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Hi everyone. I’ve been skulking about trading all the questions and responses for about a year now and am finally introducing myself. I originally had hormone +, HER2- BC back in 2015. Then Aug 2019 Dx stage 4 bone Mets in spine and also Mets in liver. Currently in the IBrance/letrozole duo ( but have
Hi everyone. I’ve been skulking about trading all the questions and responses for about a year now and am finally introducing myself. I originally had hormone +, HER2- BC back in 2015. Then Aug 2019 Dx stage 4 bone Mets in spine and also Mets in liver. Currently in the IBrance/letrozole duo ( but have
LucyGSP
in
SHARE Breast Cancer Support
4 years ago
Internal tremors NOT mini strokes.
Dear friends. Saw the neurologist yesterday. Just as I suspected, he was not the Wizard of Oz. He was just a man and did not have an answer to why the infernal internal tremors. Upon viewing the MRI of the brain which had been determined to be devoid of cancer, decided that I had not had a series
Dear friends. Saw the neurologist yesterday. Just as I suspected, he was not the Wizard of Oz. He was just a man and did not have an answer to why the infernal internal tremors. Upon viewing the MRI of the brain which had been determined to be devoid of cancer, decided that I had not had a series
jersey-jazz
in
SHARE Metastatic Breast Cancer
4 years ago
Tamoxifen Postmenopause?
I'd be interested in hearing from anyone who decided to try tamoxifen as a treatment for MBC because she had done well on it as an adjuvant therapy. I had been free of cancer since 2006 when I was diagnosed with extensive MBC last year (13 years later). I've now been on 40 mg of tamoxifen for almost
I'd be interested in hearing from anyone who decided to try tamoxifen as a treatment for MBC because she had done well on it as an adjuvant therapy. I had been free of cancer since 2006 when I was diagnosed with extensive MBC last year (13 years later). I've now been on 40 mg of tamoxifen for almost
Hazelgreen
in
SHARE Metastatic Breast Cancer
4 years ago
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Mets to liver
Hello sisters, Being on this site for awhile now, I read mostly of bone Mets. Has anyone had their recurrence to the liver? I’m on Ibrance/ Letrozole combo but it seems to have stopped working. Last CT scan showed 2 tumours grew 30%. I have a PET scan coming up on the 21st. I think my treatment
Hello sisters, Being on this site for awhile now, I read mostly of bone Mets. Has anyone had their recurrence to the liver? I’m on Ibrance/ Letrozole combo but it seems to have stopped working. Last CT scan showed 2 tumours grew 30%. I have a PET scan coming up on the 21st. I think my treatment
Annadm
in
SHARE Metastatic Breast Cancer
4 years ago
Wisconsin ginseng and Ashwagandha for fatigue?
Hi There Everyone, Ugh lately the fatigue has been rough. I am an active person (I scull 4-days a week, 20 mins of yoga and I work full time although not a very stressful job) The fatigue has intensified the last month or so. To the point I am mentally spent at 3pm and can do nothing at 6pm. My labs
Hi There Everyone, Ugh lately the fatigue has been rough. I am an active person (I scull 4-days a week, 20 mins of yoga and I work full time although not a very stressful job) The fatigue has intensified the last month or so. To the point I am mentally spent at 3pm and can do nothing at 6pm. My labs
Ski2sea
in
SHARE Metastatic Breast Cancer
4 years ago
Help! Elevated liver enzymes!
Ladies! I need your help. I am on ibrance, letrozole, and zoladex and have been for almost 4 years. For the past 2 months my liver enzymes have been mildly elevated. Last month AST was 50 and ALT was normal. This month AST=52 and ALT=42. I have Mets to the bone. What did anyone’s liver enzymes look
Ladies! I need your help. I am on ibrance, letrozole, and zoladex and have been for almost 4 years. For the past 2 months my liver enzymes have been mildly elevated. Last month AST was 50 and ALT was normal. This month AST=52 and ALT=42. I have Mets to the bone. What did anyone’s liver enzymes look
Fight2016
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance and Letrozole.
Today I’m shutting out the aches and pains from my Mets and have the scent of my lovely sweetpeas and a little Cosmos around me.
Today I’m shutting out the aches and pains from my Mets and have the scent of my lovely sweetpeas and a little Cosmos around me.
Hidden
in
SHARE Metastatic Breast Cancer
4 years ago
Liver tumors progressed
After 7 cycles of Ibrance and Letrozole, my liver tumors have progressed. I had a liver biopsy on July 9th and the slides were just sent this week to Foundation One in Boston for Next Generation Sequencing. Unless they find a mutation, my oncologist and my second opinion oncologist want me to go on
After 7 cycles of Ibrance and Letrozole, my liver tumors have progressed. I had a liver biopsy on July 9th and the slides were just sent this week to Foundation One in Boston for Next Generation Sequencing. Unless they find a mutation, my oncologist and my second opinion oncologist want me to go on
Mootzi
in
SHARE Metastatic Breast Cancer
4 years ago
Smell all over my body
Hello my sweet ladies, I am writing one more time cause since I finished my last chemo (01st of July) my doctor said to my that I will be free for the summer (only take 1 pill Aromestan - exestamane) and from September I will have blood tests, MRI and CTS. I want to remind you that I am in MBC at bones
Hello my sweet ladies, I am writing one more time cause since I finished my last chemo (01st of July) my doctor said to my that I will be free for the summer (only take 1 pill Aromestan - exestamane) and from September I will have blood tests, MRI and CTS. I want to remind you that I am in MBC at bones
CharaMasiakou
in
SHARE Metastatic Breast Cancer
4 years ago
In praise of Ibrance and Letrozole
My initial right-breast cancer appeared (grew very quickly to the size of a grapefruit) in 1992. I had 6 courses of chemo, very extensive mastectomy, 34 radiation, then 6 more chemo. I was clear of what all doctors said would be terminal. Had lots of physical therapy and crying. 24 years later, in 2016
My initial right-breast cancer appeared (grew very quickly to the size of a grapefruit) in 1992. I had 6 courses of chemo, very extensive mastectomy, 34 radiation, then 6 more chemo. I was clear of what all doctors said would be terminal. Had lots of physical therapy and crying. 24 years later, in 2016
seiler
in
SHARE Metastatic Breast Cancer
4 years ago
Herceptin
New member here: I have ovarian cancer, stage 3C but have just found out my tumor expresses HER2 and is ER positive. Crazy - right,.... as this is found usually in breast cancer! Anyway they started me in letrozole yesterday and I will start getting herceptin. The hope is that it will work for me the
New member here: I have ovarian cancer, stage 3C but have just found out my tumor expresses HER2 and is ER positive. Crazy - right,.... as this is found usually in breast cancer! Anyway they started me in letrozole yesterday and I will start getting herceptin. The hope is that it will work for me the
RobPal
in
SHARE Breast Cancer Support
4 years ago
new memeber
Hi My name is Anita .I am 52 years old and was diagnoses with stage 4 Jan 2020. I take Ibrance and Letrozole with 2 shots once a month since February. I feel great no side effects yet except pain in my feet . Have my 2 nd PET scan coming up Monday . Reading all your posts is helping me to see that I'm
Hi My name is Anita .I am 52 years old and was diagnoses with stage 4 Jan 2020. I take Ibrance and Letrozole with 2 shots once a month since February. I feel great no side effects yet except pain in my feet . Have my 2 nd PET scan coming up Monday . Reading all your posts is helping me to see that I'm
Anitafazz
in
SHARE Metastatic Breast Cancer
4 years ago
Laura Update - No More Chemo - On to Letrozole
Well, ladies, I have had some disappointing news these last few weeks. I went for my regular pre-Chemo blood tests, but my Oncologist called me the next day to say my Liver function looked bad. I wouldn’t be having Chemo and instead would get an Ultrasound of my liver. Also, my cancer marker had shot
Well, ladies, I have had some disappointing news these last few weeks. I went for my regular pre-Chemo blood tests, but my Oncologist called me the next day to say my Liver function looked bad. I wouldn’t be having Chemo and instead would get an Ultrasound of my liver. Also, my cancer marker had shot
Lindaura
in
My Ovacome
4 years ago
GOOD NEWS BUT STILL TREMBLING!
Good News From the Scans. Still Trembling Internally Last week was the week of scans, consultations, a continuum of lymphedema therapy and anxiety about all the radiation with gadolinium going past the brain barrier and remaining there. An ultrasound was done because of a lump in my arm. They were
Good News From the Scans. Still Trembling Internally Last week was the week of scans, consultations, a continuum of lymphedema therapy and anxiety about all the radiation with gadolinium going past the brain barrier and remaining there. An ultrasound was done because of a lump in my arm. They were
jersey-jazz
in
SHARE Metastatic Breast Cancer
4 years ago
Letrozole Palbociclib scalp pain hair loss
Burning tender scalp, feels like a chemical burn. Major sudden hair loss after 7 months. I am on Letrozole & Palbociclib. Anyone with this experience? What treatment did you Oncologist give you as a response? Full facial exzema also occurred at the same time. I feel it is definitely related.
Burning tender scalp, feels like a chemical burn. Major sudden hair loss after 7 months. I am on Letrozole & Palbociclib. Anyone with this experience? What treatment did you Oncologist give you as a response? Full facial exzema also occurred at the same time. I feel it is definitely related.
WaveCatcher
in
SHARE Metastatic Breast Cancer
4 years ago
To be on Ibrance or not?
To be on Ibranceor not? I moved from CA to PA and last Nov. had a pet scan and it was cancer free, clear. I was on Ibrance and letrozole for two years as my cancer came back in left lymph nodes again. I had estrogen type cancer in left breast in 2009 and had a double mastectomy and chemo. Then for 5
To be on Ibranceor not? I moved from CA to PA and last Nov. had a pet scan and it was cancer free, clear. I was on Ibrance and letrozole for two years as my cancer came back in left lymph nodes again. I had estrogen type cancer in left breast in 2009 and had a double mastectomy and chemo. Then for 5
sujata2
in
SHARE Metastatic Breast Cancer
4 years ago
Starting Ibrance soon
I’ll be starting Ibrance in 2 weeks and I’ve read some instances where the tumor has gotten smaller. I’m wondering if anyone has improved enough to go off the Ibrance? I’m on Letrozole now and imagine I’ll be on that the rest of my life but so far no problems with it. Just curious if Ibrance will be
I’ll be starting Ibrance in 2 weeks and I’ve read some instances where the tumor has gotten smaller. I’m wondering if anyone has improved enough to go off the Ibrance? I’m on Letrozole now and imagine I’ll be on that the rest of my life but so far no problems with it. Just curious if Ibrance will be
Ilovehorses
in
SHARE Metastatic Breast Cancer
4 years ago
Cycle 19 of Kisqali and remain NED even with rising markers
I just started cycle 19 and had a PET/CT scan which remains NED. Hallelujah. I was really nervous because my tumor marker has increased since Dec from 48 to 192. It is higher than it was before I started Kisqali. My doc nor I can explain the increase. I still feel really well except for my week off
I just started cycle 19 and had a PET/CT scan which remains NED. Hallelujah. I was really nervous because my tumor marker has increased since Dec from 48 to 192. It is higher than it was before I started Kisqali. My doc nor I can explain the increase. I still feel really well except for my week off
Thrifty51
in
SHARE Metastatic Breast Cancer
4 years ago
Ibrance to IV chemo
Hello ladies, I’ve been on Ibrance with Letrozole for 8 months now. My metastasis is to chest cavity modes and my liver. Chest cavity nodes are stable but The size of my lesion and tumour markers in my liver fluctuate and now a little one has grown 30%. It fluctuates with every CT scan. My latest CT
Hello ladies, I’ve been on Ibrance with Letrozole for 8 months now. My metastasis is to chest cavity modes and my liver. Chest cavity nodes are stable but The size of my lesion and tumour markers in my liver fluctuate and now a little one has grown 30%. It fluctuates with every CT scan. My latest CT
Annadm
in
SHARE Metastatic Breast Cancer
4 years ago
ibrance side affects
because I only have been on Ibrance and letrozole only 2 weeks I was wondering if the side affects could get worse before they get better. Right now the only side affect I have is constipation. Do the side affects get worse as the drugs accummulate in your body? Another question is for the ladies who
because I only have been on Ibrance and letrozole only 2 weeks I was wondering if the side affects could get worse before they get better. Right now the only side affect I have is constipation. Do the side affects get worse as the drugs accummulate in your body? Another question is for the ladies who
Gino21
in
SHARE Metastatic Breast Cancer
4 years ago
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