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Nasu-Hakola disease
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Cardiac Cath this Friday
I last updated about my new dx of POTS. Since I seem to be a “difficult” case, my cardiologist wants to do a heart cath this Friday. I have not had any chest pain but the shortness of breath is adversely affecting daily. I have had all the pulmonary tests, CT’s and functional tests. I have the lungs
I last updated about my new dx of POTS. Since I seem to be a “difficult” case, my cardiologist wants to do a heart cath this Friday. I have not had any chest pain but the shortness of breath is adversely affecting daily. I have had all the pulmonary tests, CT’s and functional tests. I have the lungs
Wewo01
in
MPN Voice
17 days ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
6 months ago
PVC’s and Travel
I have been having PVC’s since chemo/covide vaccine (disagreement on what triggered them). They are almost permanent. Sometimes I get a couple of hours a day that I can’t feel them. My GP and Oncologist have been fab. But struggling to get cardiology to take me seriously. I’ve done a 24 hour halter
I have been having PVC’s since chemo/covide vaccine (disagreement on what triggered them). They are almost permanent. Sometimes I get a couple of hours a day that I can’t feel them. My GP and Oncologist have been fab. But struggling to get cardiology to take me seriously. I’ve done a 24 hour halter
Linz888
in
Atrial Fibrillation Support
19 days ago
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Autoimmune condition
Hi everyone. The results from my ANA and ENA came back with a broad diagnosis of connective tissue disease. They've ruled out lupus. This plus the thyroid stuff is going to be fun to deal with 😅. The Coeliac disease test was inconclusive because my GP forgot to advise me to have bread for at least 4
Hi everyone. The results from my ANA and ENA came back with a broad diagnosis of connective tissue disease. They've ruled out lupus. This plus the thyroid stuff is going to be fun to deal with 😅. The Coeliac disease test was inconclusive because my GP forgot to advise me to have bread for at least 4
MauveMouse
in
Thyroid UK
3 months ago
Bisaprolol Advice
Hi all 69 year old male had AF for a couple of years, prior to this i was diagnosed with high BP by my GP and was on medication Atenolol and Amlodipine, was on this for few years and was fine, then a couple of years ago i started to get very short of breath, GP diagnosed AF, to cut a long story short
Hi all 69 year old male had AF for a couple of years, prior to this i was diagnosed with high BP by my GP and was on medication Atenolol and Amlodipine, was on this for few years and was fine, then a couple of years ago i started to get very short of breath, GP diagnosed AF, to cut a long story short
alpha666
in
Atrial Fibrillation Support
19 days ago
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
6 months ago
Atrial Fibrillation AF (Drug information)
Upon diagnosis of atrial fibrillation (AF) many individuals are prescribed medication include antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Many can slow the activation of the heart muscle
Upon diagnosis of atrial fibrillation (AF) many individuals are prescribed medication include antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Many can slow the activation of the heart muscle
SamAdmin
Administrator
in
Atrial Fibrillation Support
19 days ago
Afib/Ectopic Beats Nightmare
Hi please bare with me first forum of any kind I've ever joined!! I Have had Afib for over 7 years (on 10mg Bisoprolol since) recently had Second Cardioversion which led to regular Ectopic Heart Beats and slow HR of 29bpm at lowest which led to hospitalisation. Now off Bisoprolol and After monitoring
Hi please bare with me first forum of any kind I've ever joined!! I Have had Afib for over 7 years (on 10mg Bisoprolol since) recently had Second Cardioversion which led to regular Ectopic Heart Beats and slow HR of 29bpm at lowest which led to hospitalisation. Now off Bisoprolol and After monitoring
Hidden
in
Atrial Fibrillation Support
20 days ago
Paroxysmal atrial fribulation
Hi me again what a journey via nhs and private cardiologist and ep still on bisoprolol and now flecainide which is playing hell with my cardio watch been told to ignore it and go by how I feel lol so a question for all been on 1.20 bisoprolol split tablet long storey last night heart rate kept
Hi me again what a journey via nhs and private cardiologist and ep still on bisoprolol and now flecainide which is playing hell with my cardio watch been told to ignore it and go by how I feel lol so a question for all been on 1.20 bisoprolol split tablet long storey last night heart rate kept
Aprilla12345
in
Atrial Fibrillation Support
20 days ago
L Glutamine
Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia and I don't know if I should take it. I have read it supports the stomach lining but I am concerned that this would only help a 'normal stomach' and I may do more harm than good. Thanks
Hi everyone, could anyone advice me on L Glutamine, I have Intestinal Metaplasia and I don't know if I should take it. I have read it supports the stomach lining but I am concerned that this would only help a 'normal stomach' and I may do more harm than good. Thanks
Helliborous
in
Pernicious Anaemia Society
6 months ago
Bisoprolol making things worse?
background I came off flecainide about a year ago as it made things worse https://healthunlocked.com/afassociation/posts/150257314/a-4-month-update-since-stopping-flecainide I’ve been on bisoprolol 1.25mg twice daily and upped that to 2.5mg twice daily in the middle of May. The past two days I’ve
background I came off flecainide about a year ago as it made things worse https://healthunlocked.com/afassociation/posts/150257314/a-4-month-update-since-stopping-flecainide I’ve been on bisoprolol 1.25mg twice daily and upped that to 2.5mg twice daily in the middle of May. The past two days I’ve
kitenski
in
Atrial Fibrillation Support
22 days ago
Amlodipine and calcium
Hi, I'm on amlodipine for high blood pressure, have been since 2016. I was diagnosed with osteopenia T score -1.1, in 2021 and put on calcium and vitamin D. I also take Vitamin K2 to help with the calcium absorption. I recently had an annual blood pressure review and although it's not gone up, it's still
Hi, I'm on amlodipine for high blood pressure, have been since 2016. I was diagnosed with osteopenia T score -1.1, in 2021 and put on calcium and vitamin D. I also take Vitamin K2 to help with the calcium absorption. I recently had an annual blood pressure review and although it's not gone up, it's still
Broseley
in
PMRGCAuk
22 days ago
Lipomatosis of the ileocaecal valve
Recently had a CT scan that revealed Lipomatosis of the ileocaecal valve.Has anyone else had this diagnosis that could offer any dietary advice? TIA. P.S. I'm currently waiting for an appointment with NHS Gastroenterologist but it could be next year.
Recently had a CT scan that revealed Lipomatosis of the ileocaecal valve.Has anyone else had this diagnosis that could offer any dietary advice? TIA. P.S. I'm currently waiting for an appointment with NHS Gastroenterologist but it could be next year.
Scoobiedoobie
in
IBS Network
22 days ago
Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Thal
in
Cure Parkinson's
6 months ago
racing heart , nausea sweating can’t breath young female
called an ambulance for the first time today. What was either the worst panic attack of my life or a cardiac episode. Went to hospital this morning and had multiple ekg, chest X-ray and bloods. I’m a young female. Blood test showed higher than normal Troponin but after the 3rd blood test in 9 hours my
called an ambulance for the first time today. What was either the worst panic attack of my life or a cardiac episode. Went to hospital this morning and had multiple ekg, chest X-ray and bloods. I’m a young female. Blood test showed higher than normal Troponin but after the 3rd blood test in 9 hours my
CopingwithEx
in
Anxiety Support
22 days ago
Impaired left ventricular relaxation /normal filling pressures-whatever that means
So I had an echo yesterday ordered by my cardiologist after I went to see him to ask for propranolol because my nurse navigator from my EP's office is weird about prescribing propranolol. I had an ablation in April. My cardiologist wants to rule out pulmonary vein stenosis following the ablation because
So I had an echo yesterday ordered by my cardiologist after I went to see him to ask for propranolol because my nurse navigator from my EP's office is weird about prescribing propranolol. I had an ablation in April. My cardiologist wants to rule out pulmonary vein stenosis following the ablation because
Iamfuzzyduck
in
Atrial Fibrillation Support
22 days ago
To share interesting experience!
Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
light
in
MPN Voice
22 days ago
Thank you all!
Firstly I would like to thank all of you who were so kind and answered my fears about my upcoming ablation. I'm so much happier about it now😊 Especially since I just came out of another tiring 28 hour episode! Sorry to ask yet another question but I was wondering if amiodarone was routinely prescribed
Firstly I would like to thank all of you who were so kind and answered my fears about my upcoming ablation. I'm so much happier about it now😊 Especially since I just came out of another tiring 28 hour episode! Sorry to ask yet another question but I was wondering if amiodarone was routinely prescribed
Spj57
in
Atrial Fibrillation Support
23 days ago
little advice from fellow Coeliac’s
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
RJane83
in
Gluten Free Guerrillas
3 months ago
Latest blood tests
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Button83
in
Thyroid UK
3 months ago
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