Delay on med: I was supposed to start... - My MSAA Community

My MSAA Community

9,441 members21,224 posts

Delay on med

Turtlepie profile image
20 Replies

I was supposed to start Mavenclad last week but because of a problem with 1 of the tests I had to have done it has been put off I thought by now I could tell everyone how my first round of meds was doing. I will up date you when I get done with more testing. I see another doctor December 5th and will know more of what is going on after that

Written by
Turtlepie profile image
Turtlepie
To view profiles and participate in discussions please or .
20 Replies
RoseySawyer profile image
RoseySawyer

I hope it all goes well. ♥️🌹

Turtlepie profile image
Turtlepie in reply toRoseySawyer

Thank you. I am a little worried

greaterexp profile image
greaterexp

I’m sad to hear about your problem with the testing, but I hope it’s nothing that will put your new med off much longer. Thanks for keeping us in the loop.

Turtlepie profile image
Turtlepie in reply togreaterexp

Thank you. You're welcome I hope to have good news by mid December

mm1527mm profile image
mm1527mm

🙏 that all goes well!

Turtlepie profile image
Turtlepie in reply tomm1527mm

Thank you

rjoneslaw profile image
rjoneslaw

good luck

Turtlepie profile image
Turtlepie in reply torjoneslaw

Thank you

twooldcrows profile image
twooldcrows

it is always better to put off till they find out if it was a mistake or what ..good luck ...let us know how all goes...

Turtlepie profile image
Turtlepie in reply totwooldcrows

I will let everyone know what they find out and if I will or will not be starting the mavenclad

carolek572 profile image
carolek572CommunityAmbassador

Hopefully, your health care provider(s) will sort all this out soon :-D

Turtlepie profile image
Turtlepie in reply tocarolek572

Thank you I hope so

twooldcrows profile image
twooldcrows

maybe it will be something even better for you ...just don't let it ruin your Thanksgiving ...enjoy it ...things have a way of working out for the better...

Turtlepie profile image
Turtlepie in reply totwooldcrows

Thank you. I am sure you are right

pamgarner profile image
pamgarner

I am always thankful for delays, maybe you weren't suppose yo have it then.positive thoughts sent your way

Turtlepie profile image
Turtlepie in reply topamgarner

I was thinking that just want to stay off meds and just treat my symptoms. I'm 62 and I have been feeling normal to a point since I stopped meds

KarenUSA profile image
KarenUSA

My neurologist suggested this drug as an option to treat my secondary progressive MS. I ‘m trying to decide if I should pursue taking it. Good luck to you as you and your doctor as you gather test results.

Turtlepie profile image
Turtlepie

Good luck to you on making this decision. I am still not sure if I want to be on meds. But my doctor feels I need to take something or I could have major problems.

jimeka profile image
jimeka

You are the first person that I can recall starting mavenclad. It’s relatively new isn’t it? I hope if you do decide to have it, that it works and stops your progression. Praying that you can make the best decision for yourself, Blessings Jimeka 🙏

Turtlepie profile image
Turtlepie

It was just approved by the FDA in March of this year. I don't know any one that is taking it and I am not sure about it myself. I might not be able to take it because of the problem with my mamagram. I see a surgeon on December 5th to maybe have a byopsy. Thank you for your prayers. I will update when I know more

Not what you're looking for?

You may also like...

Which med???

Am currently on Rebif. Has been my med since diagnosis 8 years ago. After discussion today with my...
Disneycde profile image

Surgery on C-Spine

The neurosurgeon showed me what's going on with my c-spine with pictures from the MRI and...
greaterexp profile image

Started Ocrevus today, first med... still finding our New Normal

My recent diagnosis in April has let us down many different avenues on what we can control and what...
JMWCO profile image

Update on my foot injury

Okay, do not like to share any bad news, we all have had enough. I had an MRI on Thursday to see if...
Amore55 profile image

Year 1 finished

I was supposed to of had a meeting with the mavenclad nurse on Monday but she couldn't make it so...
Turtlepie profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.