Search
Search
About
Log in
Join
Experiences with
Mast cell leukaemia
Posts
Communities
3,555 public posts
Filter results
VIT B12 deficiency
Hi - just wondered if anyone else had this and if it's linked to HCL? I had treatment 5 years ago with Cladribine. I'm seeing GP on Wednesday following a blood test which said I was low in VIt B12 so just curious and want to go informed! Thank you
Hi - just wondered if anyone else had this and if it's linked to HCL? I had treatment 5 years ago with Cladribine. I'm seeing GP on Wednesday following a blood test which said I was low in VIt B12 so just curious and want to go informed! Thank you
emmieb-UK
in
Leukaemia Support
6 years ago
Sickle Cell News Week
SICKLECELLNEWSWEEk He will probably be 72 years old before he has another major sickle cell crises … a day in the life of a lab scientist http://bit.ly/2EItuzp Nigeria 2019 – Presidential Candidate Hooks Up With SCD Group on Whatsapp – says Sickle Cell not a barrier to a purposeful life http://bit.ly
SICKLECELLNEWSWEEk He will probably be 72 years old before he has another major sickle cell crises … a day in the life of a lab scientist http://bit.ly/2EItuzp Nigeria 2019 – Presidential Candidate Hooks Up With SCD Group on Whatsapp – says Sickle Cell not a barrier to a purposeful life http://bit.ly
sicklecellnews
in
Sickle Cell Society
6 years ago
Deborah Sims and Professor Peter Hillmen discuss data presented at ASH. Exciting new CLL treatments emerge as data matures
Fantastic job by our friend and CLL patient Deborah Sims, interviewing Professor Peter Hillmen at the American Society of Hamatology Conference (ASH) in San Diago. Prof Hillmen presented key UK trial data at the conference and shared insights with Deborah about new combination therapies, the MURANO
Fantastic job by our friend and CLL patient Deborah Sims, interviewing Professor Peter Hillmen at the American Society of Hamatology Conference (ASH) in San Diago. Prof Hillmen presented key UK trial data at the conference and shared insights with Deborah about new combination therapies, the MURANO
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hope
Being diagnosed a year and a half ago at age 55 I have like everyone on this forum wake up trying to fin my way within this new world of cll. I have followed this forum which has provided me with so much information, appreciation an gratitude. For those that have shared their personal experiences thank
Being diagnosed a year and a half ago at age 55 I have like everyone on this forum wake up trying to fin my way within this new world of cll. I have followed this forum which has provided me with so much information, appreciation an gratitude. For those that have shared their personal experiences thank
Superdad3
in
CLL Support
6 years ago
Therapy y Sickle Cell
Hi everyone. I am 41 years old and I have sickle cell anemia. I would like to share something which is the Bemer therapy that is helping my blood to flow better and that relieves the pain in my shoulders as I have had several infarcts in both of my shoulders. I continue with my medications every day
Hi everyone. I am 41 years old and I have sickle cell anemia. I would like to share something which is the Bemer therapy that is helping my blood to flow better and that relieves the pain in my shoulders as I have had several infarcts in both of my shoulders. I continue with my medications every day
Sabata
in
Sickle Cell Society
6 years ago
Cll and being breathless.
About 4 years ago I was diagnosed with cll. I've noticed over a few years I'm getting breathless more often and it's lead to panic attacks. A doctor Darren Schmidt on YouTube said the condition could be due to a lack of vitamin B . I've just started taking vitamin B and the difference is incredible.
About 4 years ago I was diagnosed with cll. I've noticed over a few years I'm getting breathless more often and it's lead to panic attacks. A doctor Darren Schmidt on YouTube said the condition could be due to a lack of vitamin B . I've just started taking vitamin B and the difference is incredible.
Marktruckingkelly
in
CLL Support
6 years ago
ASH 2018: Professor Peter Hillmen on the Combination of Ibrutinib and Obinutuzumab in CLL: Timing Matters
Today we start with an important abstract from the United Kingdom that may have significant immediate and future treatment implications. - Professor Peter Hillmen .... has chaired the chronic lymphocytic leukaemia (CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since
Today we start with an important abstract from the United Kingdom that may have significant immediate and future treatment implications. - Professor Peter Hillmen .... has chaired the chronic lymphocytic leukaemia (CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since
lankisterguy
Volunteer
in
CLL Support
6 years ago
Cancer update
Sorry not on for a while. I had to rush my husband into hospital yesterday. We were told that his cancer has spread all over his abdominal organs. The damage is too much . He is starting chemotherapy tomorrow but this is just as a palliative measure. Once again thank you everyone for your support
Sorry not on for a while. I had to rush my husband into hospital yesterday. We were told that his cancer has spread all over his abdominal organs. The damage is too much . He is starting chemotherapy tomorrow but this is just as a palliative measure. Once again thank you everyone for your support
Josieswolf
in
LUPUS UK
6 years ago
SICKLE CELL NEWSWEEK
Young medical graduate tells Paediatrics Professor, YOU KNOW NOTHING ABOUT SICKLE CELL!!! http://bit.ly/2QAqM59 Seven-year-old diagnosed with spinal cord stroke – long road to recovery http://bit.ly/2RZTJnL UK-based Richard Coker Foundation takes sickle cell awareness seminar to Girls’ College
Young medical graduate tells Paediatrics Professor, YOU KNOW NOTHING ABOUT SICKLE CELL!!! http://bit.ly/2QAqM59 Seven-year-old diagnosed with spinal cord stroke – long road to recovery http://bit.ly/2RZTJnL UK-based Richard Coker Foundation takes sickle cell awareness seminar to Girls’ College
sicklecellnews
in
Sickle Cell Society
6 years ago
Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Polycythemia and Jakafi
I have had ET for 13 years and then PV for a year. I am a 74 YO white male. I have been taking 1000mg of hydra every day for 14 years. I got some bad mouth sores and my doctor put me on Jakafi. My CBC showed platelets at 340 10(3), White cells at 14.1 10(3), and RBC at 4.31 10(6) when I started 10mg/
I have had ET for 13 years and then PV for a year. I am a 74 YO white male. I have been taking 1000mg of hydra every day for 14 years. I got some bad mouth sores and my doctor put me on Jakafi. My CBC showed platelets at 340 10(3), White cells at 14.1 10(3), and RBC at 4.31 10(6) when I started 10mg/
ccsial
in
MPN Voice
6 years ago
What is the relevance of "Atypical Lymphocyte count"
The US Veterans Administration has recently added the parameter called "atypical lymphocyte count" to my periodic CBC blood test. I have CLL currently on a w & w protocol. My last blood test reported a WBC of 17,310/uL and my absolute lymphocyte count was 6,060/uL and my " lymphocyte count plus
The US Veterans Administration has recently added the parameter called "atypical lymphocyte count" to my periodic CBC blood test. I have CLL currently on a w & w protocol. My last blood test reported a WBC of 17,310/uL and my absolute lymphocyte count was 6,060/uL and my " lymphocyte count plus
markjeep51
in
CLL Support
6 years ago
I'm new to Essential Thrombocythemia
Is there anyone out there to talk about ET experience, doubts and futures? I was diagnosed this summer but I've probably had it at least 2 years since bleeding symptoms first attracted attention. I'm a CALR mutation and taking hydroxycarbamide/hydroxyurea. I find researching it really interesting and
Is there anyone out there to talk about ET experience, doubts and futures? I was diagnosed this summer but I've probably had it at least 2 years since bleeding symptoms first attracted attention. I'm a CALR mutation and taking hydroxycarbamide/hydroxyurea. I find researching it really interesting and
Jdogs
in
MPN Voice
6 years ago
“Closing One Door, Opening Another” by Dr. Brian Koffman from CLL Society
Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote himself full time to the CLL community. Below is his touching letter he posted on his CLLSociety blog: Today was a monumental day for me. A huge transition
Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote himself full time to the CLL community. Below is his touching letter he posted on his CLLSociety blog: Today was a monumental day for me. A huge transition
Anastasia1
in
CLL Support
6 years ago
New in fight with ALD
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8 years old,we didnt knew anything about this disease till now,we still dont know much so thats why i came here to ask,read,share informations with you.He is not now eligible for a stem cell transplant or
MonaStoica
in
Leukodystrophy Support
6 years ago
CLL
Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always out of range 16.7 asof latest one, and my lymphocytes are always out of range as well 11.2 latest one, I have smudge cells present , Today was first time my MCH was low , now outrageously low but low. It scared me , I know
Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always out of range 16.7 asof latest one, and my lymphocytes are always out of range as well 11.2 latest one, I have smudge cells present , Today was first time my MCH was low , now outrageously low but low. It scared me , I know
Shellcanada71
in
CLL Support
6 years ago
AML patients in Australia today learn midostaurin (Rydapt®) will be available under new PBS listing. Press Release below.
Media Release For media queries, please contact media@leukaemia.org.au New PBS listing vital to Australians living with Acute Myeloid Leukaemia (AML) Leukaemia Foundation CEO Mr Bill Petch has today supported the Health Minister Mr Greg Hunt’s Pharmaceuticals Benefits Scheme (PBS) listing announcement
Media Release For media queries, please contact media@leukaemia.org.au New PBS listing vital to Australians living with Acute Myeloid Leukaemia (AML) Leukaemia Foundation CEO Mr Bill Petch has today supported the Health Minister Mr Greg Hunt’s Pharmaceuticals Benefits Scheme (PBS) listing announcement
Hidden
in
MPN Voice
6 years ago
CLL Society Alert -USA Patient Support Groups & Educational Meetings - Free 2nd Opinions by Video conference & Financial Assistance
See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2aad-42b8-b327-03126332eac0 for a more readable image with active links. Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote
See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2aad-42b8-b327-03126332eac0 for a more readable image with active links. Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote
lankisterguy
Volunteer
in
CLL Support
6 years ago
Daily Smokers Have a More than 3 Times Increased Risk for MPN
Daily Smokers Have a More than 3 Times Increased Risk for MPN NOVEMBER 28, 2018 Einav Keet The results of a new study conducted by investigators in Denmark suggest that smoking may be a risk factor for the development of myeloproliferative neoplasms (MPN), a rare group of blood cancers. Chronic myeloproliferative
Daily Smokers Have a More than 3 Times Increased Risk for MPN NOVEMBER 28, 2018 Einav Keet The results of a new study conducted by investigators in Denmark suggest that smoking may be a risk factor for the development of myeloproliferative neoplasms (MPN), a rare group of blood cancers. Chronic myeloproliferative
shiftzz
in
MPN Voice
6 years ago
SICKLECELLNEWSWEEK
Beverley Francis-Gibson, SCDAA President/CEO writes for SICKLE CELL NEWS – my mandate is to shed light on SCD and break down the barriers of stigma http://bit.ly/2zp7zsf Anne Welsh, former Chairperson, Sickle Cell Society (UK) writes for SICKLE CELL NEWS – you look OK to an observer, but FEEL otherwise
Beverley Francis-Gibson, SCDAA President/CEO writes for SICKLE CELL NEWS – my mandate is to shed light on SCD and break down the barriers of stigma http://bit.ly/2zp7zsf Anne Welsh, former Chairperson, Sickle Cell Society (UK) writes for SICKLE CELL NEWS – you look OK to an observer, but FEEL otherwise
sicklecellnews
in
Sickle Cell Society
6 years ago
1
...
93
94
95
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1698 results
MPN Voice
865 results
PMRGCAuk
200 results
View top 10 communities
Sort by
Most Relevant
Newest