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Mavenclad
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Update
I am having to go to the dentist today unbearable pain and I am not sure if I will have to postpone my start of year 2 of
mavenclad
. I will find out later and I will let you know. Some good news I think I told you all my daughter is expecting if I didn't sorry for the oversight.
I am having to go to the dentist today unbearable pain and I am not sure if I will have to postpone my start of year 2 of
mavenclad
. I will find out later and I will let you know. Some good news I think I told you all my daughter is expecting if I didn't sorry for the oversight.
Turtlepie
in
My MSAA Community
4 years ago
New energy
I was contacted by the
mavenclad
nurse I am scheduled to to start year 2 on December 24th. I am hoping for the same results but hope no throat infections this time.
I was contacted by the
mavenclad
nurse I am scheduled to to start year 2 on December 24th. I am hoping for the same results but hope no throat infections this time.
Turtlepie
in
My MSAA Community
4 years ago
5 months since start of mavenclad
As you know I had some problems after starting
mavenclad
. After all the throat infections cleared up I felt just yucky and fatigued. This last week and a half I have had more energy.
As you know I had some problems after starting
mavenclad
. After all the throat infections cleared up I felt just yucky and fatigued. This last week and a half I have had more energy.
Turtlepie
in
My MSAA Community
4 years ago
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Year 1 cycle 2 day 3
Today my allergies acted up and I had to hold off on taking anything for it because you are not supposed to take any kind of medication or supplements 3 hours before and 3 hours after taking the
Mavenclad
. They say that they can cause a problems with the
mavenclad
and effect how it works.
Today my allergies acted up and I had to hold off on taking anything for it because you are not supposed to take any kind of medication or supplements 3 hours before and 3 hours after taking the
Mavenclad
. They say that they can cause a problems with the
mavenclad
and effect how it works.
Turtlepie
in
My MSAA Community
4 years ago
Year 1 finished
I was supposed to of had a meeting with the
mavenclad
nurse on Monday but she couldn't make it so that is going to be rescheduled. Saw my neurologist today and got my blood work done.
I was supposed to of had a meeting with the
mavenclad
nurse on Monday but she couldn't make it so that is going to be rescheduled. Saw my neurologist today and got my blood work done.
Turtlepie
in
My MSAA Community
4 years ago
Year 1 cycle 2 day 4
I see the
mavenclad
nurse on Monday i see my neurologist on Wednesday and will get my first blood work done around the 10th of March. I will let you all know how it goes. You all take care.
I see the
mavenclad
nurse on Monday i see my neurologist on Wednesday and will get my first blood work done around the 10th of March. I will let you all know how it goes. You all take care.
Turtlepie
in
My MSAA Community
4 years ago
Year 1 cycle 2 day 1
I am with another group that is all for people taking or about to take
Mavenclad
and all most all of them say staying hydrated is key to this medicine. I feel fine and can't wait till this cycle is over then we wait for year 2. You all take care. Will let you know how tomorrow goes
I am with another group that is all for people taking or about to take
Mavenclad
and all most all of them say staying hydrated is key to this medicine. I feel fine and can't wait till this cycle is over then we wait for year 2. You all take care. Will let you know how tomorrow goes
Turtlepie
in
My MSAA Community
5 years ago
Update on my sore throat
I will have to postpone taking the
Mavenclad
till it is gone. My neurologist said I can postpone up to 6 months that is all I know for now.
I will have to postpone taking the
Mavenclad
till it is gone. My neurologist said I can postpone up to 6 months that is all I know for now.
Turtlepie
in
My MSAA Community
5 years ago
Cycle 2 of year 1 mavenclad
I got my second box of
mavenclad
yesterday and planned on take it today but woke up with a sore throat and it's red as the day has gone on it is getting worse and my glands are feeling swollen. I called MS life lines and they told me not to take any medication till I talk to my neurologist.
I got my second box of
mavenclad
yesterday and planned on take it today but woke up with a sore throat and it's red as the day has gone on it is getting worse and my glands are feeling swollen. I called MS life lines and they told me not to take any medication till I talk to my neurologist.
Turtlepie
in
My MSAA Community
5 years ago
Day 5 of mavenclad
I over did some things yesterday and didn't sleep well so guess what yes I have a headache. I am glad I am finished wthe the 1st cycle of year 1 still doing good and yes that nasty taste. I will not post every day. If something happens I will post it. I will let you all know when I get next month's medicine
I over did some things yesterday and didn't sleep well so guess what yes I have a headache. I am glad I am finished wthe the 1st cycle of year 1 still doing good and yes that nasty taste. I will not post every day. If something happens I will post it. I will let you all know when I get next month's medicine
Turtlepie
in
My MSAA Community
5 years ago
Day 4 of mavenclad
Today has been a good day just took 1 pill today the first 3 days I was taking 2. The nasty taste was not as bad today but still got it. I slept good last night so no headache today. I had only 1 concern and it was nothing to do with me just that every time that I talked to someone they wanted the lot
Today has been a good day just took 1 pill today the first 3 days I was taking 2. The nasty taste was not as bad today but still got it. I slept good last night so no headache today. I had only 1 concern and it was nothing to do with me just that every time that I talked to someone they wanted the lot
Turtlepie
in
My MSAA Community
5 years ago
Day 3 of Mavenclad
Today was a good not really any different from the last 2. I slept really good last night so no headache today. Still that nasty taste. I feel good. 2 more days and cycle 1 will be done. Not sure what else to say to you all. I hope this is helpful. I have a friend that doesn't know much about MS and
Today was a good not really any different from the last 2. I slept really good last night so no headache today. Still that nasty taste. I feel good. 2 more days and cycle 1 will be done. Not sure what else to say to you all. I hope this is helpful. I have a friend that doesn't know much about MS and
Turtlepie
in
My MSAA Community
5 years ago
Day 2 of mavenclad
Today has not been much different than yesterday. Still that nasty taste in my mouth. Had a ruff time going to sleep last night. I did get a slight headache but I think that is from not getting enough sleep. I always get a headache when I don't sleep well. I am hopeful that I will sleep better tonight
Today has not been much different than yesterday. Still that nasty taste in my mouth. Had a ruff time going to sleep last night. I did get a slight headache but I think that is from not getting enough sleep. I always get a headache when I don't sleep well. I am hopeful that I will sleep better tonight
Turtlepie
in
My MSAA Community
5 years ago
Day 1 of mavenclad
Took my first pills at 10am. About an hour after I got a bad taste in my mouth like after getting iv steroids. Nothing seemed to help get rid of the taste however it's 4pm now and it's not as bad but still got it. I feel good and I hope that that is all I have to deal with. The nurse that called me
Took my first pills at 10am. About an hour after I got a bad taste in my mouth like after getting iv steroids. Nothing seemed to help get rid of the taste however it's 4pm now and it's not as bad but still got it. I feel good and I hope that that is all I have to deal with. The nurse that called me
Turtlepie
in
My MSAA Community
5 years ago
Got my mavenclad today
While I wait the appeal process I will be able to start my medicine thanks to the drug company. I will take my first dose tomorrow morning. Because of my weight I will be taking 8 pills over the next 5 days 2 pills for 3 days and last 2 days just 1 pill. Next month I will take 7 pills over a 5 day period
While I wait the appeal process I will be able to start my medicine thanks to the drug company. I will take my first dose tomorrow morning. Because of my weight I will be taking 8 pills over the next 5 days 2 pills for 3 days and last 2 days just 1 pill. Next month I will take 7 pills over a 5 day period
Turtlepie
in
My MSAA Community
5 years ago
Update on day 5 of mavenclad
After post this evening and telling you all about how well I am doing I have sore throat. It's very red and hurting bad with some bumps on 1 side. Also my glands are swollen. This is something that I might have gotten anyway but I am concerned that the treatment for it will be different. I call MS life
After post this evening and telling you all about how well I am doing I have sore throat. It's very red and hurting bad with some bumps on 1 side. Also my glands are swollen. This is something that I might have gotten anyway but I am concerned that the treatment for it will be different. I call MS life
Turtlepie
in
My MSAA Community
5 years ago
My meds
Just got a letter from my insurance they will ot pay for the
mavenclad
. It's possible that my doctor didn't fill out the paperwork like she should have. Oh well now we see what is going to happen with the drug company.
Just got a letter from my insurance they will ot pay for the
mavenclad
. It's possible that my doctor didn't fill out the paperwork like she should have. Oh well now we see what is going to happen with the drug company.
Turtlepie
in
My MSAA Community
5 years ago
Possibly another MS therapy
I was hoping to make the
Mavenclad
conference but we had a snow storm and I was going through a relapse as well. Anyone out there on
Mavenclad
?
I was hoping to make the
Mavenclad
conference but we had a snow storm and I was going through a relapse as well. Anyone out there on
Mavenclad
?
sweethunnie
in
My MSAA Community
5 years ago
Still on hold for meds
I got cleared to take
Mavenclad
but now insurance is the hold up. I hope that by the first of the year I will start my medicine. I hope everyone has a wonderful Christmas. And it is official now I am a great grandma.
I got cleared to take
Mavenclad
but now insurance is the hold up. I hope that by the first of the year I will start my medicine. I hope everyone has a wonderful Christmas. And it is official now I am a great grandma.
Turtlepie
in
My MSAA Community
5 years ago
Delay on med
I was supposed to start
Mavenclad
last week but because of a problem with 1 of the tests I had to have done it has been put off I thought by now I could tell everyone how my first round of meds was doing. I will up date you when I get done with more testing.
I was supposed to start
Mavenclad
last week but because of a problem with 1 of the tests I had to have done it has been put off I thought by now I could tell everyone how my first round of meds was doing. I will up date you when I get done with more testing.
Turtlepie
in
My MSAA Community
5 years ago
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