Day 3 of Mavenclad

[Turtlepie]

Today was a good not really any different from the last 2. I slept really good last night so no headache today. Still that nasty taste. I feel good. 2 more days and cycle 1 will be done. Not sure what else to say to you all. I hope this is helpful. I have a friend that doesn't know much about MS and wants to know if the medicine is helping. I am not sure if what I said to her made any sense but I tryed to let her know this is not like take an antibiotic or a pain pill and you start feeling some kind of relief. Heck I don't even understand sometimes and I have been dealing with this for 27 years next month. I am greatful that I have been doing as good as I have this long.

[rjoneslaw]

I glad that u had some kind of relief.

It will always be hard to explain this to someone who doesn't understand the nature of the beast and what a little relief feels like even if its not great

[Turtlepie in reply to rjoneslaw]

It sure is hard to explain. You have a wonderful evening

[Peruzzot]

Glad to hear you didn't have the headache today. I don't think any of us could explain it to the point of understanding to someone that doesn't have it. As someone else explained it "You won't get it until you get it, and you don't want to get it." I think that sums it up pretty well. 🤔🤔

[Turtlepie in reply to Peruzzot]

That is so true

[jimeka in reply to Peruzzot]

Well said. We should have that as our motto. 👍

[jimeka]

Thank you again for letting us know how you are and so pleased that you had a good nights sleep and no headache Blessings Jimeka 🤗

[Turtlepie in reply to jimeka]

Thank you I am trying

[jimeka in reply to Turtlepie]

Your efforts are appreciated 🤗

[Turtlepie in reply to jimeka]

Thank you

[greaterexp]

We also appreciate the updates. I’m so glad you’re tolerating the medicine relatively well. I hope there is no more yucky taste!

[Turtlepie in reply to greaterexp]

Thank you

[Timeflies5]

Nice to see you’re tolerating treatment well...a friend of mine said she gets like a “metallic taste” in her mouth after she takes her med. Hope you continue to do well...blessings 😊

[Turtlepie in reply to Timeflies5]

Thank you

[twooldcrows]

fantastic ...keep on doing what your doing to be able to keep going ...i understand ...we just do what we can and hope for the best....

[Turtlepie in reply to twooldcrows]

Thank you

[pamgarner]

thank you for keeping us updated,it is such a new medicine. we all want a miracle

[Turtlepie in reply to pamgarner]

You're welcome. It will be nice if this works like I have been told

[pamgarner in reply to Turtlepie]

are you kidding?that would be AWESOME!keep our fingers crossed,I hope the best for you

[Turtlepie in reply to pamgarner]

Thank you

[lbenmaor]

I'm glad you're doing well.

Best Wishes,

Leslie

[Turtlepie in reply to lbenmaor]

Thank you

[lbenmaor in reply to Turtlepie]

You're Welcome.

[kycmary]

I understand that!!