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Just surviving
Hi everyone, I am writing this to try to get some order to the disorder that my brain has become. I'm feeling so sad, angry frustrated unloved, alone, 'oh what's the point', which bit can I hurt next. etc etc. I'm so cross that after 15 years of RL I'm now at the stage where no one knows what to do next
Hi everyone, I am writing this to try to get some order to the disorder that my brain has become. I'm feeling so sad, angry frustrated unloved, alone, 'oh what's the point', which bit can I hurt next. etc etc. I'm so cross that after 15 years of RL I'm now at the stage where no one knows what to do next
restlessstoz
in
Restless Legs Syndrome
5 years ago
Am I augmenting already!!!!!
I have only been on the rotigotine patch for two weeks and two days and every day, my legs are getting worse. Last night I got no sleep at all and they're still going. I can only imagine that it is that... Any comments please? I augmented on pramipexole and I knew it was a risk but I was desperate as
I have only been on the rotigotine patch for two weeks and two days and every day, my legs are getting worse. Last night I got no sleep at all and they're still going. I can only imagine that it is that... Any comments please? I augmented on pramipexole and I knew it was a risk but I was desperate as
restlessstoz
in
Restless Legs Syndrome
5 years ago
Opiate study
This is a link to the first year of a study of rls patients taking opiates for relief. I have obtained permission from the administrators to share this here. Interesting to see the place of Fentanyl and methadone in usage figures. Cheers. https://partners.us20.list-manage.com/track/click?u
This is a link to the first year of a study of rls patients taking opiates for relief. I have obtained permission from the administrators to share this here. Interesting to see the place of Fentanyl and methadone in usage figures. Cheers. https://partners.us20.list-manage.com/track/click?u
Madlegs1
in
Restless Legs Syndrome
5 years ago
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Methadone: best dose timing?
I'm currently on methadone and gabapentin. The combination is controlling my RLS symptoms pretty well. I've found that splitting the methadone dose and trying different times of day makes a big difference. However, I don't seem to have worked out the best timing. I'd love to hear from others taking methadone
I'm currently on methadone and gabapentin. The combination is controlling my RLS symptoms pretty well. I've found that splitting the methadone dose and trying different times of day makes a big difference. However, I don't seem to have worked out the best timing. I'd love to hear from others taking methadone
rls_optimist
in
Restless Legs Syndrome
5 years ago
Living Hell and Hopeless
My husband now 79 is a the edge of not wanting to live anymore. His RLS is 30 years plus old, for years just after falling asleep for about 30 minutes and a slight twinge every minute that did not wake him. I use to count between the twitches which always found my leg like it was seeking something
My husband now 79 is a the edge of not wanting to live anymore. His RLS is 30 years plus old, for years just after falling asleep for about 30 minutes and a slight twinge every minute that did not wake him. I use to count between the twitches which always found my leg like it was seeking something
TinkandBobby
in
Restless Legs Syndrome
5 years ago
Methadone treatment?
Have any one of you folks been able to try Methadone as a treatment for your RLS? I am currently on morphine and requip with limited success. I see it is successful for some but my doctors won't prescribe it unless they decide I am a full blown addict which I am not. Sure would like to get a break
Have any one of you folks been able to try Methadone as a treatment for your RLS? I am currently on morphine and requip with limited success. I see it is successful for some but my doctors won't prescribe it unless they decide I am a full blown addict which I am not. Sure would like to get a break
Merster
in
Restless Legs Syndrome
5 years ago
Anxiety treatment using Diazepam-Advice Required
I am a long term user of Benzodiazepines (both illicitly (Using Flunitrazepam Nitrazepam, Flurazepam, Midazolam and Oxazepam, etc) and at the same time using legally)) and have been prescribed Diazepam to help deal with the symptoms for over 20 years. I was left on diazepam when my previous Psychiatrist
I am a long term user of Benzodiazepines (both illicitly (Using Flunitrazepam Nitrazepam, Flurazepam, Midazolam and Oxazepam, etc) and at the same time using legally)) and have been prescribed Diazepam to help deal with the symptoms for over 20 years. I was left on diazepam when my previous Psychiatrist
BilboBaggins16
in
Anxiety Support
5 years ago
Caroline Ezrah again
Hello! I think this would be my second post here, my anxiety and the panic attacks have returned in an exaggerated way, (as the doctors say my accident has exacerbated a lot in them), after suffering the accident I began to lose hearing bilaterally , it means that I suffer from severe hearing loss,
Hello! I think this would be my second post here, my anxiety and the panic attacks have returned in an exaggerated way, (as the doctors say my accident has exacerbated a lot in them), after suffering the accident I began to lose hearing bilaterally , it means that I suffer from severe hearing loss,
Ezrah
in
Bereavement Care & Share
5 years ago
Caroline Ezrah again
Hello! I think this would be my second post here, my anxiety and the panic attacks have returned in an exaggerated way, (as the doctors say my accident has exacerbated a lot in them), after suffering the accident I began to lose hearing bilaterally , it means that I suffer from severe hearing loss,
Hello! I think this would be my second post here, my anxiety and the panic attacks have returned in an exaggerated way, (as the doctors say my accident has exacerbated a lot in them), after suffering the accident I began to lose hearing bilaterally , it means that I suffer from severe hearing loss,
Ezrah
in
Anxiety and Depression Support
5 years ago
Positive aspects
https://www.presseportal.de/pm/128908/3942846 First of all I am sure to make mistakes in the English language. Sorry. The above link refers to a German Professor of Chemistry - Dr. Claudia Friesen. Maybe some of you have heard of her. I hadn't so far. A few days ago she was on Austrian TV about her
https://www.presseportal.de/pm/128908/3942846 First of all I am sure to make mistakes in the English language. Sorry. The above link refers to a German Professor of Chemistry - Dr. Claudia Friesen. Maybe some of you have heard of her. I hadn't so far. A few days ago she was on Austrian TV about her
hausbauer
in
Restless Legs Syndrome
5 years ago
Methadone treatment or not?
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
Merster
in
Restless Legs Syndrome
5 years ago
Hospice. What to expect?
Hi guys, My question is regarding hospice. My father has stage 4 pc with mets and a newly diagnosed aortic dissection with aneurysm in abdomen. The dr told us he has 6 months. What is expected from hospice? So far my mom and I are not convinced this is the right choice by our current hospice company
Hi guys, My question is regarding hospice. My father has stage 4 pc with mets and a newly diagnosed aortic dissection with aneurysm in abdomen. The dr told us he has 6 months. What is expected from hospice? So far my mom and I are not convinced this is the right choice by our current hospice company
Tua32427
in
Advanced Prostate Cancer
5 years ago
Rls don’t give up
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
rdbyam
in
Restless Legs Syndrome
5 years ago
refractory RLS, taking morphine
I have been almost two weeks on time release morphine 30 mg, which I take about 7 PM, and it lasts 12 hours, to help me sleep. I tried 15 mg, which worked for about 6 nights, and then worked less and less until not working at all. (During the last three months, I got off 1 mg of pramipexole, and I
I have been almost two weeks on time release morphine 30 mg, which I take about 7 PM, and it lasts 12 hours, to help me sleep. I tried 15 mg, which worked for about 6 nights, and then worked less and less until not working at all. (During the last three months, I got off 1 mg of pramipexole, and I
byrnzy4
in
Restless Legs Syndrome
5 years ago
33 years old no period for 10 years and two full term pregnancies within thay ten years
Hello I am almost 33 years old next month. I have had no period in the past ten years and am not post menopausal or currently going through menopause. I was on drugs for five of those ten years and clean the later half. I am on methadone though. I did not think it was possible for me to conseve, but
Hello I am almost 33 years old next month. I have had no period in the past ten years and am not post menopausal or currently going through menopause. I was on drugs for five of those ten years and clean the later half. I am on methadone though. I did not think it was possible for me to conseve, but
Firebear
in
Women's Health
5 years ago
Coming off pregabalin now.
Hi all pretension takers, I am being weaned off pregabilin as I type, I am now on my 4th week of gradual withdrawl. I started off on 300mg a day and I am now on 150mg. My doctor did earn me that addicts say that coming off pregabilin is worse than coming off methadone. I thought she was exaggerating
Hi all pretension takers, I am being weaned off pregabilin as I type, I am now on my 4th week of gradual withdrawl. I started off on 300mg a day and I am now on 150mg. My doctor did earn me that addicts say that coming off pregabilin is worse than coming off methadone. I thought she was exaggerating
Housespirte
in
Fibromyalgia Action UK
5 years ago
Thanksgiving and a Question
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
Jrskyhook32
in
Restless Legs Syndrome
5 years ago
Methadone
methadone for pain management?
methadone for pain management?
trixiern
in
SHARE Metastatic Breast Cancer
5 years ago
Novantron??
Can anyone comment on their experience with novantron? I am stage 4, 5+ years post-prostatectomy, have tried most everything, including taxotere and jevtana. PSA at 249 now, had got down to 40 from a previous high of 312. (Was <5 at time of surgery.) Bone pain under control with plenty of methadone
Can anyone comment on their experience with novantron? I am stage 4, 5+ years post-prostatectomy, have tried most everything, including taxotere and jevtana. PSA at 249 now, had got down to 40 from a previous high of 312. (Was <5 at time of surgery.) Bone pain under control with plenty of methadone
TireGuy
in
Advanced Prostate Cancer
6 years ago
Methotrexate while on Methadone treatment. I need advice.
Has anyone ever taken Methotrexate while on methadone treatment I currently take 75 mg of methadone liquid oral once-daily I was prescribed methotrexate 2.5 mg six tablets once per week for sarcoidosis my question is has anyone else taken Methotrexate while on methadone treatment because I am concerned
Has anyone ever taken Methotrexate while on methadone treatment I currently take 75 mg of methadone liquid oral once-daily I was prescribed methotrexate 2.5 mg six tablets once per week for sarcoidosis my question is has anyone else taken Methotrexate while on methadone treatment because I am concerned
Hidden
in
NRAS
6 years ago
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