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LucyGSP profile image
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Hi everyone. I’ve been skulking about trading all the questions and responses for about a year now and am finally introducing myself. I originally had hormone +, HER2- BC back in 2015. Then Aug 2019 Dx stage 4 bone Mets in spine and also Mets in liver. Currently in the IBrance/letrozole duo ( but have recently changed off letrozole to anastrozole with massive improvements for pain in my hands and forearms. Was wanting to hear from anyone with bone and liver Mets to hear how they are travelling. It is great to be part of such a supportive group. I am 46 and have a husband and two girls aged 10 and 12. Live in Australia.

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LucyGSP
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Mmnyc profile image
Mmnyc

Hi Lucy,

I’m sorry about your recent diagnosis. It’s very scary for me to read on here the reality of this disease. How one day you are fine and the next day you are diagnosed with stage 4. I am curious, how was it that they diagnosed you with stage 4 bone Mets in your bones/liver? Did they find it through your blood work? Or were you feeling sick and they conducted other tests?

I was on anastrozole for 6 months but my oncologist switched it to something else, forget the name of it now🤦🏻‍♀️, but I was experiencing a lot of bone pain, insomnia, hot flashes 🤯 trying to determine if it’s the pill or the lupron injection I get monthly that’s causing all of this discomfort.

I’m glad you are having a better result with anastrazole 👍🏼

LucyGSP profile image
LucyGSP in reply to Mmnyc

Hi Mmnyc. I had a sore back that just would resolve with physio so it got picked up with X-ray check. Then the liver go picked up when the full check got done.

Rhwright12 profile image
Rhwright12

Welcome to the group! I’m Her2+ so I have a different regimen every than most...but welcome!

MCBS profile image
MCBS

Hi Lucy,

I don’ t post a lot but all the names are now familiar to me. In my late forties with two teenage girls. I feel your pain....

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