/4 dosage. Yesterday, I received my 3rd cycle of 3/4 dosage of Docetaxel, my 3 month injection of Lupron
I started with Lupron+Abiraterone + Docetaxel. As I mentioned before elevated liver enzymes caused MO to place me on an Abiraterone vacation after cycle 1 of Docetaxel. Docetaxel was reduced to 3/4 dosage. Yesterday, I received my 3rd cycle of 3/4 dosage of Docetaxel, my 3 month injection of Lupron
TMcgee
in
Advanced Prostate Cancer
1 year ago
Almost forgot I have PC
I have been off the grid for a while. Back in late November, I started having bladder problems including bleeding, urgency, frequency and incontinence. In December I was diagnosed with stage 3/b bladder cancer. In late January I had open Cystectomy and was in the hospital for 10 days. My MO put my PC
I have been off the grid for a while. Back in late November, I started having bladder problems including bleeding, urgency, frequency and incontinence. In December I was diagnosed with stage 3/b bladder cancer. In late January I had open Cystectomy and was in the hospital for 10 days. My MO put my PC
old64horn
in
Advanced Prostate Cancer
1 year ago
Enzalutamide/Xtandi monotherapy as ADT with fewer side effects than Lupron
Enzalutamide monotherapy can improve the quality of live for advanced prostate cancer patients. Thank you, Prof. Tombal, for promoting this arm in the Embark trial! Enzalutamide does not lower testosterone and estrogen, it even increases the level of these. This avoids the following side effects of
Enzalutamide monotherapy can improve the quality of live for advanced prostate cancer patients. Thank you, Prof. Tombal, for promoting this arm in the Embark trial! Enzalutamide does not lower testosterone and estrogen, it even increases the level of these. This avoids the following side effects of
GP24
in
Advanced Prostate Cancer
1 year ago
Xtandi (enzalutamide) alone is superior to ADT alone at preventing metastases in "high-risk" recurrent men
"High-Risk"recurrence was defined as men who have had primary therapy (prostatectomy or radiation) but have had rising PSA but no detectable (on bone scan/CT) metastases yet and T≥150 ng/dl, and: • PSA doubling time ≤ 9 months, or • PSA≥ 1 ng/ml post-prostatectomy, or • PSA≥ nadir+2 ng/ml post-primary
"High-Risk"recurrence was defined as men who have had primary therapy (prostatectomy or radiation) but have had rising PSA but no detectable (on bone scan/CT) metastases yet and T≥150 ng/dl, and: • PSA doubling time ≤ 9 months, or • PSA≥ 1 ng/ml post-prostatectomy, or • PSA≥ nadir+2 ng/ml post-primary
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
Avioding Coming a cropper when we are trying to regain a level of fitness
I wondered if anyone else has experience of getting back to some degree of fitness once the dose of thyroid hormones was adequate - whatever the form that took (T4 only, T3 only, Combo T4/T3 or
NDT
). thought it might be good to share this, in the hope of others avoiding the mistakes I made.
I wondered if anyone else has experience of getting back to some degree of fitness once the dose of thyroid hormones was adequate - whatever the form that took (T4 only, T3 only, Combo T4/T3 or
NDT
). thought it might be good to share this, in the hope of others avoiding the mistakes I made.
Charlie-Farley
in
Thyroid UK
1 year ago
Low T
My husband has been on "vacation" from ADT, zytiga and prednisone for a year. His PSA is tested every 3 months. Today's number is still <0.1 ng/ml. However, his T was slowly building...17, 24, 42 and now dropping to 34. Should I be worried?
My husband has been on "vacation" from ADT, zytiga and prednisone for a year. His PSA is tested every 3 months. Today's number is still <0.1 ng/ml. However, his T was slowly building...17, 24, 42 and now dropping to 34. Should I be worried?
mustang-66
in
Advanced Prostate Cancer
1 year ago
Rethinking Radiation to spine
Has anybody here had radiation to spine mets as treatment only? Not for pain relief necessarily. I am waiting for approval from insurance to radiate 4 smalls spots only seen on Pylarify PET. I had the risks explained to me and my concern is that maybe I should let the ADT and 2nd gen do its work and
Has anybody here had radiation to spine mets as treatment only? Not for pain relief necessarily. I am waiting for approval from insurance to radiate 4 smalls spots only seen on Pylarify PET. I had the risks explained to me and my concern is that maybe I should let the ADT and 2nd gen do its work and
treedown
in
Advanced Prostate Cancer
1 year ago
Additional Drug Choice
I started my ADT treatment with Eligard and Xtandi but had to change due to the cardiovascular side effects. I have been on Orgovyx alone for 10 months. My PSA is undetectable and my testosterone is 13. The drug is doing what it should. Side effects are hot flashes, fatigue, weight gain, and muscle loss
I started my ADT treatment with Eligard and Xtandi but had to change due to the cardiovascular side effects. I have been on Orgovyx alone for 10 months. My PSA is undetectable and my testosterone is 13. The drug is doing what it should. Side effects are hot flashes, fatigue, weight gain, and muscle loss
jcarey79
in
Advanced Prostate Cancer
1 year ago
Cellular T3 & cortisol
(Peatfield “how to look after your thyroid”) [/i] [i]If, upon starting
NDT
, you experience symptoms, including anxiety, insomnia, shakiness, sweating, dizziness, feeling spaced out its a strong sign that you may need adrenal support.
(Peatfield “how to look after your thyroid”) [/i] [i]If, upon starting
NDT
, you experience symptoms, including anxiety, insomnia, shakiness, sweating, dizziness, feeling spaced out its a strong sign that you may need adrenal support.
Hidden
in
Thyroid UK
2 years ago
Clear PSMA scan.?
I started your journey in2018 with a G 3+4 and PSA of 28 ..I went on ADT and had Cyberknife SBRT treatment on my prostate and a suspect rib spot after a PSMA scan , All was good until my psa started to rise when I came off ADT ..My PSA went from 0.06 to 1.2 over a year . I’ve had another PSMA scan in
I started your journey in2018 with a G 3+4 and PSA of 28 ..I went on ADT and had Cyberknife SBRT treatment on my prostate and a suspect rib spot after a PSMA scan , All was good until my psa started to rise when I came off ADT ..My PSA went from 0.06 to 1.2 over a year . I’ve had another PSMA scan in
Walliam
in
Advanced Prostate Cancer
1 year ago
Next Step?
I have been treated for more than 10 years (except for 3 vacations during the first 5 years) and for the most part have been on Lupron and Zytiga. Starting 2 years ago my PSA starting rising from below .05 (MSKCC doesn't measure anything lower than that) up to about .32 over the course of a year. At
I have been treated for more than 10 years (except for 3 vacations during the first 5 years) and for the most part have been on Lupron and Zytiga. Starting 2 years ago my PSA starting rising from below .05 (MSKCC doesn't measure anything lower than that) up to about .32 over the course of a year. At
jfoesq
in
Advanced Prostate Cancer
1 year ago
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