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Natural desiccated thyroid (NDT)
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Radiation for Salvage Treatment
I am about to start salvage treatment after a failed surgery and a rising PSA value of 0.1. However, I would like to know if weeks of external radiation with ADT, is the best treatment option here. The idea of blindly radiating pelvic area with a re-recurrence a few years later does not appeal to me.
I am about to start salvage treatment after a failed surgery and a rising PSA value of 0.1. However, I would like to know if weeks of external radiation with ADT, is the best treatment option here. The idea of blindly radiating pelvic area with a re-recurrence a few years later does not appeal to me.
Rams91
in
Prostate Cancer Network
9 months ago
Update on my father
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
jberg22
in
Advanced Prostate Cancer
9 months ago
moving from ndt to t4/t3 due to cost
i’m on 4 grains of NP and two metavive ii I have hashis and have been on
ndt
for around 7 years In 2014 I paid around £65 for 100 grains of Nstire Throid 5 grain which lasted 3 months.
i’m on 4 grains of NP and two metavive ii I have hashis and have been on
ndt
for around 7 years In 2014 I paid around £65 for 100 grains of Nstire Throid 5 grain which lasted 3 months.
london81
in
Thyroid UK
2 years ago
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Met with Radiation Oncologist
Met with radiation oncologist today. His recommendation was Cyberknife, no ADT. He did say that if I felt more comfortable with surgery that there was an "amazing" surgeon within 100 miles that he would recommend. I liked the guy, he has been doing Cyberknife for years and felt that with a co-existing
Met with radiation oncologist today. His recommendation was Cyberknife, no ADT. He did say that if I felt more comfortable with surgery that there was an "amazing" surgeon within 100 miles that he would recommend. I liked the guy, he has been doing Cyberknife for years and felt that with a co-existing
Chasbearcat999
in
Prostate Cancer Network
9 months ago
Appreciate feedback on my going forward plan & timing
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
Murk
in
Prostate Cancer Network
9 months ago
Firmagon vs Lupron vs Orgovyxx
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
SilverSeppi
in
Advanced Prostate Cancer
9 months ago
Revisiting Intermittent Therapy in Metastatic Prostate Cancer
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
skiingfiend
in
Advanced Prostate Cancer
9 months ago
What study says Zytiga 2 yrs , ADT 3 yrs ?
Im off to see my MO today and am getting close to the 2 yr. mark . All is good so far . I just need to know what was the study that suggests ADT for 3yrs and Zytiga + pred. for 2 yrs . I think tall Allen mentioned it . Thanks , SemperFi , JJ
Im off to see my MO today and am getting close to the 2 yr. mark . All is good so far . I just need to know what was the study that suggests ADT for 3yrs and Zytiga + pred. for 2 yrs . I think tall Allen mentioned it . Thanks , SemperFi , JJ
reconjj
in
Advanced Prostate Cancer
9 months ago
natural dessicated thyroid
hi, I live in Manchester and looking for someone who can prescribe
NDT
? Any ideas? Thanks
hi, I live in Manchester and looking for someone who can prescribe
NDT
? Any ideas? Thanks
Aaaaaddddd
in
Thyroid UK
2 years ago
taxotere and PSA
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
CWT53
in
Advanced Prostate Cancer
9 months ago
Just for fun--Amazon product notice
I have ordered beta-glucans from Amazon 16 times. Now I get this message (it had the order number and Amazon product number--it was not spam): Dear Amazon Customer, We write to notify you of a potential safety concern with a product that you purchased on Amazon.com. YOUR ORDER ID: 114-2282517-4981047
I have ordered beta-glucans from Amazon 16 times. Now I get this message (it had the order number and Amazon product number--it was not spam): Dear Amazon Customer, We write to notify you of a potential safety concern with a product that you purchased on Amazon.com. YOUR ORDER ID: 114-2282517-4981047
cigafred
in
Fight Prostate Cancer
9 months ago
Can you reject GNRH analogues? Consequences? Please help.
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
SeventeenNineteen
in
Endometriosis UK
9 months ago
Private doctor prescribing T3: south Wales, SW?
I've been privately prescribed T3 and
NDT
for some years. The prescribing doctor is packing up, so no more scripts from them after early 2023. I will ask NHS Wales to take over prescribing.
I've been privately prescribed T3 and
NDT
for some years. The prescribing doctor is packing up, so no more scripts from them after early 2023. I will ask NHS Wales to take over prescribing.
megarub
in
Thyroid UK
2 years ago
Interesting effect of NDT. Anyone else experienced this??
i've been on
NDT
since July. Gradually building up towards 2 grains. Currently on 1.5 as a split dose -- 1 grain in the morning, 1/2 as I go to bed. The night time dose was only added since end Aug. I've had dreadful back pain at night.
i've been on
NDT
since July. Gradually building up towards 2 grains. Currently on 1.5 as a split dose -- 1 grain in the morning, 1/2 as I go to bed. The night time dose was only added since end Aug. I've had dreadful back pain at night.
Kit_Monster
in
Thyroid UK
2 years ago
Edema
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
gsun
in
Advanced Prostate Cancer
9 months ago
Questions about ADT drugs and insurance
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
SilverSeppi
in
Advanced Prostate Cancer
9 months ago
ADT duration
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
SimMartin
in
Advanced Prostate Cancer
9 months ago
Sourcing NDT
Hi all, I know this topic isn't really OK and frankly the fact that it isn't just shows how screwy our situation is. However, I'm hoping some kind souls might be kind and PM me please? I've scoured the net and all the sources I've seen look dodgy or extortionate. I'm afraid of the outcome if I
Hi all, I know this topic isn't really OK and frankly the fact that it isn't just shows how screwy our situation is. However, I'm hoping some kind souls might be kind and PM me please? I've scoured the net and all the sources I've seen look dodgy or extortionate. I'm afraid of the outcome if I
bewildered_hants
in
Thyroid UK
2 years ago
Advanced well woman blood test
Note I was run out of my
NDT
medicine for 1-2 weeks which maybe reason for low T3. Any thoughts on results and on the pituitary problem will be greatly appreciated.
Note I was run out of my
NDT
medicine for 1-2 weeks which maybe reason for low T3. Any thoughts on results and on the pituitary problem will be greatly appreciated.
MGid
in
Thyroid UK
2 years ago
Long survivors with ADT + Xtandi (Enzulatamide)
5 years after RPE and RT my PSA is rising again. I am advised to start ADT + Xtandi. Who are longest still on this combination without getting castration resistant?
5 years after RPE and RT my PSA is rising again. I am advised to start ADT + Xtandi. Who are longest still on this combination without getting castration resistant?
ElemanJ
in
Advanced Prostate Cancer
9 months ago
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