Hello sisters,
Being on this site for awhile now, I read mostly of bone Mets.
Has anyone had their recurrence to the liver?
I’m on Ibrance/ Letrozole combo but it seems to have stopped working. Last CT scan showed 2 tumours grew 30%. I have a PET scan coming up on the 21st. I think my treatment will be changed. To what, I have no idea. I’m petrified. I feel I was handed a death sentence at 51 years old.
Please help if anyone has been in this same situation.
Thank you and God bless 🙏💕
Hi Anna
I'm new to mets having being diagnosed in april with recurrence to right lung, liver, 1 rib and hip.
I am currently receiving docetaxel chemo, had 5 of 6 and I also receive herceptin and perjeta every 3 weeks along with chemo, after the last chemo I will be continuing with the H&P every 3 weeks as long as it is working (if it is, I am yet to have a scan since treatment began, am waiting for appointment).
I also feel like I've been handed a death sentence but I've felt like that since being diagnosed with primary in 2015 aged 34.
I've suffered with health anxiety ever since you just hope and pray that it doesn't come back, I didn't even have any symptoms from the lung and liver so I was reeling with shock when I was told.
I’m so sorry to hear. I know exactly how you feel. I started in 2013. 6 years clear and then bam 💥. I have a feeling ill be going back in that dreaded chemo chair also. I friggin hate living this way 😞😡. Did you lose all your hair?
Thank you so so much for responding. God bless you 🙏💕
Yes I started losing my hair 10 days after first chemo, gradually got thinner so got my husband to shave it off, that was back end of may and even whilst still receiving chemo its growing, notice a difference each week 🙂.
I didn't want to go back to chemo having done FEC -T 5 years ago as I thought that I'd really struggle on it, oncologist said we will aim for 6 rounds but depending on your side effects etc...4 would be acceptable. As each one has gone on I expected to feel more fatigue but its actually the opposite, after the first one I felt dreadful, sore nose and mouth, no energy at all, headache, felt wobbly all the time but not been like that with subsequent ones which is great!
Now waiting with trepidation for scan appointment to see if it's all worked. I wish you all the best
Thank you for your response 🙏
Thank you for your response. I sincerely hope that your scan shows a significant improvement 🙏💕
Hey Annadm,
I have bone and liver mets. I was diagnosed at 35, back in 2018. My liver had 20+ tumours in it, the biggest one measured 9cm. I’m on the Ibrance 125mg/Letrozole combo like a lot of the ladies. I’m pretty stable for over a year now, long may it last.
I’m quite upbeat about the whole diagnosis. I’ve done my crying and have adjusted to my new normal. I have no intention of dying for the foreseeable. There’s too much life to be lived.
Welcome to the group xx
Thank you and God bless 🙏💕
How are you?
Hey, I’m sorry for the slow response, I don’t visit the page that often.
I still have cancer 😜 and have remained pretty much the same. Still on the Ibrance and Letrozole combo.
Life is moving on fast. I’m 3 1/2 years in now and going strong thankfully.
Hope you’re keeping well yourself.
I have metastasis to the bones and liver but treatment is base on the pathology of the biopsy my was ER +, PR +,HER2-, then mutated to triple negative and my liver biopsy is considered positive PR+, my treatment now is chemotherapy Abraxane and Carboplatin and I will switch to Gemzar and Carboplatin.
I know it is very stressful, take one day at the time God bless you
Dear Ann,
Best wishes to you. I am no help as my mets are to my lungs. The very best to you and I hope your scans will be good. Blessings Hannah
Hi
Yes, I started with bone mets, diagnosed in spring 2016. I had 18 rounds of faslodex and ibrance before progression to the liver last summer. I had iv chemo January to March this year and it was nowhere near as bad as the iv chemo I had for my primary breast cancer in 2016.
I’m 52 so a similar age, but there are still drugs available to try after the first line fails 😊
Sorry to hear of your progression. I was on Ibrance and letrozole since January 2017 For bone mets. In June my scan showed progression to my liver 2 lesions 1cm each. I am now on Flasodex and verzenio. I’ve only been on it 1 month so no scans yet but my liver enzymes are back to normal and my tumor markers stabilized. My onc said there are a couple more therapies I can do before IV chemo. Hope I get a similar run on this combo as I did on the other. Sending you positive vibes!!
I have bone and liver mets. Had the liver mets for 30 months and still going. I know someone who had them for 9 years and she has been NED for 4 years. She is HER2+, so that helps. I’m not. I’m on Xeloda which is a chemo in pill form. I was told it worked well for liver mets but it hasn’t worked for me. The Onc says I have plenty of options, so I’m optimistic. Liver mets are not the death sentence they were a few years ago.
Thank you 🙏 and I wish you the best as well 💕
What treatments are you currently on
Dear Anna, I'm sorry that you're going through this. It stinks, but, at least for me, it's not a death sentence. Had breast cancer at age 46; had chemo & tamoxifen for 5 years. In 2013, had local regional recurrence; went through Red Devil, taxol and radiation & Anastrozole (Arimidex) for 3 1/2 years. In Jan 2017, had mets to lungs. Went on clinical trial & developed pneumonitis. Stayed on Exemestane (Armomasin) & in March 2017, progressed to bones. Had a glorious 18 months on Ibrance/Faslodez (travel, zumba, fast walking, bike riding, swimming, yoga, etc). Then bone mets increased. Had pelvic radiation & went on Xeloda 3 months - stopped working. I had progression to liver. Went on Taxol worked for 9 months & then liver mets increased. On Halaven (Eribulin) since May 1 (I hope it continues to work for a while). First scans 3 weeks ago showed decrease & disappearance of some lung mets, stable bones & decreased liver mets. I developed anemia which increased the fatigue, but am taking iron now. I do have my ups & downs. I have always been active, so it's been hard to listen to my body & rest, but I've learned to do it. Activity is now limited to water exercise, swimming, slow walking, yoga, & recumbent bike. These activities actually energize me. I also take frequent epson salt & sea salt baths. They help a lot with any pain, stiffness & sadness. I play "liquid mind radio" on my Alexa - it's meditation music. I'm now 72, but still enjoying life. I have had a lot of support. I have an oncology therapist & psychiatrist. They have helped me through the down times. I've come a long way, from being what I considered a self sufficient athletic woman who wouldn't even take an aspirin and dismissed any time of therapy to one who welcomes support from others. At my cancer center, in addition to my oncologist, therapist & psychiatrist, I have a palliative doctor & alternative doctor. The center also provides healing touch & massages (I get one every 2 weeks).
Anna, I'm not a young woman with mets, so I can only imagine how scary it is. Cancer treatment is so advanced now (compared to 1995). I'm surprised sometimes that I'm still hanging around. I'm in a virtual support group with other older ladies who have had mets for a while. There are so many courageous woman on this site that give us inspiration. I wish you the best.
Hello: I am sorry you are so scared. Can’t say I blame you. I am on Ibrance and Arimidex and have been for l-1/2 years. I have spots in my lung and liver as well as bone Mets. I have had no progression on this treatment. My oncologist says if one thing stops workings there are other things to try. I see ladies on here who have many years of survival. You have much hope to look forward to. Try to take care of yourself as much as possible. Eat lots of fruits and veggies, drink water, exercise and get out in the sun. My best to you please keep us posted.
Thank you so much 🙏💕
Hi Anna. I’m sorry you are going through a hard time. I was on Ibrance and Letrozole for 7 months when it stopped working. Due to significant progression in my liver I will be switching to Xeloda a week from today. My oncologist wants my body to rest for a week before I start this new drug. While on Ibrance I almost forgot I had MBC. My only side effect was fatigue, but it didn’t stop me from doing what I wanted to do. I am not looking forward to my change in treatment but thanks to the friends on this site, I discovered the reality may not be as bad as my fear. God bless you. Please keep us informed on your new treatment.
Thank you so much. And omg! The fatigue is insane. I can sleep all day and go without eating. I don’t know if it’s the Ibrance or the cancer. I’ll know on Tuesday what protocol he has in store for me now.
Thanks again and God bless 🙏💕
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