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Saved by Methadone
After years on Pramipexole 0.75 mg long acting , the inevitable augmentation occurred and I got off it with great difficulty. Since that time, August 2019, I have had very little sleep. I have tried tramadol, codeine, oxycodone, lyrica, Gabapentin, clonazepam, MSContin and various combinations. I have
After years on Pramipexole 0.75 mg long acting , the inevitable augmentation occurred and I got off it with great difficulty. Since that time, August 2019, I have had very little sleep. I have tried tramadol, codeine, oxycodone, lyrica, Gabapentin, clonazepam, MSContin and various combinations. I have
wairoa36
in
Restless Legs Syndrome
4 years ago
Opiates for treatment
54 yr sufferer here: SEVERE RLS in legs, hips and arms) with PLMD (I thrash 250 times/hr while asleep). FINALLY, relief: low doses of Methadone and Morphine taken over 6 hrs (5-11pm) have changed my life. I have had to increase both slowly, but I’m 75 so who cares?! No addiction problems. Also lots and
54 yr sufferer here: SEVERE RLS in legs, hips and arms) with PLMD (I thrash 250 times/hr while asleep). FINALLY, relief: low doses of Methadone and Morphine taken over 6 hrs (5-11pm) have changed my life. I have had to increase both slowly, but I’m 75 so who cares?! No addiction problems. Also lots and
Hidden
in
Restless Legs Syndrome
4 years ago
Buprinorphine/methadone anyone?
LONG TERM RLS and PLMD sufferer here. Reaching out to anyone who may have tried methadone or buprinorphine? I could list everything else I have taken for this disorder but I think you would get bored! These medications are my next hope (if I can find a prescriber).
LONG TERM RLS and PLMD sufferer here. Reaching out to anyone who may have tried methadone or buprinorphine? I could list everything else I have taken for this disorder but I think you would get bored! These medications are my next hope (if I can find a prescriber).
Nikwat
in
Restless Legs Syndrome
4 years ago
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Methadone dosage
Can anyone answer this dosage message for this lady in NZ not many people on methadone in our region. I would be very grateful 🙂
Can anyone answer this dosage message for this lady in NZ not many people on methadone in our region. I would be very grateful 🙂
Shumbah
in
Restless Legs Syndrome
4 years ago
Trying Buprenorphine after methadone
Hi, All, I'm in the process of trying out buprenorphine (Subutex sublingual tablets). I had been on 12.5 mg methadone for 1 1/2 years. It did a super job in controlling my RLS (after augmenting on all the DAs, and finally getting free of those about 1 year ago). But I have developed depression since
Hi, All, I'm in the process of trying out buprenorphine (Subutex sublingual tablets). I had been on 12.5 mg methadone for 1 1/2 years. It did a super job in controlling my RLS (after augmenting on all the DAs, and finally getting free of those about 1 year ago). But I have developed depression since
rls_optimist
in
Restless Legs Syndrome
4 years ago
Use methadone to wean sedation?
My dad is in icu for 5 weeks now, having hard time weaning off sedation, very agitated and fighting the ventilator, doctor started methadone today. Anyone heard of this?
My dad is in icu for 5 weeks now, having hard time weaning off sedation, very agitated and fighting the ventilator, doctor started methadone today. Anyone heard of this?
Tangmft
in
ICUsteps
4 years ago
EMAIL from Professor Richard P Allen John Hopkins
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Shumbah
in
Restless Legs Syndrome
4 years ago
Betrayal and the Horrible Pain After
This started out as a response to Manerva regarding the person who is taking gabapentin and this whole vitamin regimen and wearing compression socks (sleeves he calls them) and my thoughts on it but while it started out that way it’s grown so much deeper and morphed into gut wrenching pain and this
This started out as a response to Manerva regarding the person who is taking gabapentin and this whole vitamin regimen and wearing compression socks (sleeves he calls them) and my thoughts on it but while it started out that way it’s grown so much deeper and morphed into gut wrenching pain and this
Not-methadone-addict
in
Restless Legs Syndrome
5 years ago
Off Pramipexole
First I want to thank so many of you for your excellent advice and support to others on this site. I read posts almost daily but for some reason I don’t add much... I wrote several weeks ago and explained that I had seen Dr Buchfuhrer after Christmas and he took me cold turkey off Pramipexole and started
First I want to thank so many of you for your excellent advice and support to others on this site. I read posts almost daily but for some reason I don’t add much... I wrote several weeks ago and explained that I had seen Dr Buchfuhrer after Christmas and he took me cold turkey off Pramipexole and started
Grandmagoose
in
Restless Legs Syndrome
5 years ago
could it be b12 or something else
Can anyone provide info to symptoms 1.my skin feels cold and not just my hands and feet but cold feeling over many areas of body. 2. I can no longer take methadone or opiod meds as it brings
Can anyone provide info to symptoms 1.my skin feels cold and not just my hands and feet but cold feeling over many areas of body. 2. I can no longer take methadone or opiod meds as it brings
david128
in
Pernicious Anaemia Society
5 years ago
Any info on RLS and Chronic Kidney Disease?
Hello, fellow twitchers. My pertinent PMH: I spent 3 weeks in a coma after I fractured my skull in an MVA 35 years ago. My speech is sometimes slurred and I have impulse control issues. 20 years ago, I donated a kidney to my mom and shortly after that RLS started. A doctor prescribed Levodopa, then Ropinole
Hello, fellow twitchers. My pertinent PMH: I spent 3 weeks in a coma after I fractured my skull in an MVA 35 years ago. My speech is sometimes slurred and I have impulse control issues. 20 years ago, I donated a kidney to my mom and shortly after that RLS started. A doctor prescribed Levodopa, then Ropinole
ArtHanger
in
Restless Legs Syndrome
5 years ago
I THINK I NEED SUPPORT
I thought when I finally found a doctor who would prescribe opioids for me so I could withdraw from ropinirole that things would be better. In some ways they are... I was sleeping some , more than I have in a year. I got a c-pap which is a positive . I still haven't found the right opioid. Tomorrow
I thought when I finally found a doctor who would prescribe opioids for me so I could withdraw from ropinirole that things would be better. In some ways they are... I was sleeping some , more than I have in a year. I got a c-pap which is a positive . I still haven't found the right opioid. Tomorrow
sweetiepye
in
Anxiety and Depression Support
5 years ago
RLS and methadone tolerance
My doctor prescribed me 5mg methadone. It worked perfectly for 6 months. No side effects, no high, no RLS! Then, RLS started coming back. My doctor said I was on half the dose most of his patients were on so he authorized me to take 7.5 to 10mg. I'm currently on 10mg. I am really scared that I'm going
My doctor prescribed me 5mg methadone. It worked perfectly for 6 months. No side effects, no high, no RLS! Then, RLS started coming back. My doctor said I was on half the dose most of his patients were on so he authorized me to take 7.5 to 10mg. I'm currently on 10mg. I am really scared that I'm going
tinabuglaw
in
Restless Legs Syndrome
5 years ago
Wellbutrin
Hello all. I am writing about my 88 year old husband who has suffered from RLS for about 8 years....very severe. He has tried everything and is now on 7.25 mg of methadone plus three iron infusions in the past 12 months. . Those really helped but his ferretin levels are too high now for another infusion
Hello all. I am writing about my 88 year old husband who has suffered from RLS for about 8 years....very severe. He has tried everything and is now on 7.25 mg of methadone plus three iron infusions in the past 12 months. . Those really helped but his ferretin levels are too high now for another infusion
williesophie
in
Restless Legs Syndrome
5 years ago
Methadone
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
bedith6
in
Restless Legs Syndrome
5 years ago
Update Dr Winkleman- Buprenorphine
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Shumbah
in
Restless Legs Syndrome
5 years ago
Efficacy of Methadone when used for RLS
I recently posted the success I am having taking methadone. Everyone should read this article. I am doing better than I ever dreamed. Mattieluke https://www.ncbi.nlm.nih.gov/pubmed/15580610
I recently posted the success I am having taking methadone. Everyone should read this article. I am doing better than I ever dreamed. Mattieluke https://www.ncbi.nlm.nih.gov/pubmed/15580610
MATTIELUKE
in
Restless Legs Syndrome
5 years ago
Tried everything and have found relief
I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and withdrawal from hell), tramadol (it became ineffective) a couple of other narcotics, cannabis, iron and magnesium. I have experienced symptoms in the
I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and withdrawal from hell), tramadol (it became ineffective) a couple of other narcotics, cannabis, iron and magnesium. I have experienced symptoms in the
MATTIELUKE
in
Restless Legs Syndrome
5 years ago
Horizant side effects
I’m currently taking 7.5mg of Methadone and 1 300mg Horizant pill. I have been thru augmentation, & this is my current regime.....I’m still up 3-4 times a night w RLS and am tired all the time. My Dr. wants me to take another 300 mg Horizant pill. It just makes me so dizzy & nauseous I’m reluctant
I’m currently taking 7.5mg of Methadone and 1 300mg Horizant pill. I have been thru augmentation, & this is my current regime.....I’m still up 3-4 times a night w RLS and am tired all the time. My Dr. wants me to take another 300 mg Horizant pill. It just makes me so dizzy & nauseous I’m reluctant
Barb574
in
Restless Legs Syndrome
5 years ago
Medication Warning!
Hello all. Those who read my post regarding OxyContin & how it nearly killed me will have read that I suffered severe Sleep Apnoea where I was stopping breathing an average of 80 times per hour per night, which I always believed was down to the massive dose of Opiates over many years. After coming
Hello all. Those who read my post regarding OxyContin & how it nearly killed me will have read that I suffered severe Sleep Apnoea where I was stopping breathing an average of 80 times per hour per night, which I always believed was down to the massive dose of Opiates over many years. After coming
Ritchie1268
in
Pain Concern
5 years ago
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