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Experiences with
Mycophenolate
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Ciclosporin and neuro-toxicity
I've recently changed drugs - from
mycophenolate
to Ciclosporin - because
mycophenolate
wasn't effective in controlling my lupus anymore (after only 18 months of taking it).
I've recently changed drugs - from
mycophenolate
to Ciclosporin - because
mycophenolate
wasn't effective in controlling my lupus anymore (after only 18 months of taking it).
Purpletop
in
LUPUS UK
9 years ago
Medication change
I've been on Azathioprine &
Mycophenolate
Mofetil both with no success. These have come up so I was wondering what they were like? Fighting on in hope something will work. :-)
I've been on Azathioprine &
Mycophenolate
Mofetil both with no success. These have come up so I was wondering what they were like? Fighting on in hope something will work. :-)
Snow-Drop
in
Behçet's UK
9 years ago
Mycophenolate and low blood pressure
Does anyone get they have low blood pressure as a side effect of
mycophenolate
? I have been getting unexplained dizziness for a long time which no one can explain and now it has been noted how low my blood pressure can drop which I have been told can be a side effect of the medication.
Does anyone get they have low blood pressure as a side effect of
mycophenolate
? I have been getting unexplained dizziness for a long time which no one can explain and now it has been noted how low my blood pressure can drop which I have been told can be a side effect of the medication.
Galaxy2
in
Vasculitis UK
9 years ago
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New plan of action
Have decided I will start
mycophenolate
in December and get another steroid injection to get me through the holidays. Lets hope this works.
Have decided I will start
mycophenolate
in December and get another steroid injection to get me through the holidays. Lets hope this works.
adrienneioannou
in
LUPUS UK
10 years ago
Lichen planus overlap SLE
I added
mycophenolate
to my daily meds last January, and since then I've had less of these recurring oral mucosa manifestations, which I've been managing & minimising via prescription topical steroids & meticulous oral hygiene routines + dental clinic monitoring etc.
I added
mycophenolate
to my daily meds last January, and since then I've had less of these recurring oral mucosa manifestations, which I've been managing & minimising via prescription topical steroids & meticulous oral hygiene routines + dental clinic monitoring etc.
Barnclown
in
LUPUS UK
9 years ago
Rituximab
Found releif from symptoms for about 8 months taking
mycophenolate
. Reduced steroids down to 5mg and was feeling pretty good.
Found releif from symptoms for about 8 months taking
mycophenolate
. Reduced steroids down to 5mg and was feeling pretty good.
joannebond360
in
LUPUS UK
10 years ago
Update and Further Vasculitis (WG) advice would be welcome
I have a CT scan on my lungs next week and the Rheumatologist has said that once the results of that are known and matched with the lung function checks, she will make the final decision as to whether I am treated with Cyclophosphamide or
Mycophenolate
.
I have a CT scan on my lungs next week and the Rheumatologist has said that once the results of that are known and matched with the lung function checks, she will make the final decision as to whether I am treated with Cyclophosphamide or
Mycophenolate
.
chsskg
in
Vasculitis UK
10 years ago
Change of meds
Also anyone used rituximab or
mycophenolate
?
Also anyone used rituximab or
mycophenolate
?
adrienneioannou
in
LUPUS UK
10 years ago
Hello all
I have had chemo therapy but had a reaction to cyclophosphomide so went onto
mycophenolate
. The vasculitis has damaged my kidneys and the nervous system in my right foot and neck. Fortunately no other organs were affected. I have to wear a splint to walk distance and for driving.
I have had chemo therapy but had a reaction to cyclophosphomide so went onto
mycophenolate
. The vasculitis has damaged my kidneys and the nervous system in my right foot and neck. Fortunately no other organs were affected. I have to wear a splint to walk distance and for driving.
Hidden
in
Vasculitis UK
10 years ago
Dermatomyositis anyone?
I've recently changed my immunosuppressant because the previous one (
mycophenolate
) wasn't controlling joint and muscle pain. I'm now on ciclosporine, already in the 4th week but at quite low dose. The face swelling hasn't gone away, actually it has been increasing in the past few days.
I've recently changed my immunosuppressant because the previous one (
mycophenolate
) wasn't controlling joint and muscle pain. I'm now on ciclosporine, already in the 4th week but at quite low dose. The face swelling hasn't gone away, actually it has been increasing in the past few days.
Purpletop
in
LUPUS UK
10 years ago
Cyclosporine
Hi, I'm diagnosed with lupus and have been on
mycophenolate
and hydroxycloroquine for the past 18 months. Most of my lupus symptoms have been resolved but now new ones have started, the most noticeable being joint and muscle pain.
Hi, I'm diagnosed with lupus and have been on
mycophenolate
and hydroxycloroquine for the past 18 months. Most of my lupus symptoms have been resolved but now new ones have started, the most noticeable being joint and muscle pain.
Purpletop
in
NRAS
10 years ago
Cyclosporine - which brand?
Hi all, I've just come back from my rheumatologist and he's changing my immunosuppressant from
mycophenolate
to cyclosporine (because the disease has changed path and is now attacking my joints). Are you taking/have you taken this? If so, how were the side effects for you?
Hi all, I've just come back from my rheumatologist and he's changing my immunosuppressant from
mycophenolate
to cyclosporine (because the disease has changed path and is now attacking my joints). Are you taking/have you taken this? If so, how were the side effects for you?
Purpletop
in
LUPUS UK
10 years ago
throat pain?
SSc with Hydroxychloroquine and
Mycophenolate
. Bits along with it/at the same time (might not be related) : very tired, inflamed stomach, hands feel like someone has stomped on my fingers and have some tightness. Does this sound like SSc or is it possible I have a virus?
SSc with Hydroxychloroquine and
Mycophenolate
. Bits along with it/at the same time (might not be related) : very tired, inflamed stomach, hands feel like someone has stomped on my fingers and have some tightness. Does this sound like SSc or is it possible I have a virus?
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Mycophenolate
Happy Friday to you all! Quick question: I have been taking MMF for 18 weeks now at 750mg. I've not noticed a difference with it. Except I've lost 1 St 5lb in weight. I've been slowly reducing steroids from 20 to 12.5 but I have been flaring the past few days and don't know whether to increase the steroids
Happy Friday to you all! Quick question: I have been taking MMF for 18 weeks now at 750mg. I've not noticed a difference with it. Except I've lost 1 St 5lb in weight. I've been slowly reducing steroids from 20 to 12.5 but I have been flaring the past few days and don't know whether to increase the steroids
tinkey
in
LUPUS UK
10 years ago
Nasal flu Vaccine - mycophenolate
I don't think live vaccines and
mycophenolate
mix. Advice/discussion please.
I don't think live vaccines and
mycophenolate
mix. Advice/discussion please.
jo100
in
LUPUS UK
10 years ago
Mycophenolate - how do you know it's working?
I started it a fortnight ago and my hands are swollen itchy and achy again...is it expected to relieve those symptoms? I realise it takes a while to kick in :)
I started it a fortnight ago and my hands are swollen itchy and achy again...is it expected to relieve those symptoms? I realise it takes a while to kick in :)
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
rare complication bowel
I did in fact have pseudo bowel obstruction and am being successfully treated with
Mycophenolate
. I am tolerating the drug- I am unsure that I could have tolerated many more laparotomies. All the surgery and the functional bowel problem caused by Lupus mean that my bowel wont empty on its own.
I did in fact have pseudo bowel obstruction and am being successfully treated with
Mycophenolate
. I am tolerating the drug- I am unsure that I could have tolerated many more laparotomies. All the surgery and the functional bowel problem caused by Lupus mean that my bowel wont empty on its own.
Versailles
in
LUPUS UK
10 years ago
Mycophenolate question
I have been on
mycophenolate
mofetil for 6 months and it's worked well for my lupus but I am having really bad problems with sore throat and esophigitus, I had a fungal infection in my mouth which they thought had gone down to my esophigus tube, had two lots of fungal treatments and had to stop the
mycophenolate
I have been on
mycophenolate
mofetil for 6 months and it's worked well for my lupus but I am having really bad problems with sore throat and esophigitus, I had a fungal infection in my mouth which they thought had gone down to my esophigus tube, had two lots of fungal treatments and had to stop the
mycophenolate
joannebond360
in
LUPUS UK
10 years ago
Low platelet count.
My local nhs (not liver transplant team) has diagnosed that this is caused by the use of my anti-rejection medication ( cyclosporin/
mycophenolate
). I am puzzled that if the cause was as indicated then why has it taken 18 months before a reaction.
My local nhs (not liver transplant team) has diagnosed that this is caused by the use of my anti-rejection medication ( cyclosporin/
mycophenolate
). I am puzzled that if the cause was as indicated then why has it taken 18 months before a reaction.
ancientadolescent
in
British Liver Trust
10 years ago
Work, side effects & fatigue
Started the
mycophenolate
! No side effects! (Other than a random taste of blood in my mouth every so often?!) yey!
Started the
mycophenolate
! No side effects! (Other than a random taste of blood in my mouth every so often?!) yey!
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
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