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Experiences with
Natural desiccated thyroid (NDT)
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Meridian Viewray is toast. Can Cyberkife machines use MRI the same way?
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Cancer2x
in
Advanced Prostate Cancer
7 months ago
I got some doubts about the know-how of my oncologist
I met with my oncologist last Friday and either I am confused or she is. I am open for both scenario. :) This post is sort of a follow-up on another I did back in August: https://healthunlocked.com/advanced-prostate-cancer/posts/149892314/need-help-in-understanding-psa-level-recurrence-after-treatment
I met with my oncologist last Friday and either I am confused or she is. I am open for both scenario. :) This post is sort of a follow-up on another I did back in August: https://healthunlocked.com/advanced-prostate-cancer/posts/149892314/need-help-in-understanding-psa-level-recurrence-after-treatment
Mascouche
in
Advanced Prostate Cancer
7 months ago
Urinary bother; is Flomax a solution?
SBRT plus ADT for 12 months after clean PSMA and 3+4, 4+3, and 4+4. Still up peeing 3 times a night after 4.5 months post radiation. (Down from 8 times). Does anyone know if Flomax will help? Or are there other solutions? I don’t want to take flomax if i don’t have yo as it screws with BP, but i will
SBRT plus ADT for 12 months after clean PSMA and 3+4, 4+3, and 4+4. Still up peeing 3 times a night after 4.5 months post radiation. (Down from 8 times). Does anyone know if Flomax will help? Or are there other solutions? I don’t want to take flomax if i don’t have yo as it screws with BP, but i will
Photographerhere
in
Prostate Cancer Network
7 months ago
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1st PSA Post SBRT + ADT: A Bounce?
I had a diagnosis of Gleason 3+4, probable ECE; Decipher .63. Received 5 Fraction SBRT at MSKCC (Dr. Zelefsky) in early January of this year. 6 months of ADT (Orgovyx) ended May 23, 2023. At the end of ADT, my PSA was <0.05 and Testosterone was 4. My first PSA Test was last Wednesday at Penn Medicine
I had a diagnosis of Gleason 3+4, probable ECE; Decipher .63. Received 5 Fraction SBRT at MSKCC (Dr. Zelefsky) in early January of this year. 6 months of ADT (Orgovyx) ended May 23, 2023. At the end of ADT, my PSA was <0.05 and Testosterone was 4. My first PSA Test was last Wednesday at Penn Medicine
Longrunner
in
Prostate Cancer Network
7 months ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
7 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
7 months ago
ADT (Lupron) and creatine?
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
Gs-rider
in
Advanced Prostate Cancer
7 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
7 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
7 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
7 months ago
ADT for how long..
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Justt
in
Advanced Prostate Cancer
7 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
7 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
7 months ago
Brother's numbers since ADT plus Orchiectomey since diagnosed in February
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Sparlingo
in
Advanced Prostate Cancer
7 months ago
ipp and salvage radiation
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Katamiran
in
Prostate Cancer Network
7 months ago
Been discharged
I don't know who's right in the
NDT
/suppressed TSH debate, but I do know that so far,
NDT
has given me some of my quality of life back in a short 6 months. I [i]wanted[/i] Levo to work for me; it didn't. It's definitely bittersweet.
I don't know who's right in the
NDT
/suppressed TSH debate, but I do know that so far,
NDT
has given me some of my quality of life back in a short 6 months. I [i]wanted[/i] Levo to work for me; it didn't. It's definitely bittersweet.
lau99
in
Thyroid UK
1 year ago
confused about supplements and certain foods
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
SierraSix
in
Advanced Prostate Cancer
7 months ago
wondering if traction for back is advised while on ADT
my nutty question, I have a back stretcher and it will pull vertebrae apart. U can do same by lying flat on a table gradually pulling yourself forward till abdomen and chest are perpendicular to floor and arms touching. Try at your own risk. I am not a doctor just an orthopedic nightmare with hundreds
my nutty question, I have a back stretcher and it will pull vertebrae apart. U can do same by lying flat on a table gradually pulling yourself forward till abdomen and chest are perpendicular to floor and arms touching. Try at your own risk. I am not a doctor just an orthopedic nightmare with hundreds
TuffNuttoCrack
in
Advanced Prostate Cancer
7 months ago
Castration resistant in just a year? Normal or not? Provenge in my future.
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
Gl448
in
Advanced Prostate Cancer
7 months ago
Ugg, can we talk erections
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
Yzinger
in
Advanced Prostate Cancer
7 months ago
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